https://www.loeysdietz.org/
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical...
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https://www.loeysdietz.org/events/2026/02/01/walk-for-victory-dc
Walk for Victory - Washington, DC — Loeys-Dietz Syndrome Foundation
Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with...
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https://www.loeysdietz.org/share-your-story
Share Your Story — Loeys-Dietz Syndrome Foundation
We have an incredible community and recognize the power of sharing personal stories to help provide support and connection. The best advice and inspiration...
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https://www.loeysdietz.org/en/science-and-medicine/
Research — Loeys-Dietz Syndrome Foundation
The Loeys-Dietz Syndrome Foundation is dedicated to improving patient health and transforming medicine to ensure healthier futures. Here, you will find more...
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https://www.loeysdietz.org/events/loeys-dietz-syndrome-support-group-s6f5n-hgj2t-dajhw-xkzkp-wgkds-8c2sk-2pzdx-gg5bl-e8wmk-n2e4t-lj83x-nw3dg-mezrn-arkk7-3ycbf
LDS Connect Support Group — Loeys-Dietz Syndrome Foundation
Have you been diagnosed with Loeys-Dietz syndrome? This group is a space to talk and connect with people in the community and share what you’re going through...
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https://www.loeysdietz.org/events/2022/7/50-support-group-7j8zp-e2c9l-ga2kh-n77g4-sx69h-h2hh8-8hmhd-ck69w-emhpc-zb32h-ldtjd-tm98n-5925s-32wp6-m8l8s-apcn6-b655m-lx9r6-mslnx
50+ Support Group — Loeys-Dietz Syndrome Foundation
Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so,...
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https://www.loeysdietz.org/events/2026/05/walk-for-victory-iowa
Walk for Victory - Iowa — Loeys-Dietz Syndrome Foundation
Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with...
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https://www.loeysdietz.org/events?category=Connection
Events — Loeys-Dietz Syndrome Foundation
Because the Loeys-Dietz Syndrome Foundation is a national organization, we have events occurring throughout the United States. Check out our calendar of events...
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https://www.loeysdietz.org/search
Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/en/medical-information
About Loeys-Dietz Syndrome — Loeys-Dietz Syndrome Foundation
Loeys-Dietz Syndrome is a genetic disorder that affects the connective tissue in the body. Loeys-Dietz Syndrome shows overlap with Marfan syndrome (MFS),...
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https://marfan.org/conditions/loeys-dietz/
Loeys Dietz Syndrome | Signs & Symptoms | Marfan Foundation
Nov 19, 2021 - Loeys-Dietz syndrome is a genetic disorder of the body’s connective tissue. While similar to Marfan, there are some key differences. Learn more here!
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https://loeysdietzcanada.org/
Home – Loeys-Dietz Syndrome Foundation Canada - Loeys-Dietz Syndrome Foundation Canada
Dec 15, 2025 - Connecting the Dots We believe in connecting people, symptoms, resources, and solutions. Donate KNOW THE SIGNS of LDS Our Mission The Loeys-Dietz Syndrome...
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https://www.loeysdietz.org/get-involved
Get Involved — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/events
Events — Loeys-Dietz Syndrome Foundation
Because the Loeys-Dietz Syndrome Foundation is a national organization, we have events occurring throughout the United States. Check out our calendar of events...
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https://www.loeysdietz.org/en/terms-of-use
Terms of Use — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/conferences
Conferences — Loeys-Dietz Syndrome Foundation
LDSF hosts an educational conference every two years (even years). Bi-annual conferences are a great opportunity to learn from LDS specialists and researchers,...
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https://www.loeysdietz.org/funded-grants
Funded Research Grants — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/biomarker
Novel Biomarker Research — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/en/get-involved/donations
Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/heartofgold
Heart of Gold Award — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/events/2026/05/walk-for-victory-denver
Walk for Victory - Denver — Loeys-Dietz Syndrome Foundation
Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with...
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https://www.loeysdietz.org/en/get-involved/volunteer
Volunteer — Loeys-Dietz Syndrome Foundation
Looking for ways to get involved with the Foundation. Whether it's just a few hours a month or week, learn about our committee opportunities including...
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https://www.loeysdietz.org/events/2026/05/09/walk-for-victory-ny
Walk For Victory - New York — Loeys-Dietz Syndrome Foundation
Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with...
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https://www.loeysdietz.org/about-ldsf
About LDSF — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/events?category=Virtual+Support+Groups
Events — Loeys-Dietz Syndrome Foundation
Because the Loeys-Dietz Syndrome Foundation is a national organization, we have events occurring throughout the United States. Check out our calendar of events...
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https://www.loeysdietz.org/news/category/News
News — News — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/ask
Help Center — Loeys-Dietz Syndrome Foundation
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https://www.loeysdietz.org/events/grief-and-loss-group-w6jhl-73g8e-lzdwy-l6wt5-jf3ga-5hntp-a6w48-af99h-3jlk2-h7l7m-ydxhy-by9hh-2lh8j
Coping with Grief and Loss — Loeys-Dietz Syndrome Foundation
Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking...
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https://www.loeysdietz.org/events/support-for-parentsguardians-of-children-wmarfan-lds-related-conditions-axrnp-es6mg-7z445-p9sc6-kjcee-yhxlk-h3hmd-h8pwh-54kr4-43s7f-rxnrs-bamym-z7hex-jd8fs
Support for Parents/Guardians of Children w/Marfan, LDS, related conditions — Loeys-Dietz Syndrome...
Are you are a parent or guardian of a child with Marfan syndrome, Loeys-Dietz syndrome or a related connective tissue condition? Is your child 18 years old and...
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https://www.loeysdietz.org/joining-the-marfan-foundation
Joining The Marfan Foundation — Loeys-Dietz Syndrome Foundation
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