Sponsor of the Day:
Jerkmate
https://nfed.org/donate/
Donate - NFED
Apr 10, 2026 - Your gift today helps the National Foundation for Ectodermal Dysplasias assure thousands of affected families around the world that they are never alone.
donatenfed
https://nfed.org/events/fc26/
2026 NFED Family Conference - NFED
Apr 29, 2026 - Join us for three unforgettable days of connection and building lifelong friendships with people affected by ectodermal dysplasias and their families.
family conference2026nfed
https://nfed.org/get-involved/connect-our-community/
Connect With Our Community - NFED
Apr 9, 2026 - To help you build a support network, we have many ways for you to connect with our ectodermal dysplasias community. Find families near you and on Facebook.
connectcommunitynfed
https://nfed.org/get-involved/advocate/day-on-the-hill/
Advocacy Day on Capitol Hill - NFED
Jan 14, 2026 - Join the NFED and their efforts to advocate for the Ensuring Lasting Smiles Act during their Advocacy Day on Capitol Hill.
advocacy daycapitol hillnfed
https://nfed.org/get-involved/advocate/elsa/
Ways to Advocate - NFED
Mar 18, 2026 - Next Steps Now that you have contacted your legislator, we have lots of great information on how to meet your legislators close to home. Peruse our
waysadvocatenfed
https://nfed.org/
National Foundation for Ectodermal Dysplasias | NFED
Mar 16, 2026 - We enrich the lives of people affected by ectodermal dysplasias. Find resources, treatment, and people like you.
national foundationdysplasiasnfed
https://nfed.org/get-involved/ways-to-give/halloween-bash/
Halloween Bash - NFED
Jan 5, 2026 - Join us for the 2021 Halloween Bash and help the NFED offer medical conferences, fund critical research and provide support to our community.
halloween bashnfed
https://nfed.org/learn/types/incontinentia-pigmenti/
Incontinentia Pigmenti - Symptoms & Diagnosis | NFED
Feb 9, 2026 - Learn about the symptoms and diagnosis of Incontinentia Pigmenti (IP Syndrome), a rare genetic condition also known as Bloch-Sulzberger syndrome.
incontinentia pigmentisymptoms diagnosisnfed
https://nfed.org/treat/
Treat - NFED
Sep 22, 2025 - A new diagnosis can be overwhelming. Where do I start? How do I find a doctor? How am I going to pay for this? We will help you navigate these questions.
treatnfed