https://julieflygare.com/attending-global-genes-patient-advocacy-summit-2013/
Attending Global Genes Patient Advocacy Summit 2013 - Julie Flygare
Sep 28, 2013 - Last Friday, Sept. 20, 2013, I attended the Global Genes Patient Advocacy Summit 2013. The Summit brought together rare disease advocates from across the...
global genespatient advocacyattendingsummitjulie
https://globalgenes.org/
Homepage - Global Genes
homepageglobalgenes
https://globalgenes.org/rare-disease-facts/
RARE Disease Facts - Global Genes
Jan 26, 2026 - With more than 10,000 rare disease affecting 400 million people worldwide, rare is everywhere. Find out just how far rare reaches.
rare disease factsglobalgenes
https://globalgenes.org/about-us/global-advocacy-alliance/
Global Advocacy Alliance - Global Genes
Jan 29, 2026 - The Global Advocacy Alliance is a global community changing the way the world tackles rare disease. Our partners include nonprofit, government, academic,...
global advocacy alliancegenes
https://globalgenes.org/rare-disease-patient-services/
RARE Concierge - Patient Services - Global Genes
Jan 22, 2026 - * Global Genes’ RARE Concierge is not a case management service provider, but can connect you with […]
patient servicesrareconciergeglobalgenes