https://bobisdysautonomia.blogspot.com/2013/10/stephanie-from-challenge-to-hope-and.html
Living with Bob (Dysautonomia): Stephanie: From challenge to hope and giving back. Dysautonomia...
Today's guest poster is Stephanie. Stephanie is a woman after my own heart, having gone into counselling as a profession. I love that her j...
living with
https://hexi.ox.ac.uk/jewish-health/familial-dysautonomia
Jewish Health - Familial Dysautonomia
jewishhealthfamilialdysautonomia
https://www.dysautonomiasupport.org/
Dysautonomia Support Network - Live Your Best Life
We’re glad you’re here! As an organization of patients supporting patients, we work to help our community become empowered, knowledgable, and able to self…
support networklive yourdysautonomiabestlife
https://bobisdysautonomia.blogspot.com/2012/11/respect-is-two-way-street-day-5-nhbpm.html
Living with Bob (Dysautonomia): Respect is a Two-Way Street: Day 5 NHBPM
( source ) Topic: Health Activist Soapbox (My poor old soapbox is battered from all its use. I may have to MacGyver it to keep it tog...
two way street
https://bobisdysautonomia.blogspot.com/2011/11/abc-ramp-up-article.html
Living with Bob (Dysautonomia): ABC Ramp Up Article
Well my response to the NYT's article was accepted for ABC Ramp Up today. A wee bit chuffed (I don't think I've ever been anyone's Editor'...
living withramp upbobdysautonomiaabc
https://bobisdysautonomia.blogspot.com/2014/10/tildy-exploring-dysautonomia-through.html
Living with Bob (Dysautonomia): Tildy: Exploring Dysautonomia Through the Arts, for Dysautonomia...
Today on Exploring Dysautonomia Through The Arts, is Tildy. I love the title of her piece, Well, the Tests are all Normal , as it is a lin...
living withthe artsbobdysautonomiatildy
https://pubmed.ncbi.nlm.nih.gov/34766441/
Dysautonomia in the Ehlers-Danlos syndromes and hypermobility spectrum disorders-With a focus on...
Dysautonomia (autonomic dysfunction) occurs in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Symptoms include palpitations,...
https://bobisdysautonomia.blogspot.com/2014/11/
Living with Bob (Dysautonomia): November 2014
living withbobdysautonomianovember
https://bobisdysautonomia.blogspot.com/2011/12/
Living with Bob (Dysautonomia): December 2011
living withbobdysautonomiadecember
https://bobisdysautonomia.blogspot.com/2013/05/confirmation-of-disability.html
Living with Bob (Dysautonomia): Confirmation of Disability
My fun world of denial hit a snag this week. A big slap-up-side-the-head, marching band, Vegas lights and feather clad showgirls, snag...
living withbobdysautonomiaconfirmationdisability
https://bobisdysautonomia.blogspot.com/2012/11/and-ive-done-my-back-because-i-had.html
Living with Bob (Dysautonomia): And I've done my back, because I had nothing else going on: Day 6...
Day 6: News-style post: Warning this post is written whilst on the good pain meds. No coherency, grammar or spelling guaranteed. Stubbornnes...
https://bobisdysautonomia.blogspot.com/2012/08/
Living with Bob (Dysautonomia): August 2012
living withbobdysautonomiaaugust
https://revista.unaminternacional.unam.mx/en/nota/10/disautonomia-una-enfermedad-poco-conocida
Dysautonomia. A Barely Known Disease
dysautonomiabarelyknowndisease
https://bobisdysautonomia.blogspot.com/2012/03/teen-pots-and-case-of-missing-hand.html
Living with Bob (Dysautonomia): Teen POTS and the case of the missing hand.
It's teen time here on the blog today. As all us old fogeys take our nanna naps, fellow Aussie, Rhinane, brings some of her youthful exubera...
living with
https://bobisdysautonomia.blogspot.com/2012/11/be-change-day-ii-nhbpm.html
Living with Bob (Dysautonomia): Be the change
Day II: Find a quote and use it as inspiration (originally part of National Health Blog Post Month, 2012) Well I didn't exac...
living withbobdysautonomiachange
https://ya-boginhall-7.b-cdn.net/how-massage-can-help-with-familial-dysautonomia.html
How Massage Can Help with Familial Dysautonomia
can help withmassagefamilialdysautonomia
https://bobisdysautonomia.blogspot.com/2011/11/animal-people-by-charlotte-wood-product.html
Living with Bob (Dysautonomia): "Animal People" by Charlotte Wood, Product Talk & Give Away.
(This review is part of Nuffnang's Product Talk . I did not receive payment for this review. However, I was lucky enough to receive a copy t...
https://bobisdysautonomia.blogspot.com/2015/08/
Living with Bob (Dysautonomia): August 2015
living withbobdysautonomiaaugust
https://bobisdysautonomia.blogspot.com/2017/12/
Living with Bob (Dysautonomia): December 2017
living withbobdysautonomiadecember
https://bobisdysautonomia.blogspot.com/2010/05/fabulous-friday-happy-birthday-cougar.html
Living with Bob (Dysautonomia): Fabulous Friday: Happy Birthday Cougar.
Yes it's that time again. The one day of the week I am determined to be queen of optomism, perkiness and the glass half full. This week ha...
living withfabulous fridayhappy birthdaybobdysautonomia
https://pubmed.ncbi.nlm.nih.gov/12406829/
Respiratory and cerebrovascular responses to hypoxia and hypercapnia in familial dysautonomia
Although cardiorespiratory complications contribute to the high morbidity/mortality of familial dysautonomia (FD), the mechanisms remain unclear. We evaluated...
respiratorycerebrovascularresponseshypoxiafamilial
https://bobisdysautonomia.blogspot.com/2014/09/break-and-mend.html
Living with Bob (Dysautonomia): Break and mend.
We moved from the city to the country eight months ago. Well when I say city, we lived on the fringe, on the side of a mountain, and the ...
living withbobdysautonomiabreakmend
https://bobisdysautonomia.blogspot.com/2013/04/dear-doctors.html
Living with Bob (Dysautonomia): Dear Doctors.
Dear Doctors, A young patient presents at your ER/clinic/rooms, with unexplained symptoms of chest pain and fainting. What is you first ...
living withbobdysautonomiadeardoctors
https://bobisdysautonomia.blogspot.com/2013/12/
Living with Bob (Dysautonomia): December 2013
living withbobdysautonomiadecember
https://www.melindapascoeneurology.com/
Neurology Solutions - Dr Melinda Pascoe - Migraine, Dysautonomia, Epilepsy - Brisbane Neurologist
neurologysolutionsdrmelindapascoe
https://bobisdysautonomia.blogspot.com/2014/09/calling-all-artists-closet-artists.html
Living with Bob (Dysautonomia): Calling all artists, closet artists, occasional doodlers,...
(My paltry doodling trying to capture my Dysautonomia experience, s ource ) Back in 2012 I stumbled across UK based and award winning a...
calling all artistsliving withbobdysautonomiacloset
https://connect.mayoclinic.org/discussion/dysautonomia-is-ruining-my-life-no-help-from-doctors/
Dysautonomia is ruining my life, no help from doctors | Mayo Clinic Connect
I am struggling with Dysautonomia that just popped up last October 2024. My health and mental health are declining rapidly. My doctors are not knowledgeable...
my life
https://familialdysautonomia.org/
Familial Dysautonomia Foundation
familial dysautonomiafoundation
https://bobisdysautonomia.blogspot.com/2010/09/
Living with Bob (Dysautonomia): September 2010
living withbobdysautonomiaseptember
https://bobisdysautonomia.blogspot.com/2009/08/
Living with Bob (Dysautonomia): August 2009
living withbobdysautonomiaaugust
https://pmc.ncbi.nlm.nih.gov/articles/PMC11748159/
The Diagnostic Journey of Dysautonomia Patients: Insights from a Patient-Reported Outcome Study -...
Dysautonomia refers to any disorder involving altered function of the autonomic nervous system. Dysautonomia can be debilitating as it often affects multiple...
https://bobisdysautonomia.blogspot.com/2012/11/rescue-pet-therapy-rescuing-goes-both.html
Living with Bob (Dysautonomia): Rescue Pet Therapy. The rescuing goes both ways: Day 24 #NHBPM
This is Thor. My beautiful, big, slightly out there, Great Dane. This is Thor the first day we saw him at his rescue mum's house. ...
https://neurology.duke.edu/events/duke-neurology-grand-rounds-central-dysautonomia-stroke-epilepsy-and-other-central-nervous
Duke Neurology Grand Rounds: "Central Dysautonomia in stroke, epilepsy, and other central nervous...
The Duke Department of Neurology holds its weekly Grand Rounds lecture on Wednesday mornings from 8 to 9 a.m. This week's lecture will be delivered by Max...
grand rounds
https://connect.mayoclinic.org/discussion/dysautonomia-and-procedure-involving-sedation/?pg=1
Dysautonomia and Procedure involving Sedation | Mayo Clinic Connect
Hi all, Haven't posted in a while, but I would love some input from any in the group that have faced this decision. I recently...
mayo clinicdysautonomiaprocedureinvolvingsedation
https://www.researchandmarkets.com/reports/6076123/dysautonomia-autonomic-dysfunction-market-report
Dysautonomia (Autonomic Dysfunction) Market Report 2026
The Dysautonomia (Autonomic Dysfunction) Market, valued at USD 3.25B in 2026, is projected to reach USD 4.98B by 2030, growing at a 11.2% CAGR.
market reportdysautonomiaautonomicdysfunction
https://bobisdysautonomia.blogspot.com/2010/09/today-im-daisy-raising-dysautonomia.html
Living with Bob (Dysautonomia): Today I'm A Daisy: Raising Dysautonomia Awareness.
Hey all. Today's post is just a quicky thanks to steady rumblings of approaching migraine and just a dash of apathy. Next week 13th to 19...
living withm abobdysautonomiatoday
https://bobisdysautonomia.blogspot.com/2012/02/ink-on-page.html
Living with Bob (Dysautonomia): Ink on a page
Taking part in Edenland's meme Fresh Horses Brigade today. Writing by hand is a feat of epic proportions these days. To hold the pen...
living withon abobdysautonomiaink
https://bobisdysautonomia.blogspot.com/2009/10/serenity-now-12-more-pages.html
Living with Bob (Dysautonomia): Serenity Now: Breathing techniques
Stress and illness go hand in hand: stress from the physical toll on our bodies and stress from the constant attacks to our psyches. We've ...
living withserenity nowbobdysautonomiabreathing
https://pubmed.ncbi.nlm.nih.gov/?term=Dysautonomia
Dysautonomia - Search Results - PubMed
Dysautonomia - Search Results - PubMed
search resultsdysautonomiapubmed
https://bobisdysautonomia.blogspot.com/2013/11/single-fibre-electromyography-sfemg.html
Living with Bob (Dysautonomia): Single-fibre electromyography (SFEMG): The waiting game continues.
You know your life has taken a weird twist when you're lying down in a room with two neurologists, a needle hanging out the side of yo...
the waiting gameliving with
https://bobisdysautonomia.blogspot.com/2017/11/heat.html
Living with Bob (Dysautonomia): Heat
[Image: I'm slumped over resting against the roller door and bracing against the white wall. My hand is extended holding my walking stick....
living withbobdysautonomiaheat
https://bobisdysautonomia.blogspot.com/2015/09/
Living with Bob (Dysautonomia): September 2015
living withbobdysautonomiaseptember
https://www.medlineplus.gov/autonomicnervoussystemdisorders.html
Dysautonomia | Autonomic Nervous System Disorders | MedlinePlus
Dysautonomia is a disorder of the autonomic nervous system, which controls functions such as breathing and heartbeat. Read more about these disorders.
autonomic nervous systemdysautonomiadisordersmedlineplus
https://bobisdysautonomia.blogspot.com/2009/09/
Living with Bob (Dysautonomia): September 2009
living withbobdysautonomiaseptember
https://bobisdysautonomia.blogspot.com/2010/08/life-is-errant-shower-water-jet-in-face.html
Living with Bob (Dysautonomia): Life is an errant shower water jet in the face.
Do you ever hop into the shower and find that there is one errant little jet of water, that acts like a heat seeking missile going straight ...
https://bobisdysautonomia.blogspot.com/2012/03/media-misrepresentations-of.html
Living with Bob (Dysautonomia): Media misrepresentations of Dysautonomia Part II: ABC World News
Yet again Dysautonomia, in particular POTS (Postural Orthostatic Tachycardia Syndrome) has made the news following a story on ABC World News...
living with
https://www.news-medical.net/news/20220501/Study-finds-6725-of-individuals-with-long-COVID-are-developing-dysautonomia.aspx
Study finds 67% of individuals with long COVID are developing dysautonomia
Feb 22, 2023 - In a recent study posted to the medRxiv* preprint server, researchers analyzed the traits of autonomic symptom burden in long coronavirus disease (COVID).
study findslong covidindividuals
https://bobisdysautonomia.blogspot.com/2010/09/thumping-tube-of-death.html
Living with Bob (Dysautonomia): The Thumping Tube of Death
Well I did it.. I made it through and lived to tell the tale. Victory is mine. Maybe I can get a trashy t-shirt made to commemorate the o...
living withbobdysautonomiathumpingtube
https://bobisdysautonomia.blogspot.com/2010/10/purple-misty-mountain-haze.html
Living with Bob (Dysautonomia): Purple Misty Mountain Haze
Well my dance with FATigue continues this week. So brace yourself for an underwhelming blog post Damn Spring and it's fine sunny days. Y...
living withmisty mountainbobdysautonomiapurple
https://potsanddysautonomiajapan.org/
POTS and Dysautonomia Japan | 体位性頻脈症候群と自律神経障害
Jun 13, 2026 - POTS and Dysautonomia Japanは体位性頻脈症候群(POTS, ポッツ)やその周辺の自律神経障害(Dysautonomia, ディスオートノミア)の疾患啓発・患者支援・研究推進をめざして活動しています。
potsdysautonomiajapan
https://bobisdysautonomia.blogspot.com/2012/11/setbacks-day-7-nhbpm.html
Living with Bob (Dysautonomia): Setbacks: Day 7 #NHBPM
Well it's Day 7 of NHBPM. Despite a back that still refuses to play ball I am attempting to keep chugging along. But not with a blog, becaus...
living withbobdysautonomiasetbacksday
https://bobisdysautonomia.blogspot.com/p/compression-stockings.html
Living with Bob (Dysautonomia): Compression Stockings
Compression stockings: From beige to brilliant. Fashionable Compression Stockings 2016 Update: Options and New Tips. Metamorph...
living withbobdysautonomiacompressionstockings