https://www.indy100.com/news/boy-with-rare-blood-disorder-meets-bone-marrow-donor-who-saved-his-life
Allan McPike, from Glasgow, was inspired to sign the Anthony Nolan register by his cousin Elaine Davidson, who died of a brain tumour in 2009.
blood disorderbone marrowboyraremeets
https://www.newsbytesapp.com/news/lifestyle/actor-jameela-jamil-diagnosed-with-rare-tissue-disorder/story
British actor Jameela Jamil took to Instagram to reveal that she has a rare genetic condition called Ehlers-Danlos Syndrome (EDS)
jameela jamilrevealsraretissuedisorder
https://aboutmanchester.co.uk/new-hope-for-children-with-devastating-rare-genetic-disorder-thanks-to-world-first-research-in-manchester/
Nov 26, 2025 - The parents of a three-year-old boy born with a devastating, life-limiting genetic condition say they are now excited for his future after he received a
new hopegenetic disorderchildrendevastatingrare
https://childrenshealthdefense.org/defender/exclusive-interview-woman-dies-rare-brain-disorder-after-pfizer-shot/?utm_source=salsa&eType=EmailBlastContent&eId=4776dc24-2ef9-479a-9b4b-16eeed4239c6
In an exclusive interview with The Defender, Richard Sprague said his wife, Jennifer, developed Creutzfeldt-Jakob Disease after the Pfizer COVID-19 shot and...
exclusive interviewbrain disorderwomandiesrare
https://kumparan.com/kumparannews/dwp-kemensos-gelar-sarasehan-disabilitas-rare-disorder-sediakan-layanan-terapis-24tW0rPLgEL
Dharma Wanita Persatuan (DWP) Kemensos menggelar sarasehan disabilitas rare disorder. Para peserta yang hadir bisa mengakses berbagai layanan kesehatan,...
rare disorderdwpkemensosgelardisabilitas
https://www.pharmaceutical-technology.com/news/newsbio-products-laboratory-makes-coagadex-available-uk-rare-bleeding-disorder-4915134/
UK-based biotechnology company Bio Products Laboratory (BPL) has launched Coagadex in a bid to make it available for patients within the country.
bio products laboratorymakescoagadexavailableuk
https://www.cbsnews.com/news/5-year-old-diagnosed-with-fatal-brain-disorder-proves-doctors-wrong-scores-touchdown/
Father says son is a "walking, talking, touchdown-scoring miracle"
year oldbrain disorderrareprovesdoctors
https://www.nationaljewish.org/giving/why-your-gift-matters/patients/past-respiratory-stories/rare-genetic-disorder-drives-precision-therapy
It got to the point that Jennifer Gleason’s 5-year- old daughter cried every time she had to leave her mother. Gleason, a single mother from Canyon,...
genetic disorderraredrivesprecisiontherapy
https://www.nhpr.org/2024-04-30/scientists-restore-brain-cells-impaired-by-a-rare-genetic-disorder
A therapy that restores brain cells impaired by a rare genetic disorder may offer a strategy for treating conditions like autism, epilepsy, and schizophrenia.
brain cellsgenetic disorderscientistsrestoreimpaired
https://www.wrtv.com/news/u-s-world/miracle-baby-jaxon-buell-born-with-rare-disorder-defies-the-odds-celebrates-13-months
His doctors said he would never speak, never be able to see or hear and would never survive past a few months.
miracle babyrare disorderodds
https://www.sciencedaily.com/releases/2019/12/191216094529.htm
A team of researchers has cracked a rare gene variant for a disorder that causes severe neurodegeneration in infants.
genetic disorderrareidentifiedpeopleworldwide
https://www.outlookindia.com/international/astrazeneca-covid-19-vaccine-blood-clotting-vitt-thrombosis-australia-flinders-university
According to the scientists from Australia's Flinders University, the rare blood clotting disorder called Vaccine-Induced Immune Thrombocytopenia and...
astrazenecacovidvaccinecausesecond
https://www.sciencedaily.com/releases/2014/02/140227141857.htm
A research team has defined a possible new way to fight a disease that is currently treatable only with the most expensive drug available for sale in the...
blood disordermakingtreatmentrareaffordable
https://news.feinberg.northwestern.edu/2026/01/15/new-treatment-directions-for-rare-brain-disorder/
Jan 15, 2026 - A Northwestern Medicine study has uncovered a promising new therapeutic approach for a rare genetic brain disorder, according to findings published in Nature...
brain disordernews centertreatmentdirectionsrare
https://www.the-independent.com/arts-entertainment/music/news/billy-joel-performance-brain-disorder-b2894016.html
Jan 3, 2026 - ‘Piano Man’ legend was diagnosed with Normal Pressure Hydrocephalus in May
billy joelfirst performancesurprisesfanssince
https://im-listening.co.uk/kentonline/podcast-teen-who-collapsed-in-ashford-park-diagnosed-with-rare-heart-disorder-after-previous-seizures-blamed-on-anxiety/
Sep 23, 2025 - Podcast: Teen who collapsed in Ashford park diagnosed with rare heart disorder after previous seizures blamed on ‘anxiety’
podcastteencollapsedashfordpark
https://www.nationalgeographic.com/science/article/chs-cannabis-marijuana-risks
Aug 19, 2025 - Nausea. Severe abdominal pain. Compulsive bathing. These are some of the hallmarks of cannabinoid hyperemesis syndrome, a medical condition that’s on the...
rarehealthdisorderrisecannabis
https://www.ajmc.com/view/fda-approves-first-treatment-for-rare-genetic-metabolic-pediatric-disorder
The disorder known as molybdenum cofactor deficiency (MoCD) Type A presents shortly after birth, often with severe encephalopathy and intractable seizures.
fdafirsttreatmentraregenetic
https://themighty.com/topic/aicardi-syndrome/what-the-research-didnt-tell-me-about-my-daughters-rare-disorder/
The medical books didn't mention this.
researchtelldaughter
https://www.uniindia.com/kims-doctors-save-one-year-old-with-rare-craniofacial-disorder-through-complex-surgery/east/news/3708467.html
Bhubaneswar, Jan 16 (UNI) Doctors at the Kalinga Institute of Medical Sciences (KIMS) have successfully performed a rare and highly complex craniofacial...
one year oldkimsdoctorssaverare
https://www.fox9.com/news/woodbury-man-detained-ice-has-rare-genetic-skin-disorder-family-says
The family of a Woodbury man is worried for his health after he was taken into custody by ICE agents on Saturday, saying he has a rare skin condition.
man detainedskin disorderwoodburyicerare
https://www.foxla.com/news/baby-born-without-eyes-eyeballs-missouri-wrenley-ice-taylor-robert
Robert and Taylor Ice of Missouri faced a heartbreaking reality when their daughter, Wrenley, was born without eyes due to a rare genetic disorder. Despite the...
baby borngenetic disorderwithouteyesdiagnosed
https://www.newsday.com/long-island/suffolk/laney-mcgowan-iu1psabn
Dec 24, 2025 - Laney McGowan died after a long and courageous battle with Dravet syndrome, a severe form of genetic epilepsy. NewsdayTV's Virginia Huie reports.
year oldrememberingsayvillegirldied
https://bestfriends.org/stories/features/abandoned-loved-sibling-dogs-neurological-issues-find-joy-every-day
Two sibling dogs with a rare neurological condition are wobbly on their feet, but that doesn't stop them from experiencing joy and loving life.
rare neurologicalbest friendssiblingdogsdisorder
https://www.ladbible.com/entertainment/tv/this-morning-sleep-disorder-health-parasomnia-nicola-edwards-484763-20260202
A rare sleep disorder which causes a woman to shop whilst she is fully asleep and buy bizarre items has been explained on This Morning
rare disordercauseswomanshopsleep
https://www.miragenews.com/young-mother-survives-rare-and-deadly-brain-1536209/
Right before Thanksgiving in 2023, Shannon Finnegan Cook, a 31-year-old attorney and mother of two young children, came down with what seemed like a
young motherbrain disorderraredeadlymirage
https://www.tvinsider.com/1236957/steven-w-bailey-greys-anatomy-bartender-joe-devastating-health-diagnosis-congenital-myasthenia-syndrome/
Jan 3, 2026 - The actor is best-known as Joe the bartender on 'Grey's,' but has also appeared on 'Chicago Fire,' 'Modern Family,' 'Scandal,' and more.
steven w baileygreyanatomyactorreveals
https://www.biospace.com/drug-development/rallybio-pivots-as-antibody-for-rare-bleeding-disorder-flunks-dosing-trial
The company is dropping its former lead molecule in favor of another antibody, RLYB116, which is being developed for a variety of rare autoimmune disorders.
bleeding disorderpivotsantibodyraredosing
https://www.asiaone.com/singapore/lee-wei-ling-diagnosed-rare-brain-disorder-no-cure-wishes-it-was-nightmare
Dr Lee Wei Ling, the younger sister of Prime Minister Lee Hsien Loong, has been diagnosed with Progressive Supranuclear Palsy (PSP), a rare brain disorder that...
lee wei lingbrain disorderdiagnosedrare
https://ew.com/greys-anatomy-actor-steven-w-bailey-has-rare-genetic-disorder-now-using-wheelchair-11878777
Steven W. Bailey, who played Joe the bartender on the first seven seasons of 'Grey's Anatomy,' opened up about a rare diagnosis he's hidden for...
steven w baileygreyanatomystar
https://www.clinicaltrialsarena.com/news/x4-pharma-neutropenia/
In an exclusive, X4 Pharma CEO Paula Ragan discusses plans for a Phase III trial of mavorixafor in chronic neutropenia planned for H2 2023.
phase iii trialpharmapreviewsplansrare
https://www.businesswire.com/news/home/20220707005748/en/Q-State-Publishes-New-Research-on-ASOs-in-Ultra-rare-Neurodegenerative-Disorder
Q-State announces research on of splice modulating ASOs published in "Molecular Therapy Nucleic Acids."
new researchultra rareqstatepublishes
https://mylifexp.com/health/a-rare-vision-disorder-that-changes-what-people-see-/articleshow/126228451.html
Dec 29, 2025 - Learn about a peculiar neurological condition linked to persistent visual noise that can cause people to perceive faces in random objects more intensely and...
vision disorderrarechangespeoplesee
https://health.howstuffworks.com/mental-health/neurological-conditions/demon-face-syndrome.htm
Your brain is your best friend — until it decides to go rogue. And that's pretty much what happens with demon face syndrome, aka prosopometamorphopsia,...
demon face syndromerare neurologicaldisorderhowstuffworks
https://www.billboard.com/music/music-news/jesy-nelson-twin-daughters-may-never-walk-rare-disorder-1236148589/
Jan 7, 2026 - Jesy Nelson revealed her twin daughters have been diagnosed with the rare genetic condition SMA Type 1.
jesy nelsontwin daughterssaysmaynever
https://pubmed.ncbi.nlm.nih.gov/17482073/
The distinction between PFE and MFE is clinically important because it determines whether all posterior teeth, or only individual affected teeth, will not...
primaryfailureeruptioncharacterizationrare
https://www.fredhutch.org/en/news/center-news/2017/01/reawakening-x-chromosome-new-possible-target-rett-syndrome.html
A research team led by Fred Hutch's Dr. Antonio Bedalov have uncovered 30 genes that could, one day, serve as therapeutic targets to reverse Rett syndrome, a...
x chromosomereawakeningnewpossibletherapeutic