https://discord.com/invite/EgPY3Vk2TG
FSHD Community
Check out the FSHD Community community on Discord - hang out with 157 other members and enjoy free voice and text chat.
fshdcommunity
https://www.fshdsociety.org/research-and-clinical-care/for-researchers/international-research-congress/
International Research Congress - FSHD Society
Apr 29, 2026 - Join us for the 2026 International Research Congress on FSHD June 25-26 in Chicago Join us in Rosemont, Illinois (Greater Chicago area) for our annual global...
international researchcongressfshdsociety
https://www.fshdsociety.org/research-and-clinical-care/therapeutic-accelerator/
Therapeutic Accelerator - FSHD Society
May 1, 2025 - Our Therapeutic Accelerator initiative promises to overcome obstacles to regulatory approval and patient access
therapeutic acceleratorfshdsociety
https://www.fshdsociety.org/privacy-policy/
Privacy Policy - FSHD Society
Apr 16, 2025 - Review our privacy policy here. The FSHD Society respects the privacy of all visitors to our website. We will not sell, share or distribute your information.
privacy policyfshdsociety
https://www.fshdsociety.org/living-with-fshd/managing-fshd/additional-resources/financial-legal-resources/
Financial/Legal Resources - FSHD Society
legal resourcesfinancialfshdsociety
https://www.servimedia.es/noticias/una-notaria-fshd-reclama-mas-investigacion-apoyo-institucional-para-enfermedades-raras/1412827166
Una notaria con FSHD reclama más investigación y apoyo institucional para las enfermedades raras |...
May 2, 2026 - María Gómez-Rodulfo, notaria y afectada por distrofia muscular facioescapulohumeral (FSHD), reclama un mayor compromiso de las administraciones…
https://www.fshdsociety.org/about-us/about-the-fshd-society/our-impact/grants-we-have-funded/
Research We Have Funded - FSHD Society
Jun 18, 2025 - Since 1998, the FSHD Society has supported groundbreaking research on facioscapulohumeral muscular dystrophy (FSHD). Our grants have helped discover the...
research we have fundedfshdsociety
https://www.fshdsociety.org/event/pnw-chapter-baseball-game-world-fshd-day-celebration/
PNW Chapter Baseball Game & World FSHD Day Celebration - FSHD Society
May 4, 2026 - Sunday, June 14th, 2026 Join the Pacific Northwest Chapter on June 14th to watch the Tacoma Rainiers play against the Albuquerque Isotopes! Cheney Stadium,...
world fshd daybaseball gamepnwchaptercelebration
https://mirecule.com/2022/09/30/solve-fshd-invests-us-1-million-in-mirecule-to-accelerate-development-of-best-in-class-antibody-rna-conjugate-to-treat-facioscapulohumeral-muscular-dystrophy/
SOLVE FSHD Invests US $1 Million in miRecule to Accelerate Development of Best-in-Class...
https://fshfriends.org/
FSHD Research Funding & Grants | Friends of FSH Research
Accelerating FSHD research to find a cure through strategic funding. De-risking innovative projects and supporting research globally. All-volunteer,...
fshd researchfunding grantsfriends of
https://avesis.akdeniz.edu.tr/yayin/3f3a45c0-620b-485d-bb2e-fdd7b4e9f126/facioscapulohumeral-muscular-dystrophy-fshd-has-a-talk-with-endocrinologic-parameters-estradiol-progesterone-and-testosterone
Facioscapulohumeral Muscular Dystrophy (FSHD) has a Talk with Endocrinologic Parameters: Estradiol,...
muscular dystrophytalk withfshd
https://www.fshdsociety.org/es_mx/eventos/
Eventos - Sociedad FSHD
eventossociedadfshd
https://www.fshdsociety.org/event/living-spiritually-with-fshd-4/
Living Spiritually with FSHD - FSHD Society
Nov 11, 2025 - We are very excited about our next Living Spiritually with FSHD meeting as we discuss how faith and wisdom traditions can help us manage and transcend...
livingspirituallyfshdsociety
https://www.curefshdforall.com/general-5
FAQs (Broad) | Cure Fshd For All
faqsbroadcurefshd
https://www.fshdsociety.org/event/straight-talk-264/2026-12-22/
FSHD Straight Talk with Tim Hollenback - FSHD Society
Dec 22, 2025 - On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the...
talk with timfshdstraightsociety
https://www.fshdsociety.org/get-involved/how-to-help/volunteer/
Volunteer - FSHD Society
volunteerfshdsociety
https://www.fshdsociety.org/living-with-fshd/managing-fshd/fshd-navigator/
FSHD Navigator - FSHD Society
Apr 30, 2025 - FSHD Navigator is a new program assisting individuals living with FSHD, their families, friends, and care partners that provides a personal, human-centered...
fshd navigatorsociety
https://www.fshdsociety.org/research-and-clinical-care/for-clinicians/
For Clinicians - FSHD Society
Mar 5, 2026 - Where to Start? The FSHD Society offers a comprehensive suite of resources designed to keep you at the forefront of FSHD care and discovery. From clinical...
for cliniciansfshdsociety
https://www.fshdsociety.org/series/endurance-events/
Endurance Events - FSHD Society
endurance eventsfshdsociety
https://www.fshdsociety.org/tag/fsh-society/
FSH Society - FSHD Society
fshsociety
https://fshdexpertisecentrum.nl/veelgestelde-vragen/patienten/wat-doet-het-expertisecentrum-fshd/
Wat doet het expertisecentrum FSHD? - facioscapulohumerale dystrofie
watdoethetexpertisecentrumfshd
https://www.fshdsociety.org/ar/2025/10/08/in-memoriam-daniel-paul-perez/
In Memoriam: Daniel Paul Perez - FSHD Society
Oct 15, 2025 - Written by Howard Chabner, Board Vice Chair, and shared on behalf of the entire FSHD Society Board of Directors The Board of Directors of the FSHD Society is...
in memoriamdaniel paulperezfshdsociety
https://www.fshdsociety.org/event/neflorida-walk-2026/
Florida (Northeast) Walk & Roll to Cure FSHD 2026 - FSHD Society
floridanortheastwalkrollcure
https://www.fshdsociety.org/library/page/2/
Library Items - FSHD Society - Page 2
library itemsfshd society
https://www.fshdsociety.org/research-and-clinical-care/research-and-clinical-trials/ctrn/
Clinical Trial Research Network - FSHD Society
May 1, 2025 - The FSHD Clinical Trial Research Network is central to accelerating FSHD treatment development.
clinical trial researchnetworkfshdsociety
https://solvefshd.com/plan/
Plan - SOLVE FSHD
plansolvefshd
https://www.fshdsociety.org/about-us/about-the-fshd-society/
About the FSHD Society - FSHD Society
Apr 30, 2025 - Discover the FSHD Society’s mission to find treatments and a cure for FSHD. Learn about our vision, values, and impact on research, community, and advocacy.
about thefshdsociety
https://www.fshdsociety.org/get-involved/how-to-help/ways-to-give/
Ways to Give - FSHD Society
Apr 16, 2026 - The FSHD Society is at the forefront of driving research, empowering families, expanding access to care, and advocating for lasting change. Your support fuels...
ways to givefshdsociety
https://www.spierziekten.nl/nieuws/onderzoek-naar-moment-en-oorzaak-van-overlijden-bij-fshd/
Onderzoek naar moment en oorzaak van overlijden bij FSHD - Spierziekten
Oct 22, 2025 - Onderzoek naar moment en oorzaak van overlijden bij FSHD
onderzoekmomentoorzaakvanoverlijden
https://www.fshdsociety.org/living-with-fshd/managing-fshd/additional-resources/coordinating-care/
Coordinating Care - FSHD Society
coordinating carefshdsociety
https://www.fshdsociety.org/statement-on-inclusivity-and-equity/
Inclusivity and Equity - FSHD Society
Mar 25, 2025 - At the FSHD Society, inclusivity is part of our organizational DNA. We stand firmly against racism and all forms of discrimination as we fight for the lives...
inclusivity and equityfshdsociety
https://www.fshdsociety.org/living-with-fshd/understanding-fshd/fshd-university/wellness/
Wellness - FSHD Society
May 1, 2025 - FSHD takes a toll on mental health, but therapy, coaching, mindfulness, and other techniques can make a difference. Our programs and resources can help.
wellnessfshdsociety
https://www.fshdsociety.org/event/straight-talk-262/2026-10-13/
FSHD Straight Talk with Tim Hollenback - FSHD Society
Dec 22, 2025 - On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the...
talk with timfshdstraightsociety
https://www.fshdsociety.org/category/living-with-fshd/tips-and-tricks/page/2/
Tips and Tricks - FSHD Society - Page 2
tips and tricksfshd society
https://www.fshdsociety.org/category/general/page/2/
General - FSHD Society - Page 2
fshd societygeneral
https://fshdexpertisecentrum.nl/veelgestelde-vragen/patienten/wat-de-oorzaak-van-fshd/
Wat is de oorzaak van FSHD? - facioscapulohumerale dystrofie
wat isdeoorzaakvanfshd
https://www.fshdsociety.org/living-with-fshd/understanding-fshd/glossary-of-scientific-terms/
Glossary of Scientific Terms - FSHD Society
Apr 30, 2025 - FSHD patient resource for defining scientific terms. This easy reference glossary defines the most commonly used terminology in the field.
glossary of scientific termsfshdsociety
https://www.fshdsociety.org/zh/2019/06/15/video-stance-control-brace-webinar/
Stance-control brace webinar [VIDEO] - FSHD Society
Jul 15, 2020 - Here is the recording of our June 8th webinar with Abbey Downing, a certified prosthetist/orthotist from the Hanger Clinic in Wethersfield, CT. Ms. Downing has...
webinar videostancecontrolbracefshd
https://www.fshdsociety.org/living-with-fshd/understanding-fshd/
Understanding FSHD - FSHD Society
understanding fshdsociety
https://www.fshdsociety.org/library/what-to-do-in-a-crisis/
What to do in a crisis - FSHD Society
what to do in a crisisfshdsociety
https://www.fshdsociety.org/es_mx/about-us/about-the-fshd-society/our-impact/
Our Impact - FSHD Society
Mar 19, 2026 - We help people affected by FSHD through education and outreach, by accelerating scientific and medical research, and through advocacy efforts.
our impactfshdsociety
https://www.fshdsociety.org/2023/11/13/the-2023-walk-roll-to-cure-fshd/
The 2023 Walk & Roll to Cure FSHD - FSHD Society
Nov 7, 2023 - Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a...
walkrollcurefshdsociety
https://fshdexpertisecentrum.nl/veelgestelde-vragen/patienten/waarmee-moet-ik-rekening-houden-als-ik-fshd-heb-en-kinderen-wil/
Waarmee moet ik rekening houden als ik FSHD heb en kinderen wil? - facioscapulohumerale dystrofie