https://www.vermilionstandard.com/opinion/when-patients-begin-investigating-on-their-own
Where patient research meets medical practice | Vermilion Standard
patient researchmedical practicevermilion standardmeets
https://www.kucancercenter.org/research/give-back/patient-research-advocacy
Patient Research Advocacy | PIVOT | The University of Kansas Cancer Center
Learn about patient research advocacy and the PIVOT program at The University of Kansas Cancer Center in Kansas City.
the university of kansaspatient researchcancer centeradvocacypivot
https://srfcure.digitellinc.com/live/16/page/172
Forum Home - 2026 SRF Scleroderma Patient Forum - Scleroderma Research Foundation
forum homepatient researchsrfsclerodermafoundation
https://www.whitecourtstar.com/opinion/when-patients-begin-investigating-on-their-own
Where patient research meets medical practice | Whitecourt Star
patient researchmedical practicewhitecourt starmeets
https://vasculitisfoundation.org/treatments-research/patient-powered-research/vpprn-patient-research-partners/
VPPRN Patient Research Partners - Vasculitis Foundation
Jan 29, 2026 - VPPRN Lead Patient Partners Meet Our Incredible VPPRN Patient Partners The Vasculitis Patient-Powered Research Network (VPPRN) is a partnership of patients,...
patient research partnersvasculitisfoundation
https://saniushealth.com/2026/04/sanius-health-acquires-kielo-research-to-power-the-next-era-of-patient-generated-evidence/
Patient-Stated Health Preference Signals | A New Data Layer for Clinical Research and Real-World...
for clinical research
https://www.pharmavoice.com/news/patient-advocacy-drug-pharma-diversity-sarcoidosis-fsr-clinical/750860/
How a patient group tackled research diversity for one disease and triggered change for pharma |...
A policy win by the Foundation for Sarcoidosis Research has built momentum for other shifts that could bolster diversity in clinical trials.
a patient
https://www.emoryhealthcare.org/stories?home=6
Healthy Living, Health News, Patient Testimonials, Medical Research - Advancing Your Health Blog -...
Check out Emory Healthcare's Advancing Your Health blog for health tips on maintaining a healthy lifestyle, patient stories about innovative care, and the...
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https://indivi.io/
Indivi - Digital Biomarkers for clinical research and patient monitoring
A medical technology company enabling precision medicine to become a reality in neuroscience research and development
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https://patientresearchcovid19.com/resources-for-patients/
Resources for Patients – Patient Led Research Collaborative
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https://www.nyit.edu/news/articles/alumna-puts-patient-care-at-the-center-of-diabetes-research/
Alumna Puts Patient Care at the Center of Diabetes Research | New York Tech
May 7, 2026 - New research by Yllka Valdez (B.A. ’24) suggests ways to improve care for diabetes patients.
at the centerpatient care
https://www.inria.fr/en/ap-hp-inria-projet-urge-optimisation-parcours-soins
AP-HP and Inria launch URGE, a research project aimed at analysing and optimising patient visits to...
Based at their joint Daniel Bernoulli laboratory, AP-HP (the university hospital trust operating in Paris and its surroundings) and Inria are coordinating a...
https://jopm.jmir.org/themes/1506
Patient and Public Involvement in Research
public involvementpatientresearch
https://calendar.unc.edu/event/engagement-in-research-101-introduction-to-engaging-patient-community-partners-in-research-726
Engagement in Research 101: Introduction to Engaging Patient & Community Partners in Research - The...
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https://eprints.whiterose.ac.uk/id/eprint/3427/
A safer place for patients: learning to improve patient safety - White Rose Research Online
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https://connects.ctti-clinicaltrials.org/show/31
DCRI Uses CTTI's Patient Group Engagement Recommendations to Build its 'Research Together' Program
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https://ppe.mcmaster.ca/research/
Research & Consultation - Public & Patient Engagement
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https://patientresearchcovid19.com/resources-for-the-public/
Resources for the Public – Patient Led Research Collaborative
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https://www.womensacademics.ca/about-us/patient-community-engagement/
Patient & Community Engagement in Research - Academics at Women’s College Hospital
At Women’s College Hospital (WCH), we are committed to engaging patients, people with lived experience (PWLE), and communities across our work.
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https://www.isscr.org/upcoming-programs/parkinsons-webinar
Stem Cells and Parkinson’s Disease: Research Advances + Patient Experiences — International Society...
An ISSCR Digital Webinar in partnership with the World Parkinson Coalition 21 October 2024
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https://patientresearchcovid19.com/reinfections-study/
Reinfections Study – Patient Led Research Collaborative
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https://pancan.org/
Pancreatic Cancer Action Network – Research, Patient Support, Resources
Mar 2, 2026 - We're the national organization providing support, resources, volunteer opportunities and hope for people fighting pancreatic cancer.
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https://forhumanity.yale.edu/news/gift-patient-advances-multiple-sclerosis-research-yale
Gift from Patient Advances Multiple Sclerosis Research at Yale | For Humanity
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