https://www.cdc.gov/
Centers for Disease Control and Prevention | CDC
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https://bionews.com/contact-us/
The #1 Digital Health Network for Rare Disease | Bionews | Contact
Aug 18, 2025 - Bionews connects people with news, information and community. Learn more about our rare communities and digital health solutions.
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https://www.infectiousdiseaseadvisor.com/
HIV/AIDS, Hepatitis, Infectious Disease News | STD Treatment Studies
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https://www.alz.org/
Alzheimer's Association | Alzheimer's Disease & Dementia Help
Alzheimer's Association national site – get information on Alzheimer's disease and dementia symptoms, causes, treatment and care. Join the fight to end ALZ.
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https://www.who.int/emergencies/diseases/novel-coronavirus-2019
Coronavirus disease (COVID-19)
Information on COVID-19, the infectious disease caused by the most recently discovered coronavirus.
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https://www.cartercenter.org/
Waging Peace. Fighting Disease. Building Hope. - The Carter Center
May 11, 2026 - For over 40 years, The Carter Center has boldly tackled humanity's toughest challenges. Our peace and health programs partner with communities worldwide to...
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https://cdc.gov/
Centers for Disease Control and Prevention | CDC
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https://www.hopkinslyme.org/
Johns Hopkins Lyme Disease Research Center
The Johns Hopkins Lyme Disease Research Center offers Lyme disease patient care, lyme disease education resources and does research into Lyme disease.
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https://www.hopkinssjogrens.org/
Johns Hopkins Jerome L. Greene Sjögren’s Disease Center
Sjögren’s Syndrome information, medication resources and patient materials from the Johns Hopkins Jerome L. Greene Sjögren’s Disease Center
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https://www.biofiredx.com/
Syndromic Infectious Disease Diagnostics | BioFire Diagnostics
Sep 19, 2023 - BioFire Diagnostics is the leader in syndromic infectious disease testing.
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https://www.michaeljfox.org/
The Michael J. Fox Foundation for Parkinson's Research | Parkinson's Disease
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the...
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https://www.cdc.gov/covid/index.html
Coronavirus Disease 2019 (COVID-19) | Covid | CDC
Find links to guidance and information on all topics related to COVID-19, including the COVID-19 vac
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https://www.ecdc.europa.eu/en
Homepage | European Centre for Disease Prevention and Control
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https://rarediseaseday.gr/
Παγκόσμια Ημέρα Σπανίων Παθήσεων - Rare Disease Day
ΣΥΝΕΔΡΙΟ 2026 ΠΑΓΚΟΣΜΙΑ ΗΜΕΡΑ ΣΠΑΝΙΩΝ ΠΑΘΗΣΕΩΝ - Τεχνόπολις Δήμου Αθηναίων
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https://www.rarediseaseday.org/
Rare Disease Day 2026
Oct 27, 2025 - Raising awareness for patients, families and carers around the world that are affected by rare diseases.
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https://www.hopkinsmyositis.org/
Johns Hopkins Myositis Center | Disease Education, Patient Care and Research for Myositis
The Johns Hopkins Myositis Center brings together the expertise of multiple specialties in the treatment of those with Myositis.
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https://hdsa.org/
Huntington's Disease Society of America
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https://www.nhlbi.nih.gov/health/sickle-cell-disease
Sickle Cell Disease - What Is Sickle Cell Disease? | NHLBI, NIH
Sickle cell disease is an inherited blood disorder that affects hemoglobin, the protein that carries oxygen through the body. Misshapen red blood cells can...
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https://huntingtonsdiseasenews.com/
Huntington's Disease News | Community, Research & Support
Apr 2, 2026 - The Web's Daily Resource for Huntington's Disease News
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https://www.aboutntm.com/
AboutNTM | Information About Nontuberculous Mycobacterial Lung Disease (NTM)
Learn about NTM, including the symptoms of nontuberculous mycobacterial lung disease, and why people with COPD, bronchiectasis, and asthma are at risk.
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https://avisetest.com/patient/
Testing for Diagnosis of Lupus and Autoimmune Disease
Nov 16, 2022 - Learn more about diagnosing and monitoring autoimmune disorders, including common lupus symptoms and related diseases.
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https://www.zeffy.com/en-US/donation-form/3fdc6297-c733-4d8c-9b22-e85187a44e96
Donate to help fight Chagas Disease
Help Latin American Society of Chagas raise funds for Donate to help fight Chagas Disease. Make a donation on Zeffy, and ensure 100% of your donation goes to...
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https://www.vyalev.com/
VYALEV™ for Adults with Advanced Parkinson's Disease
Discover VYALEV™ (foscarbidopa/foslevodopa). See Full Safety and Prescribing Information.
for adultsadvancedparkinsondisease
https://www.rhdv2.com/
EDUCATION | RHDV2 RABBIT HEMORRHAGIC DISEASE : USA INFORMATION
Education summary of RHDV2 Rabbit Disease. 2020 US outbreak. Virus Signs and Symptoms. How to protect rabbits and hares. Vaccine information link. Information...
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https://www.celiacimpactfund.org/
HOME | Celiac Disease Foundation Impact Fund
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https://chronicdiseaseday.org/
Home - Chronic Disease Awareness Day
Apr 28, 2026 - Chronic disease accounts for 7 of the top 10 leading causes of death in America and more than 90% of our annual healthcare spending.
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https://www.fredhutch.org/en/research/divisions/vaccine-infectious-disease-division.html
Vaccine and Infectious Disease Division - Fred Hutch
VIDD scientists integrate clinical care, computational methods and basic science research to reduce the global burden of infectious disease.
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https://foldingathome.org/
Folding@home – Fighting disease with a world wide distributed super computer.
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https://jeffcopublichealth.providerresourceswa.org/
Jefferson - Disease Information for Schools, Childcare, Providers and Long Term Care
Emerging disease information at your fingertips. Go to diseases Click Here Click Here Click Here Go to Site The resources you need, from norovirus toolkits to…
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https://www.nourianz.com/
What is ”Off” Time in Parkinson’s Disease
Explore how NOURIANZ® (istradefylline) works, how it is taken, the safety information, and important resources.
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https://sbhdboston.org/index.html
Home | SBHD 2026 | 18TH ANNUAL INTERNATIONAL CONFERENCE ON SYSTEMS BIOLOGY OF HUMAN DISEASE – June...
https://myperipheralarterydisease.com/
The Society for Vascular Medicine – Peripheral Artery Disease (PAD)
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https://scdaamasterclass.com/
SCDAA Masterclass on Sickle Cell Disease
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https://houseinstitute.com/
The House Institute | Ear Disease and Neurological Disorder Treatment
(213) 483-9930 | The House Institute is the preeminent center for the treatment of ear disease and neurological disorders. Schedule an appointment today.
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https://www.entyvio.com/
ENTYVIO® (vedolizumab) for Crohn's Disease or Ulcerative Colitis
ENTYVIO is a biologic treatment for moderate to severe Crohn's disease (CD) or ulcerative colitis (UC). See Safety and Prescribing Information.
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https://www.mdscongress.org/
International Congress of Parkinson's Disease and Movement Disorders®
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https://news.llu.edu/health-wellness/study-highlights-reduction-cardiovascular-disease-adding-nuts-diet
Study highlights reduction in cardiovascular disease by adding nuts to diet | News
Research focused on tree nuts adds to literature illustrating importance of diet on health
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https://en.hdbuzz.net/
HDBuzz – Huntington’s disease research news.
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https://cdcn.org/
Castleman Disease Collaborative Network | CDCN
Dec 8, 2025 - The Castleman Disease Collaborative Network is dedicated to investing in Castleman disease research and providing support to patients and their loved ones.
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https://rheumatology.org/rheumatic-disease-awareness-month
Rheumatic Disease Awareness Month | American College of Rheumatology
The ACR designated September as Rheumatic Disease Awareness Month (RDAM). Increase awareness and explore resources for those with rheumatic diseases.
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https://www.maine.gov/dhhs/mecdc/
Home | Maine Center for Disease Control & Prevention
The Maine Center for Disease Control and Prevention (Maine CDC) works to protect the public's health in Maine and helps shape positive health outcomes.
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https://chiesirarediseases.com/
Chiesi Global Rare Diseases | A Rare Disease Therapeutics Company
Chiesi Global Rare Diseases is a family-owned and run biopharmaceutical company with a commitment to providing transformative care to patients with rare...
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https://bssvd.org/
BSSVD - British Society for the Study of Vulval Disease
for thebssvdbritishsocietystudy
https://www.lyfgenia.com/
LYFGENIA™ (lovotibeglogene autotemcel) | An FDA Approved Gene Therapy for Sickle Cell Disease
LYFGENIA is a one-time gene therapy for people 12 years and older with sickle cell disease and a history of vaso-occlusive events. Please see Important Safety...
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https://www.bonfire.com/store/the-mast-cell-disease-society/
The Mast Cell Disease Society | Official Merchandise For a Cure | Bonfire
Help support the mast cell disease community through research, education, and advocacy. Every item you buy will ensure The Mast Cell Disease Society's mission...
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https://www.usagainstalzheimers.org/our-enterprise/CEOi
Global CEO Initiative on Alzheimer’s Disease (CEOi) | UsAgainstAlzheimer's
The Global CEO Initiative on Alzheimer’s Disease (CEOi), founded in 2013, is an organization of private-sector leaders who have joined together to provide...
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https://starsim.org/
Starsim: Agent-based disease modeling
Starsim is a flexible framework for agent-based modeling of health and disease.
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https://treatcanavan.com/
Canavan Disease Clinical Trial | ASPA Clinical Trial
Oct 29, 2024 - Aspa Therapeutics is developing an investigational gene therapy to treat patients with Canavan disease. CANaspire – a clinical trial designed to study the...
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https://www.incahealth.com.au/
Inca Evo - Streamline Chronic Disease Management
Explore Inca Evo, the leading software designed for GPs to streamline chronic disease management effectively. Australia's #1 Digital Care Planning Tool.
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https://www.huck.psu.edu/institutes-and-centers/center-for-infectious-disease-dynamics
Center for Infectious Disease Dynamics | The Huck Institutes (en-US)
CIDD embraces all scales and components of infectious disease biology. Our interdisciplinary approach, coupled with a dynamic viewpoint, provides insight into...
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https://www.imperial.ac.uk/mrc-global-infectious-disease-analysis
MRC Centre for Global Infectious Disease Analysis | Faculty of Medicine | Imperial College London
MRC Centre for Outbreak Analysis and Modelling
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https://www.imperial.ac.uk/school-public-health/infectious-disease-epidemiology/
Infectious Disease Epidemiology | Faculty of Medicine | Imperial College London
Infectious Disease Epidemiology
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https://azadrc.org/
Arizona Alzheimer’s Disease Research Center (ADRC) |
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https://www.fightinfectiousdisease.org/
WELCOME | Partnership to Fight Infectious Disease
Partnership to Fight Infectious Disease is a group of patients, providers, community organizations, business and labor groups, and health policy experts...
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https://www.niagads.org/
NIAGADS – The National Institute on Aging Genetics of Alzheimer's Disease Data Storage Site
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https://www.dshs.texas.gov/covid-19-home
COVID-19 (Coronavirus Disease 2019) | Texas DSHS
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https://wearehfc.org/
Understanding Alzheimer's: Bringing Light to the Disease
May 14, 2026 - Learn about the impact of bringing light to Alzheimer's. From innovative therapies to caregiver support, and caregiver grants.
to theunderstandingalzheimerbringinglight
https://www.ntmfacts.com/
NTMFacts | Nontuberculous Mycobacterial (NTM) Lung Disease Facts and Information | Official Site
The latest information about nontuberculous mycobacterial (NTM) lung disease for healthcare professionals, and how it affects bronchiectasis, COPD, and asthma...
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https://www.youtube.com/@MyFabulousDisease
My Fabulous Disease - YouTube
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https://www.microbiotajournal.com/
Microb Health Dis - Microbiota in Health and Disease
Microbiota in Health and Disease
microbhealthdis
https://nccr-rna-and-disease.ch/
Home | Swiss National Center of Competence in Research RNA & Disease
Establishing a Swiss RNA research focus that consolidates and reinforces the position of Switzerland in RNA biology by a coordinated, interdisciplinary...
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https://www.ptcbio.com/
PTC Therapeutics: Pioneering Rare Disease Treatments
May 7, 2026 - Explore PTC Therapeutics' commitment to developing innovative treatments for rare diseases.
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https://scdregistry.org/
Sickle Cell Disease Registry
Oct 24, 2025 - Be Part of the Change: Your Role in Advancing Sickle Cell Treatments If you or your child have sickle cell disease or carry the sickle cell trait, you can help...
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https://www.genedx.com/
Genetic Testing for Rare Disease Diagnosis | GeneDx
GeneDx provides advanced genetic testing to help diagnose rare and inherited conditions—helping providers, patients, and partners find answers faster with...
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https://rimidi.com/
Chronic Disease Management and Remote Patient Monitoring - Rimidi
A digital health company supporting healthcare providers with Remote Patient Monitoring and Chronic Care Management software, services, and connected devices.
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https://www.sicklecellspeaks.com/
About Sickle Cell Disease: Sickle Cell Speaks Official Site
Visit the site to learn about sickle cell, a genetic disease. View patient stories, learn about the diagnosis, disease management, support resources, and more.
about sickle cell diseasespeaksofficialsite
https://clinicalresearchspecialist.com/
Clinical Research Specialist – We believe that by providing disease-specific education, monitoring,...
Doing Your Part Today For A Better Tomorrow Since 2013 we have operated under the Florida Lung Asthma and Sleep Specialists P.A. private practice, conducting...
https://kdfoundation.us5.list-manage.com/subscribe?u=b88727d9b08e6ea558d239d6e&id=2a37b7490f
Kawasaki Disease Foundation
Kawasaki Disease Foundation Email Forms
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https://www.wrlfmd.org/
Homepage | World Reference Laboratory for Foot-and-Mouth Disease
homepageworldreferencelaboratoryfoot
https://pmc.ncbi.nlm.nih.gov/articles/PMC3149629/
Diagnosis of Alzheimer's Disease Based on Disease-Specific Autoantibody Profiles in Human Sera - PMC
After decades of Alzheimer's disease (AD) research, the development of a definitive diagnostic test for this disease has remained elusive. The discovery of...
https://jared.xyz/dont-die-of-heart-disease
Don't Die of Heart Disease
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https://www.theguardian.com/society/2026/apr/20/gut-microbiome-can-reveal-risk-of-parkinsons-scientists-say
Gut microbiome can reveal risk of Parkinson’s, scientists say | Parkinson's disease | The Guardian
Apr 21, 2026 - Study shows signature changes more pronounced in people with genetic risk, raising hopes for new therapies
https://givebutter.com/vcrdfcln3
Hope Takes Flight | Vanguard Clinical Rare Disease Foundation
Fund the First Treatment for Two Brothers with CLN3 Batten Disease
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https://www.winfieldunited.com/news-and-insights/look-to-fungicides-to-help-manage-disease-in-high-value-hybrids
Look to Fungicides to Help Manage Disease in High-Value Hybrids | WinField® United - WinField®...
When every dollar counts, maximize your high-value hybrids’ ROI potential with effective and efficient fungicide applications.
https://luxturna.com/
LUXTURNA® (voretigene neparvovec-rzyl) - Inherited Retinal Disease
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https://www.mndassociation.org/
MND Association | Fighting motor neurone disease
The MND Association is a charity focused on improving access to care, research and campaigning for people affected by motor neurone disease.
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https://public.govdelivery.com/accounts/USOPHSODPHPHF/subscriber/new?topic_id=USOPHSODPHPHF_90
Office of Disease Prevention and Health Promotion
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https://www.lemsawarehcp.com/
LEMS Disease Education for Physicians | LEMS Aware HCP
Oct 10, 2025 - LEMS Aware was created to help physicians recognize, diagnose and treat Lambert-Eaton myasthenic syndrome (LEMS), a rare, frequently unrecognized neuromuscular...
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https://www.laborie.com/patients/conditions/urethral-stricture/?_gl=1*1y02bnz*_ga*NjUzMjUyOTQ0LjE2OTc2NTczNDc.*_up*MQ..
Urethral Stricture Disease - Laborie
Dec 10, 2025 - You may have a Urethral Stricture if you have UTIs, painful urination, or a sense of incomplete emptying. Other symptoms may be present. Learn more here.
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https://rbdalliance.org/
Welcome to the Rare Bone Disease Alliance (RBDA)
Feb 19, 2026 - The RBDA is dedicated to improving lives affected by rare bone disorders through advocacy, education, and research collaboration.
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https://nas.lnk.to/kd3
Nas - King's Disease III
Listen to King's Disease III by Nas.
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https://globalgenes.org/rare-disease-facts/
RARE Disease Facts - Global Genes
Jan 26, 2026 - With more than 10,000 rare disease affecting 400 million people worldwide, rare is everywhere. Find out just how far rare reaches.
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https://iamrare.org/
IAMRARE® | Rare Disease Research Platform
Jan 5, 2026 - Powered by NORD, the IAMRARE Program is advancing better health outcomes and meaningful patient relationships in the study of rare disease.
rare disease researchplatform
https://www.macularsociety.org/
Beating Macular Disease - Macular Society
We are the charity beating the fear and isolation of macular disease with world-class research, and the best advice and support.
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https://pennmemorycenter.org/
Penn Memory Center - An Alzheimer's Disease Research Center
An Alzheimer's Disease Research Center
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https://pubmed.ncbi.nlm.nih.gov/27935523/
Telehealth methods to deliver dietary interventions in adults with chronic disease: a systematic...
Telehealth-delivered dietary interventions targeting whole foods and/or dietary patterns can improve diet quality, fruit and vegetable intake, and dietary...
https://www.mayoclinic.org/diseases-conditions/heart-disease/symptoms-causes/syc-20353118
Heart disease - Symptoms and causes - Mayo Clinic
Learn about symptoms, causes and treatment of cardiovascular disease, a term describing a wide range of conditions that can affect the heart.
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https://www.michaeljfox.org/contact-your-policymakers
Contact Your Policymakers | Parkinson's Disease
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https://www.paratekpharma.com/
Paratek Pharmaceuticals | Infectious Disease Treatment
Paratek Pharmaceuticals is committed to developing and delivering innovative treatments for serious infectious diseases. Learn about our products, pipeline,...
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https://lymelightfoundation.org/
LymeLight Foundation - Lyme Disease Treatment Grants
Apr 28, 2026 - LymeLight Foundation's mission is to provide Lyme disease treatment grants to eligible children and young adults to raise awareness about Lyme disease.
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https://kidneynation.org/
KidneyNation – Funding the Fight Against Kidney Disease
Funding the Fight Against Kidney Disease
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https://www.adcs.org/
ADCS – Alzheimer's Disease Cooperative Study
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https://www.lookingatlyme.ca/
Looking at Lyme - A podcast about Lyme disease
Looking at Lyme is an educational podcast created by the Canadian Lyme Disease Foundation, designed to increase awareness and empower listeners with expert…
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https://www.npr.org/2025/11/12/nx-s1-5580487/immune-health-test-immunome-precision-medicine
How an immune health test could stop disease before its starts : Short Wave : NPR
Nov 12, 2025 - David Ewing Duncan has spent the last 25 years being poked and prodded in the name of science. He’s signed up for hundreds of tests because, as a journalist,...
https://www.healthy-heart.org/
Healthy-Heart.org | Prevention of Cardiovascular Disease
Apr 4, 2025 - Find clear, reliable information and practical advice for patients and family care givers on the prevention of cardiovascular disease.
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https://www.apokynhcp.com/
APOKYN® for Parkinson's Disease Off Episodes
Empower your Parkinson's patients with APOKYN® (apomorphine hydrochloride injection). Give them ON-demand control of their OFF episodes.
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https://www.michaeljfox.org/news/exercise
Exercise | Parkinson's Disease
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https://cleerlyhealth.com/
Personalized Analysis and Treatment of Heart Disease | Cleerly
Cleerly determines your risk of heart attack by performing a non-invasive whole heart assessment to identify, characterize, and quantify plaque buildup.
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https://lymphaticnetwork.org/
Lymphatic Education and Research Network, Lymphedema Lymphatic Disease | Lymphatic Education &...
Fighting lymphedema and lymphatic disease through education, research, and advocacy.
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https://www.mindbodygreen.com/articles/lyme-disease-treatment-antibiotics-vs-natural-protocol
Antibiotics Vs. Natural Treatment For Lyme Disease | mindbodygreen
Lyme can flare up even after seemingly successful antibiotic treatment. Here, a patient shares how she finally found real healing with a holistic approach.
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