https://marfan.org/blog/awareness-feels-good/
Awareness Feels Good - Marfan Foundation
Feb 24, 2021 - I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I was when I was diagnosed 25 years ago. Twenty-five years ago,...
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https://marfan.org/give/facebook-fundraising/
Facebook Fundraisers - Marfan Foundation
Oct 20, 2021 - Facebook fundraisers generate critical support for The Marfan Foundation. They are easy to create and your family and friends will be glad to donate easily and...
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https://marfan.org/author/ctheriotmarfan-org/
Chris Theriot, Author at Marfan Foundation
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https://marfan.org/resource-library/career-development-award/
Career Development Award - Marfan Foundation
Aug 11, 2026 - The Career Development Award will support two-year $100,000 grants ($50,000 per year) in basic, translational, or clinical research studying any discipline...
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https://www.makinitmag.com/updates/stwrecords/2020/03/share-wealth-initiative-x-marfan-foundation
Share The Wealth Initiative x The Marfan Foundation | Makin' It Magazine
Mar 22, 2020 - We are raising money for a different charity every month! For the month of March, we have raised $280 for The Marfan Foundation! Our goal is to raise $500. We...
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https://marfan.org/survey-fr/
ENQUÊTE DE SATISFACTION - Marfan Foundation
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https://marfan.org/cumbre-de-la-fundacion-marfan/
Spanish Language Summit - Marfan Foundation
Dec 1, 2025 - Información médica directamente de los expertos Invitamos a los pacientes y sus familias a participar en una jornada educativa dedicada al síndrome de Marfan,...
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https://www.nychealthandhospitals.org/pressrelease/dr-abe-deanda-of-bellevue-hospital-honored-by-the-marfan-foundation/
Dr. Abe DeAnda of Bellevue Hospital Honored by The Marfan Foundation - NYC Health + Hospitals
May 26, 2022 - New York, NY Bellevue Hospital Center, part of the New York City Health and Hospitals Corporation (HHC), today announced that Dr. Abe DeAnda, Chief of
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https://ansedh.org/global-virtual-conference-2026-de-the-marfan-foundation-un-recurso-de-interes-para-la-comunidad-con-ehlers-danlos-vascular/
Global Virtual Conference 2026 de The Marfan Foundation: un recurso de interés para la comunidad...
Jun 25, 2026 - Las sesiones de la Global Virtual Conference 2026, organizada del 15 al 18 de junio, ya están disponibles en el ...Leer más
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https://marfan.org/resource-library/planification-familiale-et-grossesse/
Planification Familiale Et Grossesse - Marfan Foundation
Sep 22, 2021 - Les décisions relatives à la planification familiale peuvent être difficiles et susciter beaucoup d’émotions lorsque l’un des parents potentiels est atteint...
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https://marfan.org/mec-category/stickler-support-groups/
Stickler - Support Groups Archives - Marfan Foundation
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https://marfan.org/calendar/walk-for-victory-pittsburgh/
Walk For Victory - Pittsburgh - Marfan Foundation
Feb 9, 2024 - Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and...
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https://marfan.org/tag/loeys-dietz/page/11/
Loeys-Dietz Archives - Page 11 of 13 - Marfan Foundation
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https://marfan.org/ask/
Ask a Question - Marfan Foundation
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https://marfan.org/blog/camp-victory-2026-where-summer-fun-builds-lasting-connections/
Camp Victory 2026: Where Summer Fun Builds Lasting Connections - Marfan Foundation
Sep 30, 2026 - There are subtle changes at Camp Victory for Kids’ two five-night summer camp sessions each year. A new evening activity. An off-site adventure. A different...
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https://www.barnesjewish.org/Medical-Services/Heart-Vascular/For-Referring-Physicians/Heart-Vascular-News/ArtMID/6989/ArticleID/663/National-Marfan-Foundation-to-Partner-with-Barnes-Jewish-Hospital
National Marfan Foundation to Partner with Barnes-Jewish Hospital
The National Marfan Foundation (NMF) will partner with Dr. Alan C. Braverman, Professor of Medicine and Director of the Marfan Syndrome Clinic at...
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https://marfan.org/international/
International - Marfan Foundation
Apr 9, 2026 - Upcoming International Events The Marfan Foundation is dedicated to the education and support of our global community of people living with Marfan and related...
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https://marfan.org/tag/aorta/
aorta Archives - Marfan Foundation
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https://marfan.org/2026/05/07/rosemarie-nania-veds-advocate-and-community-hero-with-a-heart/
Rosemarie Nania: VEDS advocate, and community “Hero with a Heart” - Marfan Foundation
May 7, 2026 - Roe Nania - VEDS advocate, BeloVEDS Foundation founder - to be honored by the Marfan Foundation. Turns family loss into action.
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