https://bladerunnerscalasparra.com/2021/03/22/viky-heroina-contra-duchenne/
Viky, heroína contra Duchenne
vikycontraduchenne
https://dmdwarrior.com/de/tag/night-afos-in-duchenne/
Nacht-AFOs bei Duchenne: Neuigkeiten, Forschung, klinische Studien und Artikel – DMD Warrior
Neuigkeiten, die Sie interessieren, über Nacht-AFOs bei Duchenne, aktuelle Artikel, klinische Studien, Forschungsergebnisse, Pressemitteilungen und alle...
nachtafosbeiduchenneneuigkeiten
https://www.duchenne-spain.org/blog/social-duchenne-noviembre-2021/
Social Duchenne Noviembre 2021 - Duchenne Parent Project España
Nov 3, 2021 - Accede a los eventos y actividades en los que hemos estado presentes en el mes de noviembre:
socialduchennenoviembreparentproject
https://dmdwarrior.com/de/physical-therapy-in-duchenne-muscular-dystrophy/
Physiotherapie bei Duchenne-Muskeldystrophie: 7 nachgewiesene Vorteile – DMD-Kämpfer
Apr 13, 2026 - Erfahren Sie, wie Physiotherapie bei Duchenne-Muskeldystrophie (DMD) die Mobilität verbessert, Komplikationen verzögert und die Lebensqualität steigert.
physiotherapiebeiduchennemuskeldystrophienachgewiesene
https://www.worldduchenne.org/news/%D1%80%D0%BE%D0%B7%D1%82%D1%8F%D0%B6%D0%BA%D0%B0-%D1%82%D0%B0-%D0%B2%D0%BF%D1%80%D0%B0%D0%B2%D0%B8-%D0%BF%D1%80%D0%B8-%D0%BC%D1%8F%D0%B7%D0%BE%D0%B2%D1%96%D0%B9-%D0%B4%D0%B8%D1%81%D1%82%D1%80/
Розтяжка та вправи при м’язовій дистрофії Дюшенна • World Duchenne
Розтяжка важлива, оскільки вона допомагає зберегти м’язи м’якими та еластичними, а суглоби – гнучкими. Це допомагає вам легше пересуватися.
worldduchenne
https://www.duchenne-spain.org/blog/tag/duvyzat/
DUVYZAT archivos - Duchenne Parent Project España
duvyzatarchivosduchenneparentproject
https://www.swiss-reg-nmd.ch/en/2025/08/21/growing-up-with-duchenne-in-switzerland-insights-from-young-people/
Growing Up with Duchenne in Switzerland: Insights from Young People | Swiss-Reg-NMD
Aug 21, 2025 - A recent survey study conducted by the Swiss Registry for Neuromuscular Disorders (Swiss-Reg-NMD) looked at how children and teens with Duchenne muscular…
growing upswitzerland insightsyoung peopleduchenneswiss
https://www.roche.com/investors/updates/inv-update-2025-07-25b
Roche provides regulatory update on Elevidys™ gene therapy for Duchenne muscular dystrophy in the EU
EMA’s CHMP issued an opinion not to recommend Elevidys™ (delandistrogene moxeparvovec) for the treatment of ambulatory individuals with Duchenne muscular...
duchenne muscular dystrophygene therapyrocheprovidesregulatory
https://www.uildmbo.org/it/notizie/informazioni-scientifiche/163-si-sperimentano-nuove-strategie-per-la-duchenne.html
SI SPERIMENTANO NUOVE STRATEGIE PER LA DUCHENNE
SI SPERIMENTANO NUOVE STRATEGIE PER LA DUCHENNE.
sperimentanonuovestrategieduchenne
https://superportal.hr/2025/09/08/bjelovarski-paviljon-u-crvenom-za-oboljele-od-duchenne-misicne-distrofije/
Bjelovarski paviljon u crvenom za oboljele od Duchenne mišićne distrofije - Super portal
Sep 8, 2025 - Bjelovarski paviljon sinoć je zasvijetlio u crvenoj boji u znak podrške oboljelima od Duchenne mišićne distrofije. Riječ je o rijetkoj, genetski uvjetovanoj...
paviljonduchennesuperportal
https://www.ugent.be/ge/en/research/doctoral-research/samenvatting-doctoraten-sinds-2021/2021-06-29-sandrine-herbelet/view
2021 06 29 – Sandrine Herbelet - NFAT5 in myositis and Duchenne muscular dystrophy. Localization,...
duchenne muscular dystrophysandrineherbeletmyositislocalization
https://www.endduchenne.cz/kdo-jsme/
Kdo jsme - End Duchenne
Oct 5, 2026 - Vize End Duchenne „Poskytovat odborné poradenství od sdělení dg. až po případný paliativní přístup na celém území České republiky“. Leták End Duchenne z. s. ke...
kdo jsmeendduchenne
https://www.duchenne-spain.org/investigacion/esquema-virtual-de-posibilidades-de-tratamiento-para-dmd-dmb/inflamacion-y-fibrosis/cat-1004/page/2/
Edasalonexent (CAT-1004) - Duchenne Parent Project España
Jun 6, 2019 - Edasalonexent (CAT-1004) es un fármaco de una pequeña molécula oral en investigación que modula el NF-ĸB. En los niños con DMD, la ausencia de distrofina en...
catduchenneparentproject
https://www.katychildpsychology.com/duchenne-muscular-dystrophy
Duchenne Muscular Dystrophy | Katy Child
Duchenne muscular dystrophy (DMD) is a progressive form of muscular dystrophy. DMD causes progressive weakness and loss (atrophy) of skeletal and heart...
duchenne muscular dystrophykatychild
https://duchenneexpertisecentrum.nl/?onderwerpen=zorgverleners
Zorgverleners Archieven - Duchenne becker
zorgverlenersarchievenduchennebecker
https://www.parentprojectmd.org/player-embed/id/9489/
Vamorolone Clinical Trials in Duchenne (January 2019)
clinical trialsvamoroloneduchennejanuary
https://www.actionduchenne.org/a-weekend-to-remember/
A weekend to remember - Action Duchenne
Mar 1, 2022 - Last weekend, I had the utter privilege of travelling to Northern Ireland to visit one of our incredible Duchenne families and their community of supporters....
to rememberweekendactionduchenne
https://_.life-science-animation.com/portfolio/236/
Duchenne Muscular Dystrophy Treatment – PepGen
Mar 4, 2025 - In this 2D/3D video, learn how PepGen’s Enhanced Delivery Oligonucleotide (EDO) technology improves exon-skipping therapies for DMD.
duchenne muscular dystrophytreatment
https://www.dontsendmeacard.com/ecards/charities/action-duchenne-limited/valentines-day
Action Duchenne Limited Valentine's Day eCards | DontSendMeACard.com
Send Valentine's Day eCards and donate the cost of cards and stamps to Action Duchenne Limited. With DontSendMeACard every e-card you send saves time, helps a...
valentine s dayactionduchennelimitedecards
https://wageningenvoorduchenne.nl/category/verslagen/
Verslagen – Wageningen voor Duchenne
verslagenwageningenvoorduchenne
https://www.vyondys53.com/
VYONDYS 53 (golodirsen) | Duchenne Muscular Dystrophy Treatment
Vyondys 53, an FDA-approved Duchenne muscular dystrophy treatment for patients who have a genetic mutation in the dystrophin gene that can be treated by...
duchenne muscular dystrophyvyondysgolodirsentreatment
https://www.themedicinemaker.com/issues/2026/articles/may/this-week-s-cgt-news-duchenne-gene-therapy-hits-pivotal-mark/
The Medicine Maker | This Week’s CGT News: Duchenne Gene Therapy Hits Pivotal Mark
REGENXBIO reports phase III AAV data in Duchenne; plus: adenoviral immunotherapy, preconditioning-free CAR-T, in vivo immune programming, and DNA-guided CRISPR
the medicinegene therapymakercgtnews
https://www.infocop.es/la-atencion-psicologica-un-pilar-esencial-en-la-distrofia-muscular-de-duchenne/?hilite=persuasi%C3%B3n
La atención psicológica, un pilar esencial en la distrofia muscular de Duchenne - Infocop
Sep 9, 2026 - Cada 7 de septiembre se conmemora el Día Mundial de Concienciación sobre la Distrofia Muscular de Duchenne. El acceso cambia vidas es el lema.
distrofia muscularpilaresencialduchenne
https://www.genethon.com/publication/rna-seq-analysis-of-an-antisense-sequence-optimized-for-exon-skipping-in-duchenne-patients-reveals-no-off-target-effect/
RNA-Seq Analysis of an Antisense Sequence Optimized for Exon Skipping in Duchenne Patients Reveals...
rna seq analysisexon skippingantisensesequenceoptimized
https://talkmisty.com/duchenne-muscular-dystrophy-dmd-therapeutics-market-growth-and-future-industry-outlook/
Duchenne Muscular Dystrophy DMD Therapeutics Market Growth and Future Industry Outlook - talkmisty
Aug 28, 2026 - The Duchenne Muscular Dystrophy DMD Therapeutics Market is advancing as research continues to focus on improving treatment options for Duchenne muscular...
duchenne muscular dystrophymarket growthdmdtherapeuticsfuture
https://topics.consensus.app/health/conditions/duchenne-muscular-dystrophy-symptoms-types-causes-and-treatment
Duchenne Muscular Dystrophy: Symptoms, Types, Causes and Treatment | Conditions | The Consensus...
Nov 12, 2025 - Discover the symptoms, types, causes, and treatment options for Duchenne Muscular Dystrophy in this comprehensive and informative guide.
duchenne muscular dystrophysymptomstypescausestreatment
https://duchenne.cl/noticias/
Noticias – Duchenne Chile
noticiasduchennechile
https://sarahskyrme.uk/publication/living-with-duchenne-muscular-dystrophy/
Living with Duchenne Muscular Dystrophy – Sarah Skyrme
duchenne muscular dystrophyliving withsarahskyrme
https://www.kingsbridgeestates.co.uk/news/back-in-the-saddle-for-duchenne-uk
Back in the saddle for Duchenne UK - Commercial Property Development Company | Kingsbridge
Jez and Ian get back in the saddle to raise thousands for Duchenne UK
in the saddlecommercial propertydevelopment companybackduchenne
https://med.stanford.edu/news/all-news/2016/10/dna-damage-response-links-short-telomeres-heart-disorder.html
DNA damage response links short telomeres, heart disorder in Duchenne muscular dystrophy
Oct 31, 2016 - A new study shows that telomeres shorten without cell division in a mouse model of Duchenne muscular dystrophy. Subsequent DNA damage responses and...
dna damage responseduchenne muscular dystrophyheart disorderlinksshort
https://www.parentprojectmd.org/aiovg_videos/givinostat-in-duchenne-april-2017/page/25
Givinostat in Duchenne (April 2017) - Parent Project Muscular Dystrophy
May 21, 2020 - Givinostat in Duchenne (April 2017) Parent Project Muscular Dystrophy and Italfarmaco hosted a webinar on April 26, 2017 to discuss Italfarmaco’s...
muscular dystrophygivinostatduchenneaprilparent
https://pijnlijke.nl/pijnlijke-spieren/spierziekten/musculaire-dystrofie-md/ziekte-van-duchenne-of-duchenne-musculaire-dystrofie/duchenne/
Duchenne_musculaire_dystrofie -
duchennemusculaire
https://www.actionduchenne.org/faq/beanbag-hockey/
Beanbag Hockey - Action Duchenne
beanbaghockeyactionduchenne
https://www.psy.be/nl/psy/valerie-duchenne
Duchenne Valérie - Psy Esneux | PSY.be
Psycholoog, Psychotherapeut, Sexuoloog - Volwassen, Jeugd, Koppel à Esneux, België
duchennepsyesneux
https://novo.pedroprado.com.br/articles/pdf-1276/
Duchenne Muscular Dystrophy - Pedro Prado Collection - The Ida Rolf Library - Reference content in...
Jul 3, 2022 - Linda McClure graduated as a Hellerwork® Structural Integration practitioner in 1989 and is the founding director of the Australian School of Applied...
duchenne muscular dystrophypedro pradoida rolfreference contentcollection
https://www.actionduchenne.org/london-marathon-2022/
London Marathon 2022 - Action Duchenne
Oct 3, 2022 - A blog about our amazing and official marathon finishers, Rody and Terrie. As Community Fundraising and Support Officer I support people who take on a...
london marathonactionduchenne
https://www.actionduchenne.org/clinial-hold-in-sarepta-gene-therapy-trial/
Clinial hold in Sarepta gene therapy trial - Action Duchenne
Jul 28, 2020 - Sarepta Therapeutics has announced that the FDA has issued a Clinical Hold letter for the company’s phase I/II gene therapy trial.
hold ingene therapysareptatrialaction
https://www.urmc.rochester.edu/patient-stories/duchenne-muscular-dystrophy-justin-decross
Justin DeCross - Duchenne Muscular Dystrophy | URochester Medicine
duchenne muscular dystrophyjustinurochestermedicine
https://sistersforduchenne.nl/?page_id=801
Brief van Jean, mama van Lewis - Sisters for Duchenne
Jul 9, 2023 - Brief van Jean,Mama van Lewis En toen was mijn kleine jochie ziek… Zonder zorgen ging ik die desbetreffende woensdagochtend in mei 2022 naar het ziekenhuis. We...
briefvanjeanmamalewis
https://prism.northwestern.edu/records/mvgr5-jtd37
Genetics of Duchenne and Becker Dystrophies | Prism
geneticsduchennebeckerdystrophiesprism
https://sm-hs.eu/diuseno-duchenne-raumenu-distrofija-klinikiniai-pozymiai-diagnostika-gydymas/
DIUŠENO (DUCHENNE) RAUMENŲ DISTROFIJA: KLINIKINIAI POŽYMIAI, DIAGNOSTIKA, GYDYMAS - SVEIKATOS...
Jul 16, 2021 - Žurnalas „Sveikatos mokslai / Health sciences“ yra recenzuojamas tarptautinis mokslinis žurnalas, skirtas skleisti naujas žinias ir informaciją apie visuomenės...
duchennegydymas
https://www.pilotforpulmonary.org/credits2/disease-area/duchenne-muscular-dystrophy-dmd/tests-and-outcomes-dmd-detail
Tests and Outcomes - DMD (Duchenne Muscular Dystrophy)
An animated video discussing tests and outcomes for patients with Duchenne's muscular dystrophy
duchenne muscular dystrophytestsoutcomesdmd
https://avesis.sdu.edu.tr/yayin/5b6746c2-d68e-4be0-bf7b-a61d61528dee/duchenne-muskuler-distrofili-bir-olguda-anestezi-yonetimi
Duchenne Musküler Distrofili Bir Olguda Anestezi Yönetimi | AVESİS
duchennebiranestezi
https://www.fiercebiotech.com/keyword/duchenne-muscular-dystrophy-dmd
Duchenne muscular dystrophy (DMD) | Fierce Biotech
duchenne muscular dystrophydmdfiercebiotech
https://cureduchenne.org/blog/our-journey-dealing-with-duchenne/
Our Journey Dealing With Duchenne - CureDuchenne
Jan 26, 2022 - Guest blog by Maribel and Ramiro Munoz Our son Joshua was born in 2007. Joshua, our oldest son, is an amazing and fun-loving boy. He was diagnosed with...
our journeydealing withduchenne
https://www.osservatoriomalattierare.it/malattie-rare/distrofia-muscolare-di-duchenne/18846-duchenne-nuovi-dati-positivi-sul-trattamento-con-givinostat-da-studio-di-fase-3
Duchenne, nuovi dati positivi sul trattamento con givinostat da studio di fase 3 - Osservatorio...
La prima testata e agenzia giornalistica completamente dedicata alle malattie rare e ai tumori rari.
duchennenuovidatipositivisul
https://research.hacettepe.edu.tr/en/publications/molecular-deletion-patterns-in-turkish-duchenne-and-becker-muscul-2/
Molecular deletion patterns in Turkish Duchenne and Becker muscular dystrophy patients - Hacettepe...
becker muscular dystrophyin turkishmoleculardeletionpatterns
https://www.worldduchenne.org/glossary/transdifferentiate/
transdifferentiate • World Duchenne
transdifferentiate is a process where one type of cell becomes another type of cell. Sometimes this is a reversible process, but in case of muscle stem cells...
transdifferentiateworldduchenne
https://samenvoorduchenne.nl/bestuurswissel/
Bestuurswissel – Samen voor Duchenne
samenvoorduchenne
https://www.worldduchenne.org/news/prof-aartsma-rus-clinical-trial-highlights-ppmd-conference-2022/
Prof Aartsma-Rus' Clinical Trial Highlights of PPMD Conference 2022 • World Duchenne
Jul 5, 2022 - Professor Aartsma-Rus shares her highlights of the PPMD Conference 2022 that was taking place June 23-26 in Phoenix Arizona.
clinical trialprofrushighlightsppmd
https://dmdcareuk.org/news/f/duchenne-research-fund-funds-dmd-psychosocial-care-programme
Duchenne Research Fund funds DMD psychosocial care programme
The Duchenne Research Fund is awarding a £640,000 grant to fund vital psychosocial care and research as part of the nationwide DMD Care UK programme.
duchenneresearchfunddmdpsychosocial
https://www.geneediting.com/clinical-trials/NCT06392724/
NCT06392724: A Study to Evaluate the Safety and Tolerability of GEN6050X in Duchenne Muscular...
The study will evaluate the safety and tolerability of GEN6050X gene therapy in Duchenne muscular dystrophy (DMD) patients amenable to exon 50 skipping.
a studyevaluatesafetytolerabilityduchenne
https://www.duchenne-spain.org/blog/resumen-general-de-investigacion-en-dmd/
Resumen general de investigación en DMD - Duchenne Parent Project España
Oct 22, 2013 - Para ayudar a los pacientes y las familias a mantenerse al corriente de los últimos avances y enfoques terapéuticos para Duchenne, la Dra. Annemieke...
resumengeneraldmdduchenneparent
https://www.duchenne-spain.org/blog/duchenne-parent-project-espana-participa-en-el-v-curso-de-neurologia-pediatrica-del-campus-vall-dhebron-controversias-en-neuropediatria/
Duchenne Parent Project España participa en el V Curso de Neurología Pediátrica del Campus Vall...
Oct 31, 2025 - Duchenne Parent Project España (DPPE) ha participado activamente en el V Curso de Neurología Pediátrica del Campus Vall d’Hebron, celebrado este 31 de octubre,...
en elduchenneparentprojectparticipa
https://www.duchenne-spain.org/blog/tag/summit-plc/page/2/
SUMMIT PLC archivos - Página 2 de 3 - Duchenne Parent Project España
summitplcarchivosduchenneparent
https://www.cdisc.org/c-path-and-cdisc-announce-therapeutic-area-user-guide-duchenne-muscular-dystrophy
C-Path and CDISC Announce Therapeutic Area User Guide for Duchenne Muscular Dystrophy | CDISC
duchenne muscular dystrophyuser guidepathcdiscannounce
https://www.certara.com/case-study/using-pbpk-for-label-recommendations-in-rare-disease-deflazacort-for-duchenne-muscular-dystrophy/
Using PBPK for Label Recommendations in Rare Disease: Deflazacort for Duchenne Muscular Dystrophy |...
duchenne muscular dystrophyrare diseaseusingpbpklabel
https://team-praxis.de/gesund-versorgt/lexikon/muskeldystrophie-typ-duchenne/33261
TeamPraxis | Muskeldystrophie Typ Duchenne
Muskeldystrophie Typ Duchenne
muskeldystrophietypduchenne
https://www.clinicaltrialvanguard.com/news/capricor-provides-deramiocel-bla-update-for-duchenne-muscular-dystrophy/
Capricor Provides Deramiocel-BLA Update for Duchenne Muscular Dystrophy
Aug 27, 2026 - Capricor Therapeutics received a Complete Response Letter (CRL) from the FDA regarding its Biologics License Application (BLA) for Deramiocel, its lead cell...
duchenne muscular dystrophyprovidesblaupdate
https://www.reinhardt-verlag.de/motorik20130405_irmler_bewegungsorientierte_foerderung_bei_kindern_mit_duchenne_muskeldystrophie/
Bewegungsorientierte Förderung bei Kindern mit Duchenne Muskeldystrophie
beikindernmitduchennemuskeldystrophie
https://eprints.ncl.ac.uk/169440
Muscle histology vs MRI in Duchenne muscular dystrophy - ePrints - Newcastle University
duchenne muscular dystrophynewcastle universitymusclehistologymri
https://walkingstrong.org/
Walking Strong - Duchenne Muscular Dystrophy Support
Sep 21, 2026 - We are a non-profit with a mission to build a supportive community to help us end Duchenne Muscular Dystrophy - learn how we can help!
duchenne muscular dystrophywalkingstrongsupport
https://www.cochrane.org/fr/evidence/CD005375_surgery-curvature-spine-patients-duchenne-muscular-dystrophy
Chirurgie de la scoliose chez les personnes atteintes d'une dystrophie musculaire de Duchenne |...
de lachirurgiescoliosechezles
https://napacentre.co.uk/muscular-dystrophy-therapy/
Duchenne Muscular Dystrophy Physio and Occupational Therapy
Mar 30, 2026 - Learn how pediatric physical therapy treatment and occupational therapy support children with Duchenne muscular dystrophy. Welcome to NAPA!
duchenne muscular dystrophyoccupational therapyphysio
https://foxpayneassociates.co.uk/blog/thames-walk/
Thames Walk for Ben vs Duchenne | Fox Payne Associates
The Fox Payne team completed a 12-mile Thames Path walk from Caversham to Henley, raising nearly £5,000 for Duchenne UK and Ben vs Duchenne.
thameswalkbenduchennefox
https://dmdwarrior.com/tr/precision-biosciences-anticipates-beginning-patient-dosing-for-duchenne-muscular-dystrophy-in-the-early-second-quarter-of-2026/
Precision BioSciences, Duchenne Musküler Distrofisi Hastalarına Doz Uygulamasına 2026 Yılının...
Jan 12, 2026 - DMD programı PBGENE-DMD için, Precision BioSciences, beklenen sonuçların ardından 2026 yılının ilk çeyreğinin sonlarında veya ikinci çeyreğinin başlarında...
precision biosciencesduchennedoz
https://whydonate.com/nl/fundraising/sponsorloop
Inzamelingsactie door Kevin Knol | Sponsorloop voor Duchenne
Kevin Knol Heeft je hulp nodig | sponsorloop voor Duchenne. Iedereen kan meedoen. Of je nu gaat hardlopen, wandelen of gewoon komt...
inzamelingsactiedoorkevinknolsponsorloop
https://touchneurology.com/insight/deramiocel-in-duchenne-muscular-dystrophy-phase-3-trial-results-and-cardiac-outcomes/?_rt=MTJ8MXxhYW58MTc5MTA5NjQ0MA&_rt_nonce=c8789fa314
Deramiocel in Duchenne muscular dystrophy: Phase 3 trial results and cardiac outcomes -...
May 7, 2026 - New phase 3 data presented at the American Academy of Neurology Annual Meeting 2026 highlight the potential of deramiocel as a novel therapeutic approach in
duchenne muscular dystrophyphasetrialresultscardiac
https://www.bossauto.com/en/paint-a-future-without-duchenne
Paint a Future Without Duchenne
Today marks a meaningful milestone for everyone at Bossauto. As part of our
paintfuturewithoutduchenne
https://www.zorgkrant.nl/wetenschap-en-onderwijs/7543-hersenen-van-jongens-met-duchenne-anders
Hersenen van jongens met Duchenne anders
Jongens en jonge mannen met de ziekte van Duchenne hebben vaker dan gemiddeld last van gedrags- en leerproblemen.
hersenenvanjongensmetduchenne
https://publicatt.unicatt.it/handle/10807/244175
Genetic modifiers of upper limb function in Duchenne muscular dystrophy
duchenne muscular dystrophyupper limbgeneticmodifiersfunction
https://www.duchenne-deutschland.de/doctors/universitaetsklinikum-erlangen/
Neuromuskuläres Zentrum – Neurologische Klinik – Deutsche Duchenne Stiftung
zentrumneurologischeklinikdeutscheduchenne
https://foodstrend.com/what-is-duchenne-muscular-dystrophy-dmd-disease/
What is Duchenne Muscular Dystrophy (DMD) Disease? - Foods Trend
Jun 15, 2024 - Duchenne Muscular Dystrophy (DMD) is a genetically based muscle disease. In Turkey, DMD disease accounts for approximately half of all neuromuscular disease...
duchenne muscular dystrophywhat isdmddiseasefoods
https://duchenneexpertisecentrum.nl/passende-zorg/zorgverleners/het-aladin-congres/
ALADIN congres - Duchenne becker
aladincongresduchennebecker
https://www.biopharmadive.com/news/pfizer-duchenne-patient-death-gene-therapy-trial/715450/
Patient dies in Pfizer study of Duchenne gene therapy | BioPharma Dive
Pfizer said the patient, a young boy who was treated earlier last year, died suddenly from cardiac arrest. The company is working with trial researchers to...
gene therapybiopharma divepatientdiespfizer
https://www.actionduchenne.org/product/free-ptc-stretching-cards/
PTC Stretching cards and sticker book - Action Duchenne
Jan 24, 2023 - *Currently not available* PTC Therapeutics have created two FREE resources which we are pleased to share with you. The stretching cards help make daily physio...
sticker bookptcstretchingcardsaction
https://www.actionduchenne.org/mc-events/time-out-for-mums-3/
Time Out – for Mums - Action Duchenne
Jun 12, 2025 - The most common thing we hear from Duchenne mums is the struggle to juggle it all, the pressure to hold it all together and the total lack of any space for...
time outmumsactionduchenne
https://dmdwarrior.com/fr/constipation-in-duchenne-muscular-dystrophy/
Constipation et dystrophie musculaire de Duchenne : 5 solutions éprouvées - DMD Warrior
Apr 27, 2026 - Découvrez comment se développe la constipation dans la dystrophie musculaire de Duchenne (DMD), ses symptômes, ses causes et les traitements fondés sur des...
constipationdystrophiemusculaireduchennesolutions
https://www.sciencemediacenter.de/angebote/geneditierung-bei-hunden-mit-duchenne-muskeldystrophie-18063
Geneditierung bei Hunden mit Duchenne-Muskeldystrophie
Aug 30, 2018 - Eine Gentherapie für Muskelschwund Typ Duchenne haben Forscher erstmals in Hunden getestet. Sie scheint zu wirken – und zwar Mithilfe der Genschere CRISPR-Cas.
beihundenmitduchennemuskeldystrophie
https://cooperativa.cl/noticias/pais/salud/padre-camina-por-el-desierto-para-costear-millonario-tratamiento-para-su/2024-05-24/093156.html
[Video] Padre camina por el desierto para costear millonario tratamiento para su hijo con Duchenne...
La familia de Dante Jara, un menor de Antofagasta con distrofia muscular de Duchenne, ha comenzado su largo camino desde Arica a La Moneda, buscando recaudar...
por elvideopadrecaminadesierto
https://duchenneandyou.com/es/living-with-duchenne/
Living With Duchenne – Welcome to Duchenne and You
living withwelcome toduchenne
https://www.rarediseaseresearch.com/events-2-1/world-duchenne-awareness-day
World Duchenne Awareness Day — Rare Disease Research
awareness dayrare diseaseworldduchenneresearch
https://epub.ub.uni-muenchen.de/102353/
A scalable, clinically severe pig model for Duchenne muscular dystrophy
duchenne muscular dystrophyscalableclinicallyseverepig
https://www.parentproject.it/2023/10/04/cap-1002-nella-distrofia-muscolare-di-duchenne-capricor-annuncia-un-incontro-positivo-con-la-fda-2/
CAP-1002 nella distrofia muscolare di Duchenne: Capricor annuncia un incontro positivo con la FDA -...
Oct 4, 2023 - In un comunicato stampa diffuso il 29 settembre 2023, l’azienda statunitense Capricor Therapeutics ha annunciato un aggiornamento sull’incontro avuto con la...
distrofia muscolarecapnelladuchenneannuncia
https://klinische-studien-fuer-patienten.de/de/trials/muscle-and-peripheral-nerve-disease/dmd.html
Duchenne Muscular Dystrophy-Klinische Studien für Patient...
duchenne muscular dystrophyklinischestudienpatient
https://www.actionduchenne.org/mutations/point/
Point mutations - Action Duchenne
Apr 28, 2020 - Duchenne is a genetic condition. This means the condition is caused by genetic mutations – alterations or changes – in a gene. Duchenne is caused by mutations...
point mutationsactionduchenne
https://utmb.world/utmb-index/races/14219.heroescontraduchennecontraduchenne82k.2021?page=1
Héroes contra Duchenne 2021 - CONTRA DUCHENNE 82k - 100K UTMB Index race
Héroes contra Duchenne 2021 - CONTRA DUCHENNE 82k is a UTMB Index race 100K race of 82.80 km and 3580 mt+. See the results form 61 Finishers.
utmb indexcontraduchennerace
https://racetoendduchenne.org/a-decade-of-impact-honoring-pjs-protocol-and-its-legacy/
A Decade of Impact: Honoring PJ’s Protocol and Its Legacy - Race To End Duchenne
Oct 11, 2026 - Ten years ago, the Duchenne community gained a vital tool for the clinical management of adrenal insufficiency and steroid stress dosing for individuals on...
a decadeimpacthonoringprotocollegacy
https://defeatduchenne.ca/fr/news-and-events/events/research-grant-announcement-2025/
Research Grant Announcement 2026 – Defeat Duchenne Canada
defeat duchenne canadaresearch grantannouncement
https://cureduchenne.org/blog/prosensa-begins-nda-submission-to-the-fda-for-exon-skipping-drug-drisapersen-to-treat-duchenne-muscular-dystrophy/
Prosensa begins NDA submission to the FDA for exon-skipping drug drisapersen to treat Duchenne...
Oct 10, 2014 - CureDuchenne is delighted to share the news that Prosensa announced today that it has begun the submission process for a New Drug Application filing to the FDA...
to theexon skippingprosensabeginsnda
https://www.neurologylive.com/view/implications-newborn-screening-dmd-care-brenda-wong-michael-kelly
Implications of Newborn Screening for Duchenne Muscular Dystrophy Care: Brenda L. Wong, MD; Michael...
Oct 7, 2026 - A duo of experts from CureDuchenne discussed how the inclusion of Duchenne muscular dystrophy on the Recommended Uniform Screening Panel can enable earlier...
duchenne muscular dystrophynewborn screeningimplicationscarebrenda
https://www.sciencedaily.com/releases/2024/12/241216125639.htm
New drug shows promise against Duchenne muscular dystrophy | ScienceDaily
A novel drug holds promise for treating Duchenne muscular dystrophy (DMD), a rare genetic disorder that causes severe muscle degeneration. Researchers have...
duchenne muscular dystrophynew drugshowspromisesciencedaily
https://avesis.deu.edu.tr/yayin/3a42d2df-d1ed-4afd-8059-fa0708d7c7b3/national-plan-of-action-to-raise-awareness-and-improve-medical-care-of-duchenne-muscular-dystrophy-aim-dmd-first-year-results
National plan of action to raise awareness and improve medical care of Duchenne muscular dystrophy...
plan of actionduchenne muscular dystrophyraise awarenessmedical carenational
https://www.actionduchenne.org/mighty-minds/
Mighty Minds - Action Duchenne
Sep 18, 2026 - Mighty Minds We’re so excited to introduce Mighty Minds — a virtual group created especially for boys living with Duchenne and their siblings will also be...
mightymindsactionduchenne
https://diy.parentprojectmd.org/the-impact-of-the-continuing-resolution-and-federal-budget-cuts-to-the-cdmrp-on-duchenne-research/
The Impact of the Continuing Resolution and Federal Budget Cuts to the CDMRP on Duchenne Research -...
Oct 9, 2026 - Today, the Senate passed a Continuing Resolution (CR) that includes a 57% cut to the Congressionally Directed Medical Research Program (CDMRP). While the CR...
continuing resolutionfederal budgetimpactcutsduchenne
https://repositorio.ipl.pt/entities/publication/c204f9ba-bcc8-4d5a-b9aa-a2ebd068f535
Distrofia muscular de Duchenne: a importância do exercício físico
A distrofia muscular de Duchenne é uma doença neuromuscular progressiva resultante da mutação do gene responsável pela síntese da distrofina situado no...
distrofia muscularduchenne
https://leczeniewdomu.pl/opieka-chirurgiczna-w-dystrofii-miesniowej-duchennea/
Opieka chirurgiczna w dystrofii mięśniowej Duchenne'a - leczeniewdomu.pl
Apr 7, 2021 - Rozwój dystrofii mięśniowej Duchenna'a u chorego z czasem będzie wymagał przeprowadzania zabiegów chirurgicznych. Ich cel bywa różny.
opiekaduchenne
https://www.700km.nl/duchenne-heroes-2026-dag-7-lanaken-thorn-finish/
700km.nl | Duchenne Heroes 2026 Dag 7 Lanaken – Thorn (finish)
duchenneheroesdaglanakenthorn
https://www.worldduchenne.org/news/2nd-international-conference-on-rare-diseases/
2nd International Conference on Rare Diseases • World Duchenne
Feb 24, 2022 - The 2nd International Conference on Rare Diseases (March 1-2) is themed “The Balancing Act between Equity and Sustainability".
rare diseasesinternationalconferenceworldduchenne
https://dmdwarrior.com/fr/bone-joint-health-in-duchenne-muscular-dystrophy/
Santé des os et des articulations dans la dystrophie musculaire de Duchenne - Guerrier DMD
Mar 29, 2026 - Découvrez les informations sur la santé des os et des articulations dans la dystrophie musculaire de Duchenne, notamment l'ostéoporose, la prévention des...
desarticulationsdansdystrophiemusculaire