https://www.cacna1a.org/contactregistry
Contact Registry — CACNA1A Foundation
If you are an adult with CACNA1A-related disorders or the parent, primary caregiver, or guardian of someone with CACNA1A-related disorders, we encourage you to...
contact registryfoundation
https://angelman.org/contactregistry/
Contact Registry - Angelman Syndrome Foundation
Sep 1, 2025 - The ASF has been supporting families for over 30 years while funding the research that has made the biggest strides toward a cure for Angelman syndrome.
contact registryangelman syndromefoundation