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Educational Programs for Women with Bleeding Disorders | NBDF
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https://www.bleeding.org/who-we-are/our-story/what-we-do
What We Do: Research, Education, Advocacy | NBDF
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Join the fight for a better future! NBDF Washington Days brings together advocates to push for federal funding and better access to care for inherited blood...
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https://www.bleeding.org/advocacy
Advocacy for Healthcare Access for Bleeding Disorders | NBDF
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https://www.bleeding.org/who-we-are/our-story/health-access
Health Access | Bridging Gaps in Healthcare | NBDF
Learn more about how the Foundation partners with stakeholders to reduce burdens, meet unmet Lived Experience Experts (LEEs) needs, and improve health access.
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https://www.bleeding.org/bleeding-disorders-a-z/overview/women-and-bleeding-disorders
Women and Bleeding Disorders: Diagnosis and Care | NBDF
Discover the symptoms of bleeding disorders in women, including von Willebrand disease and mild hemophilia, and learn how to get a proper diagnosis and care.
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https://www.bleeding.org/bleeding-disorders-a-z/overview/what-is-a-bleeding-disorder
Understanding Bleeding Disorders Symptoms & Treatment | NBDF
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https://www.bleeding.org/who-we-are/careers
Join Our Team | Improve Lives with Bleeding Disorders | NBDF
Explore career opportunities and volunteer roles dedicated to enhancing the lives of individuals with bleeding disorders. Join us today.
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https://www.bleeding.org/advocacy/federal-priorities/medicaid-federal
Medicaid Advocacy & Priorities for Bleeding Disorders | NBDF
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https://www.bleeding.org/healthcare-professionals/guidelines-on-care/comprehensive-medical-care
Comprehensive Medical Care for Bleeding Disorders | NBDF
Explore how hemophilia treatment centers provide comprehensive care for blood and bleeding disorders, enhancing your quality of life.
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https://www.bleeding.org/advocacy/how-you-can-take-action/advocacy-dos-and-donts
Advocacy Do’s and Don'ts | NBDF
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https://www.bleeding.org/bleeding-disorders-a-z/overview/types-of-bleeds
Recognizing Types of Bleeds in Bleeding Disorders | NBDF
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Blod & Bleeding Disorders Resources Near You | NBDF
Find support and specialized care for bleeding disorders in your area. Explore local NBDF chapters, hemophilia treatment centers, clinical trials, and camps.
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https://www.bleeding.org/advocacy/state-priorities/utilization-management
Managing Utilization Management in Bleeding Disorders | NBDF
Learn about utilization management strategies and their impact on access to treatments for bleeding disorders. Explore advocacy efforts to improve the process.
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https://www.bleeding.org/healthcare-professionals/education-resources/nbdfs-collaborative-learning-exchange
NBDF's Collaborative Learning Exchange | NBDF
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https://www.bleeding.org/who-we-are/our-story
History and Mission | Learn About Our Story | NBDF
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https://www.bleeding.org/who-we-are
Supporting Bleeding Disorders Since 1948 | NBDF
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https://www.bleeding.org/bleeding-disorders-a-z/overview/history
Bleeding Disorders History: 2 AD to Modern Advances | NBDF
Discover the history of bleeding disorders from ancient references to modern breakthroughs. Explore the journey from limited treatments to advanced therapies.
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https://www.bleeding.org/educational-programs/education/steps-for-living
Steps for Living: A Guide for All Life Stages | NBDF
A life with a bleeding disorder comes with questions. Steps for Living has the answers wherever you are on the journey.
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https://www.bleeding.org/advocacy/state-priorities
State Priorities in Advocacy for Bleeding Disorders | NBDF
Explore our advocacy efforts on issues like utilization management, patient out-of-pocket expenses, and Medicaid to protect the bleeding disorders community.
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https://www.bleeding.org/advocacy/how-you-can-take-action
Get Involved in Advocacy for Bleeding Disorders | NBDF
Discover how you can make a difference in the bleeding disorders community by voting, grassroots advocacy, and the power of sharing your story. Get involved!
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https://www.bleeding.org/community-resources/financial-assistance
Bleeding Disorder Financial Assistance & Scholarships | NBDF
Discover scholarships and assistance programs for individuals and families affected by bleeding disorders. Find financial aid resources.
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https://www.bleeding.org/community-resources/request-information/read-our-publications?search=&field_global_tags_target_id%5B%5D=455
Publications for Individuals with Bleeding Disorders | NBDF
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https://www.bleeding.org/research/research-projects
Bleeding Disorders Research Projects | NBDF
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https://www.bleeding.org/educational-programs/education
Comprehensive Bleeding Disorders Education | NBDF
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https://www.bleeding.org/advocacy/federal-priorities
Federal Healthcare Priorities for Bleeding Disorders | NBDF
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https://www.bleeding.org/bleeding-disorders-a-z/healthcare-coverage
Choosing Healthcare Coverage for Bleeding Disorders | NBDF
Select the right healthcare plan for bleeding disorders. Understand options, private and public insurance, and eligibility. Get the insurance toolkit.
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https://www.bleeding.org/who-we-are/our-story/mission-history
National Bleeding Disorders Foundation Mission History | NBDF
National Bleeding Disorders Foundation (NBDF), formerly the National Hemophilia Foundation (NHF), is dedicated to supporting the bleeding disorders community.
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https://www.bleeding.org/research/bleeding-disorders-research-collaborative/our-journey-together
Our Bleeding Disorders Research Collaborative Together | NBDF
Learn about the collaborative, multi-year process we’ve undertaken together to develop the BDRC.
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https://www.bleeding.org/healthcare-professionals/guidelines-on-care/snapshots-of-vwd-guidelines
VWD Guidelines Snapshots in Multiple Languages | NBDF
Access snapshot guides of von Willebrand disease (VWD) guidelines in English, Spanish, and French. Get concise summaries on VWD diagnosis and management. | NBDF
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https://www.bleeding.org/educational-programs/education/inhibitor-education
Inhibitor Education for People with Bleeding Disorders | NBDF
Explore resources and support for families living with hemophilia inhibitors. Learn about educational events, publications, webinars, and more.
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https://www.bleeding.org/who-we-are/our-partners/the-act-initiative
The ACT Initiative: Bleeding Disorders Access to Care | NBDF
Discover the ACT Initiative by NBDF, focused on enhancing access to care for bleeding disorders. Learn about advocacy, education, and support efforts.
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https://www.bleeding.org/who-we-are/careers/volunteer-opportunities
Serve Others and Enrich Your Life: Volunteer Today | NBDF
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https://www.bleeding.org/healthcare-professionals/education-resources
Education & Resources for Bleeding Disorders Care | NBDF
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https://www.bleeding.org/who-we-are/our-partners/partners-in-progress
Partners In Progress | Supporting Programs & Services | NBDF
Discover how NBDF core programs and services support individuals with blood disorders. Learn about advocacy, education, and research initiatives. | NBDF
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NBDF's Supporting Partners: Strengthening Our Mission | NBDF
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https://www.bleeding.org/bleeding-disorders-a-z/types/hemophilia-b
Hemophilia B Overview: Symptoms, Genetics, Treatments | NBDF
Learn about Hemophilia B, including symptoms, genetics, and treatments. Understand its diagnosis, inheritance, and severity levels.
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https://www.bleeding.org/who-we-are/our-partners/red-tie-society
Red Tie Society | Hope for Blood & Bleeding Disorders | NBDF
Discover the Red Tie Society, uniting individuals and organizations to improve the lives of those with bleeding disorders. Join us and make a difference. | NBDF
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https://www.bleeding.org/healthcare-professionals/allied-healthcare/social-work
Supporting Social Workers in Bleeding Disorders Care | NBDF
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https://www.bleeding.org/bleeding-disorders-a-z/healthcare-coverage/private-insurance
Private Health Insurance Options: Pick the Right Plan | NBDF
Explore private health insurance plans for bleeding disorders. Learn about costs, coverage, and choosing the ideal plan for your needs.
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https://www.bleeding.org/bleeding-disorders-a-z/treatment
Bleeding Disorder Treatment | Comprehensive Care | NBDF
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https://www.bleeding.org/healthcare-professionals/guidelines-on-care/masac-documents
MASAC Treatment Guidelines for Blood and Bleeding Disorders | NBDF
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https://www.bleeding.org/events/bleeding-disorders-conference
Bleeding Disorders Conference | NBDF
Connect with others, learn, and find support. Discover new treatments and share experiences at this informative and inspiring event.
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https://www.bleeding.org/research/bleeding-disorders-research-collaborative
Bleeding Disorders Research Collaborative for Bleeding Disorders | NBDF
Explore the Bleeding Disorders Research Collaborative (BDRC) aims to eradicate bleeding disorders through research. How do lived experience experts shape this...
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https://www.bleeding.org/research/community-voices-in-research
Community Voices in Research for Bleeding Disorders | NBDF
Participate in CVR to make a difference in bleeding disorders research. Learn how your experiences can shape the future. Get involved and stay informed.
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https://www.bleeding.org/healthcare-professionals/allied-healthcare
Allied Healthcare Resources for Bleeding Disorders Care | NBDF
Access valuable resources and information for healthcare professionals in nursing, physical therapy, and social work dedicated to bleeding disorders care.
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https://www.bleeding.org/bleeding-disorders-a-z/treatment/shared-decision-making
National Bleeding Disorders Foundation Shared Decision Making | NBDF
Shared decision-making (SDM) will help you to have better conversations with your provider and will lead to better outcomes in managing your bleeding disorder....
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https://www.bleeding.org/who-we-are/our-team/social-work-working-group
Social Work Working Group for Bleeding Disorders | NBDF
Discover how the Social Work Working Group supports social workers treating bleeding disorders and advocates for the community. Join us today.
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https://www.bleeding.org/advocacy/managed-care-payers/collaborating-on-coverage
Collaborating on Coverage for Bleeding Disorders | NBDF
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https://www.bleeding.org/research/fund-your-research/nbdf-sanofi-career-development-award
NBDF-Sanofi Career Development Award for Bleeding Disorders | NBDF
Discover the NBDF-Sanofi Career Development Award (CDA), funding innovative bleeding disorders research projects at various levels.
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https://www.bleeding.org/healthcare-professionals/guidelines-on-care/products-licensed-in-the-us
FDA-Approved Bleeding Disorder Therapies in the US | NBDF
Explore FDA-approved therapies for bleeding disorders, including hemophilia A, hemophilia B, and more. Stay informed about available treatments.
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https://www.bleeding.org/community-resources/request-information/wednesday-webinar-series
Wednesday Webinar Series | NBDF
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https://www.bleeding.org/community-resources/request-information/contact-us
Contact Us for Bleeding Disorder Resources & Support | NBDF
Connect with NBDF for bleeding disorder resources, events, and information. Find our office address, phone number, and email. Contact your local NBDF chapter.
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https://www.bleeding.org/healthcare-professionals/education-resources/other-associations
Other Association Dedicated to Bleeding Disorderss | NBDF
Discover organizations dedicated to advancing care and research for individuals with bleeding disorders. Explore valuable resources.
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https://www.bleeding.org/educational-programs/outreach
Outreach Programs for People with Blood & Bleeding Disorders | NBDF
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https://www.bleeding.org/research/community-voices-in-research/what-is-cvr
What is CVR? | NBDF
Discover how CVR, a community-powered registry, aims to improve the lives of those with bleeding disorders.
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https://www.bleeding.org/advocacy/federal-priorities/blood-and-blood-product-safety
Blood & Blood Product Safety for Bleeding Disorders | NBDF
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Subscribe & Stay Informed: Blood & Bleeding Disorders | NBDF
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https://www.bleeding.org/advocacy/managed-care-payers/quality-of-care-guidelines
Quality of Care Guidelines for Bleeding Disorders | NBDF
Discover how Hemophilia Treatment Centers (HTCs) provide patient-centered, comprehensive care, and learn about quality care guidelines for bleeding disorders.
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https://www.bleeding.org/healthcare-professionals/allied-healthcare/nursing
Nursing Resources for Bleeding Disorders Care | NBDF
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Educational Programs for People with Von Willebrand Disease | NBDF
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Tell Your Bleeding Disorders Story | NBDF
Share your bleeding disorders story to advocate for our community and stay updated on ACA-related efforts.
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https://www.bleeding.org/research
Advancing Bleeding Disorders Research | NBDF
Join NBDF in the pursuit of a world without bleeding disorders. Explore our research projects, funding opportunities, and community-powered registry.
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https://www.bleeding.org/research/bleeding-disorders-research-collaborative/how-to-get-involved
How to Get Involved in NBDF's Bleeding Disorders Research Collaborative | NBDF
Activating this BDRC will only be possible with the help of the entire community. Understand the many ways to get involved!
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https://www.bleeding.org/educational-programs/education/educational-programming
Educational Programming for People with Bleeding Disorders | NBDF
Explore the Education for Empowerment program, offering expert education on living with bleeding disorders.
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https://www.bleeding.org/bleeding-disorders-a-z/treatment/masac-for-you
MASAC For You: Consumer Bleeding Disorders Guidelines | NBDF
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https://www.bleeding.org/research/bleeding-disorders-research-collaborative/bdrc-resources
Essential Bleeding Disorders Research Collaborative Resources | NBDF
Check regularly for FAQs, reference materials and resources on the progress of the BDRC.
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https://www.bleeding.org/healthcare-professionals/guidelines-on-care/emergency-management
Emergency Management Guidelines of Bleeding Disorders | NBDF
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https://www.bleeding.org/healthcare-professionals/education-resources/rare-coagulation-resource-room
Rare Coagulation Resource Room | NBDF
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https://www.bleeding.org/advocacy/how-you-can-take-action/6-steps-for-grassroots-advocacy
6 Steps for Effective Grassroots Advocacy | NBDF
Learn how to become an effective advocate for bleeding disorders. Discover key steps, gather support, engage with legislators and raise awareness. Get involved!
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https://www.bleeding.org/community-resources/request-information/newsletter-archive
News Archive | National Bleeding Disorder Foundation | NBDF
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https://www.bleeding.org/make-a-difference/donate/planned-giving
Planned Giving | NBDF
Leaving a legacy towards a cure is a gift that costs nothing during your lifetime. There are many ways to plan an estate or legacy gift to help advance...
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https://www.bleeding.org/research/research-projects/research-roundtable
Research Roundtable: Advancing Inclusive Bleeding Disorder Trials | NBDF
The NBDF Research Roundtable unites experts, industry leaders, and lived experience advocates to improve clinical trial design for bleeding disorders.
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https://www.bleeding.org/healthcare-professionals
Bleeding Disorders Resources for Healthcare Providers | NBDF
Access essential resources for healthcare providers providing bleeding disorders care. Stay updated on the latest developments.
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https://www.bleeding.org/educational-programs/outreach/undiagnosed
Outreach for Undiagnosed Individuals with Bleeding Disorders | NBDF
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https://www.bleeding.org/research/fund-your-research/physical-therapy-excellence-fellowship
Physical Therapy Excellence Fellowship | NBDF
Explore the NBDF Physical Therapy Excellence Fellowship, supporting research for bleeding disorders. Apply for this annual up to $15,000 fellowship opportunity.
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https://www.bleeding.org/who-we-are/our-team/physical-therapy-working-group
Physical Therapy Working Group: Bleeding Disorders | NBDF
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https://www.bleeding.org/who-we-are/our-team/nursing-working-group
Nursing Working Group: Bleeding Disorders Resource | NBDF
Discover valuable resources, guidance, and education for nurses in the bleeding disorders community with the Nursing Working Group (NWG).
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https://www.bleeding.org/who-we-are/our-team/foundation-staff
Meet the National Bleeding Disorders Foundation Staff | NBDF
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https://www.bleeding.org/who-we-are/our-story/media-newsroom
Media Newsroom: Latest Updates and Experts | NBDF
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https://www.bleeding.org/who-we-are/our-team
Meet Our Team Dedicated to Blood & Bleeding Disorders | NBDF
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https://www.bleeding.org/research/bleeding-disorders-research-collaborative/the-bdrc-structure-and-research-priorities
BDRC Structure & Research Priorities: Key Focus Areas | NBDF
Learn more about how the collaborative is currently organized and how research priorities will help to identify important projects and achieve our goals.
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https://www.bleeding.org/bleeding-disorders-a-z/types/other-factor-deficiencies
Rare Bleeding Disorders Overview: Symptoms, Treatment | NBDF
Discover ultra-rare bleeding disorders, including Factor I, II, V, VII, X, XI, XII, and XIII deficiencies. Learn about symptoms, treatments, and find support.
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https://www.bleeding.org/educational-programs
Educational Programs for People with Bleeding Disorders | NBDF
Explore our educational programs that empower individuals with blood and bleeding disorders to live healthy lives. Subscribe for updates.
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https://www.bleeding.org/advocacy/federal-priorities/federal-programs
Federal Programs for People with Bleeding Disorders | NBDF
Discover federal programs for bleeding disorders, including HRSA, CDC, NIH, and the 340B Drug Pricing Program. Join NBDF in advocating for funding and support.
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https://www.bleeding.org/who-we-are/our-story/the-red-thread-75th-anniversary-celebration
The Red Thread: 75th Anniversary Celebration | NBDF
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https://www.bleeding.org/make-a-difference/more-than-a-donation/matching-gifts
Match Your Gift to NBDF | NBDF
Double your impact for NBDF by checking if your employer matches donations or offers volunteer grants
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https://www.bleeding.org/who-we-are/our-team/board-of-directors
Board Members: National Bleeding Disorders Foundation | NBDF
Discover the dedicated individuals who guide and shape the strategic vision of the NBDF. Learn about our board members and their commitment to our mission.
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https://www.bleeding.org/who-we-are/our-team/meet-the-nyli
Meet the NYLI: National Youth Leadership Institute | NBDF
Discover the future leaders of the bleeding disorders community with the National Youth Leadership Institute (NYLI). Meet young individuals making a difference.
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https://www.bleeding.org/advocacy/managed-care-payers
Managed Care & Payers for Bleeding Disorders | NBDF
Discover our advocacy work emphasizing comprehensive care for bleeding disorders within managed care systems. Explore guidelines and cost management efforts.
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https://www.bleeding.org/research/fund-your-research/nursing-excellence-fellowship
Nursing Excellence Fellowship for Bleeding Disorders | NBDF
Explore the NBDF Nursing Excellence Fellowship, supporting nursing research for bleeding disorders care. Apply for this annual $15,000 fellowship opportunity
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https://www.bleeding.org/research/community-voices-in-research/how-why-should-i-participate
Why Participate in CVR: Bleeding Disorders Research | NBDF
Learn how participating in Community Voices in Research (CVR) can improve the future of bleeding disorders research and benefit you directly. Join CVR today!
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https://www.bleeding.org/educational-programs/outreach/guias-culturales
Guías Culturales | NBDF
Discover cultural guides for the Spanish-speaking bleeding disorders community. Learn how our trained volunteers empower the Latinx community.
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https://www.bleeding.org/research/research-projects/corehem-mental-health-tool
The coreHEM-MHO: A Mental Health Outlook Questionnaire | NBDF
A Patient-reported tool assessing mental health post-gene therapy or durable hemophilia treatment.
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https://www.bleeding.org/research/bleeding-disorders-research-collaborative/what-is-the-bleeding-disorders-research-collaborative
What is the Bleeding Disorders Research Collaborative for Bleeding Disorders? | NBDF
Discover the NBDF community-driven journey to shape the future of bleeding disorders research. Learn how this collaborative can improve lives until a cure is...
bleeding disorders research
https://www.bleeding.org/bleeding-disorders-a-z/overview/inhibitors
Understanding Inhibitors in Bleeding Disorders | NBDF
Learn about inhibitors, a complication in bleeding disorders where the immune system reacts to clotting factor treatments. Explore diagnosis and management.
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https://www.bleeding.org/research/bleeding-disorders-research-collaborative/lived-experience-experts-lees-leading-the-way
Lived Experience Experts (LEEs) in Bleeding Disorders Research | NBDF
People affected by bleeding disorders, known as lived experience experts (LEEs), are critical to every step of the research process and are right at the very...
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https://www.bleeding.org/community-resources/request-information
Request Information & Resources for Bleeding Disorders | NBDF
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https://www.bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
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https://www.bleeding.org/educational-programs/outreach/thrive-en-espanol
6 pasos para vivir sanamente con un trastorno hemorrágico | NBDF
Available in English
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