Sponsor of the Day:
Jerkmate
https://geneticalliance.org.uk/support-and-information/a-z-of-genetic-and-rare-conditions/
A-Z of genetic and rare conditions - Genetic Alliance UK
You can find more information here about a range of conditions that are genetic, rare or both. There are over 7,000 rare conditions, and new conditions are…
rare conditionsalliance ukzgenetic
https://www.irishmirror.ie/news/irish-news/cork-mum-walk-steps-medics-37038603
Cork mum to walk in the steps of medics who spotted rare conditions in her twins - Irish Mirror
Apr 19, 2026 - Ciara Bowe was just 16 weeks into her pregnancy when she was told the identical siblings were both at grave risk from twin-to-twin transfusion syndrome (TTTS)
rare conditionsirish mirrorcorkmumwalk
https://scottishmedicines.org.uk/how-we-decide/ultra-orphan-medicines-for-extremely-rare-conditions/
Ultra-orphan medicines for extremely rare conditions
extremely rareultraorphanmedicinesconditions
https://linkiest.com/celebrities-with-rare-conditions-you-never-knew-were-living-this-reality/
Celebrities With Rare Conditions You Never Knew Were Living This Reality • Linkiest
rare conditionsnever knewcelebritieslivingreality
https://endo-ern.eu/
EU Reference Network Rare Endocrine Conditions ~ Endo ERN
eu referenceendocrine conditionsnetworkrareern
https://www.marchofdimes.org/find-support/blog/rare-immune-conditions-pregnancy-what-families-should-know
Rare Immune Conditions in Pregnancy: What families should know | March of Dimes
How do rare immune conditions like HDFN and FNAIT affect pregnancy? Understand the risks, the importance of advocacy, and how to find support for your family.
rare immuneknow marchconditionspregnancyfamilies
https://kidneycareuk.org/rare-kidney-conditions/
Rare kidney conditions | Kidney Care UK
Rare kidney conditions affect around 70 in 100,000 people. Nearly all children with end-stage CKD have a rare disease. For at least 3 in 5 children and 1 in 9...
rare kidneyconditions careuk
https://accessiahealth.org/
Accessia Health | Financial Help for Rare and Chronic Conditions
Mar 25, 2026 - Accessia Health provides financial assistance, copay support, and resources to help patients with rare and chronic conditions afford essential treatments and...
accessia healthfinancial helpchronic conditionsrare