https://www.jewishgenetics.org/genetic-disorders/search-genetic-disorders/myopathy-gne-related/
Myopathy (GNE-Related) – Norton & Elaine Sarnoff Center for Jewish Genetics
GNE myopathy is a genetic disease that affects a specific enzyme important for making sialic acid, a vital component for cell movement, attachment, and...
jewish geneticsmyopathygnerelatednorton
https://curegnem.org/about/leadership/our-team/isabella-bergman/
NDF | Isabella Bergman - Operations Coordinator | GNE Myopathy (GNEM)
Isabella Bergman is an Operations Coordinator here at The Neuromuscular Disease Foundation + GNE Myopathy research. Find out more here.
gne myopathyndfisabellabergmanoperations
https://curegnem.org/about/leadership/our-team/dr-suleman-bhana/
NDF | Dr. Tahseen Mozaffar - Board of Directors | GNE Myopathy (GNEM)
Dr. Tahseen Mozaffar is on the Board of Directors here at The Neuromuscular Disease Foundation + GNE Myopathy research. More here.
board of directorsgne myopathyndftahseenmozaffar
https://curegnem.org/programs/advocacy/support-groups/
NDF | GNE Myopathy | Patient Support Groups | HUDDLEs
Jul 19, 2025 - Support for Patients, Caregivers/Care Partners and for For the Children of GNE Myopathy Patients. Find out more here.
patient support groupsgne myopathyndfhuddles