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https://geneticalliance.org.uk/news/etis-story/ Eti’s Story - Genetic Alliance UK Apr 22, 2026 - Eti’s mum Hana shares her family’s story of how having a child with an undiagnosed genetic condition impacts their family genetic alliance ukstory https://geneticalliance.org.uk/membership/ Membership - Genetic Alliance UK Our member organisations and the people living with genetic and rare conditions that they support are at the heart of everything we do. We listen to one... genetic alliance ukmembership https://geneticalliance.org.uk/campaigns-and-research/rare-disease-day/ Rare Disease Day - Genetic Alliance UK Rare Disease Day is an important international awareness day that takes place annually on 28 February (or 29 February in leap years). This date was chosen... rare disease daygenetic alliance uk https://geneticalliance.org.uk/campaigns-and-research/rare-disease-day/rare-disease-day-2026/ Rare Disease Day 2026 - Genetic Alliance UK Rare Disease Day is an international awareness day that takes place annually on 28 February (or 29 February in leap years). Thousands participate to support... rare disease daygenetic alliance uk https://geneticalliance.org.uk/citations-policy/ Citations policy - Genetic Alliance UK Genetic Alliance UK freely gives permission to reproduce original, unmodified material from our website for non-commercial purposes as long as we are credited... genetic alliance ukcitations policy https://geneticalliance.org.uk/who-we-are/news-stories/page/2/ News and stories - Genetic Alliance UK All of the latest news and updates from Genetic Alliance UK can be found below. This includes the release of our latest reports and findings, as well as pieces... news and storiesgenetic alliance uk https://geneticalliance.org.uk/who-we-are/ Who we are - Genetic Alliance UK Genetic Alliance UK is an alliance of over 220 organisations, charities and support groups working together to improve the lives of everyone in the UK living… who we aregenetic alliance uk https://geneticalliance.org.uk/who-we-are/news-stories/page/4/ News and stories - Genetic Alliance UK All of the latest news and updates from Genetic Alliance UK can be found below. This includes the release of our latest reports and findings, as well as pieces... news and storiesgenetic alliance uk https://geneticalliance.org.uk/who-we-are/news-stories/page/8/ News and stories - Genetic Alliance UK All of the latest news and updates from Genetic Alliance UK can be found below. This includes the release of our latest reports and findings, as well as pieces... news and storiesgenetic alliance uk https://geneticalliance.org.uk/future-for-rare/ Future for Rare campaign - Genetic Alliance UK Future for Rare campaign to inform what the future of rare conditions policy in the UK should look like future for rare campaigngenetic alliance uk https://geneticalliance.org.uk/get-involved/corporate-partnerships/ Corporate partnerships - Genetic Alliance UK Corporate partnerships are vital to our life-changing work for everyone in the genetic, rare and undiagnosed community. genetic alliance ukcorporate partnerships https://geneticalliance.org.uk/event/the-brighton-marathon/ The Brighton Marathon - Genetic Alliance UK Apr 15, 2025 - The Brighton Marathon is one of the UK’s favourite 26.2-milers. With a stunning backdrop of the sea in one of the country’s most vibrant cities… the brighton marathongenetic alliance uk https://geneticalliance.org.uk/campaigns-and-research/our-research-priorities/ Our research priorities - Genetic Alliance UK Much of our research is about understanding people’s experience of living with their genetic or rare condition, or their loved one’s condition - how it affects... our research prioritiesgenetic alliance uk https://geneticalliance.org.uk/who-we-are/contact/ Contact - Genetic Alliance UK You can reach the friendly Genetic Alliance UK team over phone, email or post. The quickest way to get a response is to fill the form below. genetic alliance uk https://geneticalliance.org.uk/campaigns-and-research/expanding-screening/ Newborn screening - Genetic Alliance UK Medical screening helps to diagnose someone with a medical condition, or to identify if they’re more likely to develop a condition. genetic alliance uknewborn screening https://geneticalliance.org.uk/campaigns-and-research/rare-disease-day/our-videos/ Our video content - Genetic Alliance UK A selection of Rare Disease Day videos, including from our Stories Behind the Stats news-style programme with ITN Business our video contentgenetic alliance uk https://geneticalliance.org.uk/membership/become-a-member/ Become a member - Genetic Alliance UK Genetic Alliance UK was established in 1989 and has over 200 member organisations – will you be our next? become a membergenetic alliance uk https://geneticalliance.org.uk/westminster-appg/ Westminster APPG - Genetic Alliance UK Genetic Alliance UK is the secretariat for this group and we work towards adding the patient voice into debates that matter to our community. genetic alliance ukwestminster appg https://geneticalliance.org.uk/get-involved/our-life-science-industry-partners/ Our life-science industry partners - Genetic Alliance UK Corporate partnerships are vital to our life-changing work for everyone in the genetic, rare and undiagnosed community. life science industrygenetic alliance ukpartners https://geneticalliance.org.uk/campaigns-and-research/better-diagnosis-and-care-for-rare-conditions/ Better diagnosis and care for rare conditions - Genetic Alliance UK Rare conditions are collectively common, affecting 3.5 million people in the UK. 8 out of 10 rare conditions are caused by a change to someone’s genetic code. genetic alliance ukrare conditionsbetterdiagnosiscare https://geneticalliance.org.uk/welsh-cpg/ Welsh CPG - Genetic Alliance UK Genetic Alliance UK is the secretariat for this group and we work towards adding the patient voice into debates that matter to our community. genetic alliance ukwelsh cpg https://geneticalliance.org.uk/campaigns-and-research/facts-and-figures/ Facts and figures - Genetic Alliance UK These facts and figures provide an easy and impactful way to raise awareness and understanding of the challenges of living with a rare, genetic or undiagnosed... facts and figuresgenetic alliance uk https://geneticalliance.org.uk/news/freyas-story/ Freya’s Story - Genetic Alliance UK Apr 24, 2026 - What is it like to go for years no knowing what is wrong with your child? Read Freya’s story. genetic alliance ukstory https://geneticalliance.org.uk/membership/application-form/ Application Form - Genetic Alliance UK We’re glad you would like to join our growing alliance by applying to become a member of Genetic Alliance UK. genetic alliance ukapplication form