https://www.uclahealth.org/medical-services/vhl/diagnosing-vhl-disease
Diagnosing VHL Disease - Von Hippel-Lindau Disease | UCLA Health
While 80% of patients with Von Hippel-Lindau (VHL) Disease have a family history, up to 20% of patients have a new/de novo alteration. However, with limited...
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https://www.vhldisease.com/
Von Hippel-Lindau (VHL) Disease | Understanding VHL
Learn about a rare genetic syndrome called von Hippel-Lindau (VHL) disease. Watch a video about VHL disease incidence, diagnostic criteria, and manifestations...
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https://patient.info/doctor/multisystem-diseases/von-hippel-lindau-disease
Von Hippel-Lindau Disease. Information about VHL Disease
Von Hippel-Lindau (VHL) disease is an inherited disorder causing multiple tumours, both benign and malignant in the central nervous system (CNS).
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