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https://www.biospace.com/press-releases/cure-rare-disease-receives-orphan-drug-designation-from-fda-for-investigational-therapy-targeting-spinocerebellar-ataxia-type-3-sca3 Cure Rare Disease Receives Orphan Drug Designation from FDA for Investigational Therapy Targeting... cure rare disease orphan drug designation https://www.businesswire.com/news/home/20251215136129/en/Cure-Rare-Disease-Awarded-%247.4-Million-CIRM-Grant-to-Advance-Gene-Therapy-for-Limb-Girdle-Muscular-Dystrophy-Type-2iR9 Cure Rare Disease Awarded $7.4 Million CIRM Grant to Advance Gene Therapy for Limb-Girdle Muscular... Cure Rare Disease (CRD) announced it has been awarded a $7.4 million grant from the California Institute for Regenerative Medicine (CIRM) to advance the deve... https://www.nhpr.org/2020-05-13/doctor-with-rare-disease-and-no-answers-decides-to-find-his-own-cure Doctor With Rare Disease And No Answers Decides To Find His Own Cure | New Hampshire Public Radio Sep 8, 2023 - David Fajgenbaum was diagnosed with Castleman disease as a medical student. In Chasing My Cure, he recounts crowd-sourcing his own treatment with a global... https://www.illumina.com/company/news-center/feature-articles/rare-a-rare-disease-revolution-screening-at-illumina.html The rare disease community fights for precision medicine, from diagnosis to cure At a Rare Disease Day event, Illumina employees screened a new documentary featuring families advocating for research and treatment rare disease community