https://www.lgmd-info.org/it/awareness-day/Initiatives/
Awareness Day Initiatives - LGMD Awareness Foundation
Oct 4, 2023 - Examples of How to Promote Awareness As an interested participant, you probably have some ideas about how to promote LGMD Awareness in your area. But, just in...
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https://www.lgmd-info.org/fr/event/intersections-with-rare-diseases-hosted-by-fda/
"Intersections with Rare Diseases" hosted by FDA for Rare Disease Day - LGMD Awareness Foundation
Dec 8, 2022 - FDA to Host 2023 Rare Disease Day VIRTUAL Event “Intersections […]
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https://dmdhelp.org/fda-oks-trial-of-srp-9005-gene-therapy-for-lgmd-type-2c/
FDA OKs trial of SRP-9005 gene therapy for LGMD type 2C - DMDHelp
Apr 17, 2025 - The U.S. Food and Drug Administration (FDA) has cleared Sarepta Therapeutics to start dosing and […]
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https://www.lgmd-info.org/events/2025-07-19/
Events for July 19, 2025 – LGMD Awareness Foundation
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https://www.china-dmd.org.cn/896.html
AB-1003 治疗 LGMD 的试验在积极推荐后继续进行DMD, 肌营养不良，肌肉萎缩，杜氏肌营养不良至爱杜氏肌营养不良关爱中心
第二组测试疗法的第一位参与者已服用药物 Asklepios Biopharmaceutical（Askbio）已为 1/2 期试验第二组第一位参与者进行了 AB-1003 的给药测试，AB-1003 是一种针对 2I/R9 型肢带型肌营养不良症(LGMD) 的实验性基因疗法。 1/2 期 LION-CS101 试验...
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https://www.lgmd-info.org/individuals-with-lgmd-interviews/2016/05/14/dave/
INDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation
May 14, 2016 - 05/14/2016: LGMD “Spotlight Interview” Name: Dave Age: 27 yrs. old […]
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https://www.lgmd-info.org/it/individuals-with-lgmd-interviews/2016/03/28/emily/
INDIVIDUAL WITH LGMD: Emily - LGMD Awareness Foundation
Mar 28, 2016 - 03/28/2016 LGMD “SPOTLIGHT INTERVIEW” Name: Emily Age: 29 yrs. old […]
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https://www.lgmd-info.org/it/knowledge-base/navigating-lgmd/for-patients/lgmd-grant-opportunities/
LGMD Grant Opportunities - LGMD Awareness Foundation
Sep 22, 2026 - Living with limb-girdle muscular dystrophy (LGMD) presents unique challenges, both physically and financially. The LGMD Grant Opportunities page serves as a...
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https://www.lgmd-info.org/ru/tag/england/
England Archives - LGMD Awareness Foundation
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https://www.lgmd-info.org/es/researcher-interview/2022/07/06/lgmd-researcher-pia-elustondo/
LGMD RESEARCHER: Pia Elustondo - LGMD Awareness Foundation
Feb 9, 2024 - LGMD RESEARCHER: Dr. Pia ElustondoAffiliation: AGADA BiosciencesRole or Position: Director of ResearchWhat education and training did you have to arrive at...
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https://insight.jci.org/articles/view/200054/ga
JCI Insight - DAB2 in LGMD R2: a molecular link between disease progression and lipid dysregulation
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https://www.lgmd-info.org/ar/clinic-staff/2021/01/12/lgmd-clinic-staff-ursula-moore/
LGMD CLINIC STAFF: Ursula Moore - LGMD Awareness Foundation
Feb 9, 2024 - LGMD Clinic Staff: Ursula MooreAffiliation: John Walton Muscular Dystrophy Research CentreRole or Position: Medical Doctor and PhD CandidateWhat education and...
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https://www.lgmd-info.org/pt/event/mda-virtual-learning-webinar-disclosing-your-disability-at-work/
MDA Virtual Learning Webinar: Disclosing Your Disability at Work - LGMD Awareness Foundation
Nov 9, 2023 - Join MDA for a discussion about disclosing your disability at […]
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https://www.conquistandoescalones.org/it/2020/06/partecipiamo-ad-un-webinar-americano-sulle-lgmd-per-rimanere-sempre-aggiornati/
Partecipiamo ad un webinar americano sulle LGMD per rimanere sempre aggiornati - Conquistando...
May 12, 2021 - Pochi giorni fa abbiamo partecipato ad una videoconferenza dall'America, organizzata da un'associazione californiana che si occupa di un particolare tipo di
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https://www.lgmd-info.org/tr/tag/miyoshi-myopathy/
Miyoshi Myopathy Archives - LGMD Awareness Foundation
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https://www.lgmd-info.org/pt/event/mda-engage-webinar-limb-girdle-muscular-dystrophy-lgmd-symposium/
MDA Engage Webinar: Limb-girdle muscular dystrophy (LGMD) Symposium - LGMD Awareness Foundation
This educational event empower individuals and families with knowledge and […]
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https://www.lgmd-info.org/it/individuals-with-lgmd-interviews/2020/01/12/natasha/
INDIVIDUAL WITH LGMD: Natasha - LGMD Awareness Foundation
Jan 12, 2020 - LGMD “SPOTLIGHT INTERVIEW” Name: Natasha Age: 25 years old Country: […]
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https://www.lgmd-info.org/ru/tag/lgmd2l-united-states/
LGMD2L; United States Archives - LGMD Awareness Foundation
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https://www.lgmd-info.org/individuals-with-lgmd-interviews/2017/08/08/ben/
INDIVIDUAL WITH LGMD: Ben - LGMD Awareness Foundation
Aug 8, 2017 - LGMD “SPOTLIGHT INTERVIEW” Name: Ben Age: 23 yrs. old […]
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https://www.institut-myologie.org/recherche/dmb-et-lgmd-une-etude-nord-americaine-rapporte-des-resultats-encourageants-dun-essai-clinique-de-phase-ii-sur-les-effets-des-corticoides-a-faible-dose/
DMB et LGMD : une étude nord-américaine rapporte des résultats encourageants d’un essai clinique de...
L’essai clinique de phase II nommé WSiMD (Weekly Steroids in Muscular Dystrophy) a étudié l’innocuité et la tolérance d’une corticothérapie hebdomadaire à...
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https://www.lgmd-info.org/es/knowledge-base/community-network/lgmd-specialists/
LGMD Specialists - LGMD Awareness Foundation
Mar 29, 2026 - One of the challenges of living with a rare disease such as limb-girdle muscular dystrophy (LGMD) is finding physicians and other health care specialists who...
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https://www.lgmd-info.org/it/events/2025-09-08/
Events for September 8, 2025 – LGMD Awareness Foundation
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https://www.lgmd-info.org/individuals-with-lgmd-interviews/2015/05/07/claudette/
LGMD Spotlight Interview - Claudette
May 7, 2015 - Claudette, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.
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https://www.lgmd-info.org/it/uncategorized/2017/01/28/spotlight-interview-volunteers-needed/
LGMD Spotlight Interviews - Volunteers Needed
Jan 28, 2017 - Individuals diagnosed with Limb Girdle Muscular Dystrophy (LGMD) share their experience in living with a progressive neuromuscular disease. Volunteer Today!
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https://www.lgmd-info.org/de/tag/lgmd2a-romania/
LGMD2A; Romania Archives - LGMD Awareness Foundation
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