https://emea.illumina.com/company/news-center/feature-articles/q-a--courtney-felle--champion-of-youth-living-with-rare-disease.html
Q&A: Courtney Felle, champion of youth living with rare disease
A young adult advocate speaks out about the cost of the diagnostic odyssey, access to care, and why young adults' voices should be heard by policymakers
living with rareqcourtneyfellechampion
https://ckd.responsumhealth.com/support-resources-for-people-living-with-rare-ckds-in-the-u-s
Support Resources for People Living With Rare CKDs in the U.S.
Learn about some of the resources available for people living with rare types of kidney disease.
resources for peopleliving with rare
https://histio.org/resource-overview/webinars/nih-living-with-rare-cancer-lessons-from-histiocytic-cancers-thumbnail/
NIH Living With Rare Cancer Lessons From Histiocytic Cancers Thumbnail | Histiocytosis Association
living with rare