https://www.birmingham.ac.uk/research/projects/birmingham-rheumatology-research-patient-partnership-r2p2/publications-with-patient-research-partners
Publications with patient research partners - University of Birmingham
Patient/public research partners (PRPs) provide valuable and robust contributions to a wide range of research activities
patient research partnersuniversity ofpublicationsbirmingham
https://omeractprpnetwork.org/
OMERACT Patient Research Partner Network for Rheumatology
Join the OMERACT Patient Research Partner Network for patient-centered research in rheumatology outcomes. Empower your voice today!
patient researchpartner networkrheumatology
https://www.surveymonkey.com/r/PatientResearchPartners
SkIN Canada Patient Research Partners - Call for Expressions of Interest Survey
Take this survey powered by surveymonkey.com. Create your own surveys for free.
patient research partnersexpressions of interestcall forskincanada
https://www.hopkinsmyositis.org/
Johns Hopkins Myositis Center | Disease Education, Patient Care and Research for Myositis
The Johns Hopkins Myositis Center brings together the expertise of multiple specialties in the treatment of those with Myositis.
johns hopkins myositis centerdisease educationpatient care
https://pancan.org/
Pancreatic Cancer Action Network – Research, Patient Support, Resources
Jul 2, 2026 - We're the national organization providing support, resources, volunteer opportunities and hope for people fighting pancreatic cancer.
cancer action networkpatient supportpancreaticresearchresources
https://health.usf.edu/
Education, Research and Patient Care | USF Health
USF Health is dedicated to improving the full spectrum of health - from the environment, to the community, to the individual. This unique partnership is formed...
education researchpatient careusfhealth
https://humansofchronicillness.org/
Humans of Chronic Illness by Solve M.E. – A patient-centered research organization whose mission is...
https://ossu.ca/
Ontario SPOR SUPPORT Unit - Strategy for Patient Oriented Research
Ontario SPOR SUPPORT Unit. Ontario's catalyst for patient-oriented research.
support unitfor patientontariosporstrategy
https://reverserett.org/
The Rett Syndrome Research Trust (RSRT) is the patient advocacy organization working to cure Rett...
As the largest funder of Rett syndrome research worldwide, RSRT has played a vital role in initiating and evolving the trajectory of progress toward cures. All...
https://oden.utexas.edu/news-and-events/events/1852---Junyuan%20Hong/
Economizing Mild-Cognitive-Impairment Research: Developing a Digital Twin Chatbot from Patient...
Oden Institute for Computational Engineering and Sciences
mild cognitive impairment
https://pro.carenity.com/
Carenity: Patient-Centered Outcomes Research solutions
Oct 30, 2025 - UNCOVERING PATIENT EXPERIENCES The Digital CRO specialized in Patient-Centered Outcome Researches Let's talk! A fast-growing e-cohort of 500k+ patients and...
patient centered outcomescarenityresearchsolutions
https://liveutifree.com/
Live UTI Free | Patient Perspective & Research Recruitment in Recurrent UTI & Women's Pelvic Health...
Live UTI Free (or LUF), is a patient research and advocacy organization with a focus on urinary tract infection and overlapping female pelvic health...
https://www.imperial.ac.uk/patient-safety-research-collaboration
NIHR North West London Patient Safety Research Collaboration | Faculty of Medicine | Imperial...
The NIHR North West London Patient Safety Research Collaboration works to improve patient safety and the quality of healthcare services.
north west londonfaculty of medicinepatient safety
https://www.healthcaredive.com/news/patient-centered-medical-home-research-results-in-contradictions/232666/
Patient centered medical home research results in contradictions | Healthcare Dive
Measuring benefits of the Patient Centered Medical Home model is proving difficult.
patient centered medical homeresearch resultscontradictionshealthcaredive
https://www.jmir.org/2018/2/e54/authors
Journal of Medical Internet Research - Patient-Reported Measures for Person-Centered Coordinated...
Background: Patient-reported measure (PRM) questionnaires were originally used in research to measure outcomes of intervention studies. They have now evolved...
journal ofinternet research
https://www.jmir.org/2022/12/e40082/authors
Journal of Medical Internet Research - The Agreement Between Virtual Patient and Unannounced...
Background: The unannounced standardized patient (USP) is the gold standard for primary health care (PHC) quality assessment but has many restrictions...
journal ofinternet researchthe agreement
https://www.aacr.org/blog/2016/09/29/patient-parent-and-researcher-rallies-for-medical-research/
Patient, Parent, and Researcher Rallies for Medical Research - American Association for Cancer...
Sep 29, 2016 - For four straight years, the American Association for Cancer Research has been the founding organizer and lead supporter for Rally for Medical Research Hill...
for medicalamerican associationpatientparentresearcher
https://www.jmir.org/2017/4/e102/tweetations
Journal of Medical Internet Research - Timely Digital Patient-Clinician Communication in Specialist...
Background: Young people (aged 16-24 years) with long-term health conditions can disengage from health services, resulting in poor health outcomes, but...
journal ofinternet research
https://www.hcltech.com/ja-jp/case-study/streamlining-clinical-research-and-a-better-patient-experience-for-a-global-pharmaceutical-giant
Streamlining clinical research and a better patient experience for a global pharmaceutical giant |...
HCLTech streamlined operations for a US-based pharmaceutical client by establishing a unified support platform with a single point of contact for clinical...
clinical research
https://www.jmir.org/2023/1/e46346/citations
Journal of Medical Internet Research - Assessing the Readability of Online Patient Education...
Background: Patient education materials (PEMs) can be vital sources of information for the general population. However, despite American Medical Association...
journal ofinternet researchmedical
https://jmir.org/2021/7/e20708/metrics
Journal of Medical Internet Research - Integrating Patient Data Into Skin Cancer Classification...
Background: Recent years have been witnessing a substantial improvement in the accuracy of skin cancer classification using convolutional neural networks...
journal ofinternet research
https://www.jmir.org/2017/1/e8
Journal of Medical Internet Research - Patient Information Websites About Medically Induced...
Background: Patients undergoing medically induced second-trimester abortions feel insufficiently informed and use the Web for supplemental information....
journal ofinternet researchpatient informationmedical
https://www.jmir.org/2022/12/e40082/
Journal of Medical Internet Research - The Agreement Between Virtual Patient and Unannounced...
Background: The unannounced standardized patient (USP) is the gold standard for primary health care (PHC) quality assessment but has many restrictions...
journal ofinternet researchthe agreement
https://www.sie.gov.hk/en/what-we-do/research/detail/medical_communication_assistance_to_enhance_patient_engagement_and_health_literacyd41d.html
Medical communication assistance to enhance patient engagement and health literacy - Research - SIE...
medical communicationpatient engagement
https://jmir.org/2020/11/e22307/
Journal of Medical Internet Research - Impact of Patient-Clinical Team Secure Messaging on...
Background: Although secure messaging (SM) between patients and clinical team members is a recommended component of continuous care, uptake by patients remains...
journal ofinternet research
https://www.jmir.org/2014/11/e257/
Journal of Medical Internet Research - The Effect of a Patient Portal With Electronic Messaging on...
Background: It has been suggested that providing patients with access to their medical records and secure messaging with health care professionals improves...