https://kidneycareuk.org/news-from-kidney-care-uk/new-treatment-for-cystinosis-approved-for-use-by-nhs-scotland/
A new treatment option for cystinosis, a rare inherited condition initially severely affecting the kidney and eyes usually diagnosed in infants, will soon be...
use bynhs scotlandnewtreatmentcystinosis
https://docs.google.com/forms/d/e/1FAIpQLSfvm_8sMKJnFQDMogzv7_PRYs86cTFPMhfnovVIG_DMpcqK5Q/closedform
Hi, As someone with experience of living with or caring for someone living with cystinosis, we would like to ask you to fill out this questionnaire. This...
treatmentcystinosis
https://www.understandingcystinosis.com/
Understanding Cystinosis is a resource for HCPs to learn more about cystinosis, get support for you and your patients, and locate cystinosis specialists.
healthcare professionalsunderstandingcystinosis