Sponsor of the Day:
Jerkmate
https://www.cancer.gov/pediatric-adult-rare-tumor/
Pediatric and Adult Rare Tumor Network - NCI
The network of scientists, health care providers, advocates, patients, and family members is working on solid rare tumors that have no cures.
rare tumornetwork ncipediatricadult
https://www.mskcc.org/news/how-msk-kids-rare-tumor-program-benefited-teenager-with-advanced-kidney
Cody's Story: How the MSK Kids Rare Tumor Program Benefited a Teenager With Advanced Kidney Cancer...
Jul 1, 2025 - Cody Bass was diagnosed with metastatic kidney cancer when he was 17. Two years later, he has no evidence of disease, thanks to a clinical trial at MSK.
msk kidsrare tumoradvanced kidneycodystory
https://www.massgeneralbrigham.org/en/about/newsroom/patient-stories/unified-approach-complex-care-rare-tumor
Unified Approach Restores Health and Hope for Young Dad After Rare Tumor Diagnosis | Mass General...
When mild hearing loss led to a surprising diagnosis, Stephen Greene turned to Mass General Brigham for expert, compassionate care. Discover how a...
unified approachyoung dadrare tumormass generalrestores
https://www.keckmedicine.org/magazine/rare-chest-tumor-leads-new-father-on-search-for-answers/
Rare Chest Tumor Leads New Father on Search for Answers | Keck Medicine of USC
Dec 17, 2025 - When first-time dad Wen Ning suffered extreme fatigue and minor double vision, he was told the stress of fatherhood was to blame. A Keck Medicine of USC...
answers keck medicineleads newrarechesttumor
https://www.ktre.com/2026/04/07/lufkin-mom-shares-daughters-story-raise-awareness-about-rare-brain-tumor/
Lufkin mom shares daughter’s story to raise awareness about rare brain tumor
Apr 7, 2026 - Kinlee was only 10 years old when she died as a result of DIPG on March 10. But throughout her fight she was courageous, her mom said.
mom sharesraise awarenessrare brainlufkinstory
https://www.cancer.gov/rare-brain-spine-tumor/
Rare Brain & Spine Tumor Network - NCI
NCI-CONNECT Rare Brain and Spine Tumor Network connects patients, providers, and advocates to help people with rare brain and spine tumors get better care.
rare brainspine tumornetwork nci
https://liferaftgroup.org/
The Life Raft Group – Supporting patients with gastrointestinal stromal tumor & other rare diseases
Join The Life Raft Group Join the Patient Registry The Life Raft Group is committed to enhancing the survival and quality of life for people living with...
supporting patientsgastrointestinal stromalrare diseasesliferaft