https://www.newsweek.com/research-moves-slowly-rare-diseases-dontso-patients-arent-waiting-2090277
Research Moves Slowly. Rare Diseases Don’t—So Patients Aren’t Waiting - Newsweek
Jul 22, 2025 - Patients with rare diseases are increasingly working to find and fund their own cures. But should they have to?
rare diseasesresearchmovesslowlypatients