https://digitalcommons.library.tmc.edu/uthmed_docs/2315/
"Achondroplasia Natural History Study (Clarity): 60-Year Experience In " by Nickolas J Nahm, W G...
BACKGROUND: The purpose of this study was to describe the frequency and risk factors for orthopedic surgery in patients with achondroplasia. CLARITY (The...
natural history studyw gachondroplasiaclarityyear
https://orphandiseasecenter.org/awarded-grants/aso-therapy-in-cdkl5-deficiency-disorder-nm85j-dcxel-lxm86
Neurophysiological correlates in CDKL5 syndrome: a supplement to the NIH Natural History Study of...
Eric Marsh and Tim Benke University of Colorado and CHOP 53,500
natural history studyneurophysiologicalcorrelatessyndromesupplement
https://jcto.weill.cornell.edu/open_clinical_trials/genetic-developmental-and-epileptic-encephalopathy-natural-history-study-for-clinical-trial-readiness
Genetic Developmental and Epileptic Encephalopathy Natural History Study for Clinical Trial...
This is a non-interventional longitudinal study of children and adults with Developmental and Epileptic Encephalopathy (DEE) due to a genetic cause. There are...
natural history studyclinical trialgeneticdevelopmentalepileptic
https://biotechhunter.com/trials/NCT06644742
NCT06644742 - PKP2-ACM Natural History Study | Biotech Hunter | Biotech Hunter
View clinical trial NCT06644742 details
natural history studyacmbiotechhunter
https://curesyngap1.org/blog/10-reasons-we-chose-ciitizen-for-the-syngap1-digital-natural-history-study-srfdociitizen/
10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen – CURE...
Oct 22, 2025 - Ever since SRF was created, we have received numerous requests to support Natural History Studies. They were all expensive and too slow. When we saw Ciitizen,...
natural history studyfor thereasonschosedigital
https://neuromuscularstudygroup.org/2016/08/15/sma/
Natural History Study of Spinal Muscular Atrophy (SMA) – Neuromuscular Study Group
natural history studyspinal muscular atrophysmaneuromusculargroup