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https://reconnet.ern-net.eu/2018/02/26/ern-reconnet-kick-off-meeting-report/ ERN ReCONNET KICK-OFF MEETING REPORT - ERN ReCONNET | European Reference Network on Rare and... Aug 8, 2023 - 26th-28th May 2017 | Pisa, Italy 26th May 2017 AULA MAGNA SCUOLA MEDICA, Via Roma 55, Pisa 27th and 28th May GRAND HOTEL DUOMO PISA Via Santa Maria, 94 - 56126... kick off meeting ern reconnet https://reconnet.ern-net.eu/disease-uctd/ Disease-UCTD - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... https://reconnet.ern-net.eu/2026/03/17/high-level-conference-on-patients-rights-on-cross-border-healthcare-and-the-erns/ High-Level Conference on Patients’ rights on cross-border healthcare and the ERNs - ERN ReCONNET |... Mar 17, 2026 - The high-level conference “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March. This event will... https://reconnet.ern-net.eu/2024/01/09/clinical-patient-management-system-cpms-eu-documents/ Clinical Patient Management System (CPMS): EU documents - ERN ReCONNET | European Reference Network... Jan 9, 2024 - Here is a collection of important dissemination materials developed by the European Commission on the Clinical Patient Management System (CPMS). More info and... clinical patient management eu documents https://reconnet.ern-net.eu/covid-19-ecdc/ COVID-19 ECDC - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... https://reconnet.ern-net.eu/ Home new - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... https://reconnet.ern-net.eu/2024/01/04/ern-exchange-program/ ERN Exchange Program - ERN ReCONNET | European Reference Network on Rare and Complex Connective... Jan 4, 2024 - ERN ReCONNET Exchange Program aims at enhanceìing knowledge sharing and stimulating collaboration between health care professionals in ERNs and strengthen... exchange program https://reconnet.ern-net.eu/epag-silke-schluter/ epag Silke Schlüter - ERN ReCONNET | European Reference Network on Rare and Complex Connective... https://reconnet.ern-net.eu/2019/06/28/dissemination-2019/ ERN ReCONNET Dissemination Materials (2019) - ERN ReCONNET | European Reference Network on Rare and... Aug 8, 2023 - Patients' involvement How to get involved CPMS This leaflet describes the role of patients in the ERN ReCONNET, their activities inside the ERN, how to become... ern reconnet dissemination materials https://reconnet.ern-net.eu/2022/01/21/10th-udni-conference-31-january-1-february-2022/ 10th UDNI Conference (31 January- 1 February 2022) - ERN ReCONNET | European Reference Network on... Aug 8, 2023 - The 10th Undiagnosed Diseases Network International Conference will be held in Turin (Italy) on 31 January - 1 February 2022. The event will be hybrid.... https://reconnet.ern-net.eu/2024/08/21/ern-clinical-practice-guidelines-and-clinical-decision-support-tools/ ERN: Clinical Practice Guidelines And Clinical Decision Support Tools - ERN ReCONNET | European... Aug 21, 2024 - There are a number of challenges surrounding the development of Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs) for rare... clinical practice guidelines decision support tools ern reconnet european https://reconnet.ern-net.eu/disease-aps/ Antiphospholipid Syndrome - ERN ReCONNET | European Reference Network on Rare and Complex... antiphospholipid syndrome ern reconnet european https://reconnet.ern-net.eu/ern-reconnet-epags-advocates/epag-ramona-luciu/ Luciu Ramona - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... https://www.appvizer.com/accounting-finance/compliance/reconnet ReconNET: Reviews, Prices & Features | Appvizer reconnet reviews prices features https://reconnet.ern-net.eu/covid-19-national-societies-of-rheumatology/ COVID-19 National Societies of Rheumatology - ERN ReCONNET | European Reference Network on Rare and... https://reconnet.ern-net.eu/event-and-media-dissemination-materials/ Events & Media Dissemination materials - ERN ReCONNET | European Reference Network on Rare and... events media dissemination materials ern reconnet https://www.ao-pisa.toscana.it/index.php?option=com_content&view=article&id=3786:covid-19-l-impatto-sulle-malattie-rare-nello-studio-di-ern-reconnet-uscito-su-nature-reviews-rheumatology&catid=123&Itemid=131 Covid-19: l'impatto sulle malattie rare nello studio di ERN ReCONNET uscito su Nature Reviews... https://reconnet.ern-net.eu/2024/09/10/newborn-screening-nbs-awareness-month/ Newborn Screening (NBS) Awareness Month - ERN ReCONNET | European Reference Network on Rare and... Sep 10, 2024 - In the US, during 1950s-1960s Dr. Robert Guthrie developed a paper blood spot card test as a new assay to screen newborns for phenylketonuria, PKU: The Newborn... https://reconnet.ern-net.eu/2026/05/04/read-the-lateste-ern-reconnet-newsletter-n-31-april-2026-edition/ Read the latest ERN ReCONNET Newsletter n.31 — April 2026 Edition - ERN ReCONNET | European... May 4, 2026 - Spring is here, and so is a new chapter for ERN ReCONNET. The April 2026 newsletter captures a network in full motion — new alliances being forged, science... read the latest https://reconnet.ern-net.eu/ern-reconnet-task-force-transition-of-care/ ERN ReCONNET Task Force Transition of Care - ERN ReCONNET | European Reference Network on Rare and... transition of care https://reconnet.ern-net.eu/2024/03/08/international-womens-day/ International Women’s Day - ERN ReCONNET | European Reference Network on Rare and Complex... Mar 8, 2024 - ERN ReCONNET recognizes the value of women in our society and in our Network. Thank you all for what you do! ern reconnet https://reconnet.ern-net.eu/disease-eds/ Disease-EDS - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... https://reconnet.ern-net.eu/2020/03/19/eular-covid/ EULAR Guidance for patients with RMDs about COVID-19 outbreak - ERN ReCONNET | European Reference... Aug 8, 2023 - The European League Against Rheumatism (EULAR) developed a Guidance for people with Rheumatic Musculoskeletal Diseases (RMDs) about COVID-19 outbreak. Click on... https://reconnet.ern-net.eu/patients-organisations-ssc/ Patients Organisations SSC - ERN ReCONNET | European Reference Network on Rare and Complex... patients organisations ssc ern reconnet