https://www.sobi.com/usa/en
We care about rare disease patients | Sobi North America
Sobi is dedicated to developing and delivering innovative therapies to improve the lives of rare disease patients.
we care aboutrare diseasepatientssobinorth
https://www.cslbehring.de/en-us/news/2022/un-resolution-rare-disease-patients
The United Nations Recognizes Rare Disease Patients
Supporters hope a newly adopted U.N. resolution will make rare disease patients more visible and ensure they have access to care.
the united nationsrare diseaserecognizespatients
https://jdcorporateblog.com/jd-health-expands-rare-disease-support-assists-over-23000-patients-via-joint-charity-programs/
JD Health Expands Rare Disease Support, Assists Over 23,000 Patients via Joint Charity Programs -...
In observance of Rare Disease Day on February 28, JD Health hosted the 4th Rare Disease Service Ecosystem Forum in Beijing. At the event, JD Health, in...
https://globalhealthnewswire.com/diseases/2019/02/24/pioneering-study-could-offer-protection-to-patients-with-rare-genetic-disease
Pioneering Study Could Offer Protection to Patients with Rare Genetic Disease - Global Health News...
Feb 25, 2019 - Skin cells taken from patients with a rare genetic disorder are up to ten times more sensitive to damage from ultraviolet A (AVA) radiation in laboratory...
https://www.healinghugshaven.com/
Helping Rare Disease Patients Get the Health Care They Need
Teaching you how to navigate the medical system, create a collaborative medical team, and become a powerful self-patient advocate to live your best life with...
rare diseaseget thehealth carehelpingpatients
https://www.pharmavoice.com/news/2016-02-rare-disease-therapies/613045/
Patients and Patient Organizations Power Rare Disease Therapies | PharmaVoice
News for pharmacy pros
patient organizationsrare diseasepatientspowertherapies