Sponsor of the Day:
Jerkmate
https://fmsfonline.org/?about=EarlyHistory
False Memory Syndrome Foundation
The False Memory Syndrome Foundation is a 501(c)(3) organization founded in March, 1992 to seek the reasons for the spread of the false memory syndrome, to...
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https://secure.lglforms.com/form_engine/s/9lj9SvU671wcSoAI_HN6gg
CHARGE Syndrome Foundation · Membership
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https://www.barthsyndrome.org/aboutbsf/contact.html
Contact Us : About BSF : Barth Syndrome Foundation
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https://dravetfoundation.org/dsf-funded-research/
DSF Funded Research - Dravet Syndrome Foundation
Apr 8, 2026 - DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new
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https://www.barthsyndrome.org/research/clinicaltrials/studies.html
Studies : Clinical Trials and Research Studies : Research : Barth Syndrome Foundation
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https://dravetfoundation.org/patient-equity-and-inclusion-committee/
Patient Equity and Inclusion Committee - Dravet Syndrome Foundation
Apr 27, 2026 - Meet our Committee Members
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https://secure.qgiv.com/event/asf2025campaign/
ASF 2025 Annual Campaign - 2025 Alport Syndrome Foundation Annual Campaign
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https://www.prweb.com/releases/barth-syndrome-foundation-names-katherine-r-mccurdy-as-chair-to-the-board-873004356.html
Barth Syndrome Foundation Names Katherine R. McCurdy as Chair to the Board
Sep 8, 2023 - /PRNewswire-PRWeb/ -- Barth Syndrome Foundation (BSF) announced this week Katherine R. McCurdy, MBA (Kate) will assume the role of Chair of the Board of...
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https://dravetfoundation.org/opt-out-preferences/
Opt-out preferences - Dravet Syndrome Foundation
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https://dravetfoundation.org/host-an-event/galas-benefits/
Galas & Benefits - Dravet Syndrome Foundation
Feb 16, 2026 - Organizing a gala or benefit evening is an incredibly rewarding way to raise awareness about Dravet syndrome while supporting the research, programs, and
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https://www.charitynavigator.org/ein/311682518
Charity Navigator - Rating for International Rett Syndrome Foundation
International Rett Syndrome Foundation has earned a 3/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in Cincinnati, OH.
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https://dravetfoundation.org/start-here/donors/
For Donors - Dravet Syndrome Foundation
Mar 29, 2026 - DSF is deeply committed to driving meaningful progress—from funding innovative science to ensuring families have access to care and support. We know the path
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https://www.barthsyndrome.org/barthsyndrome/newlydiagnosed.html
Newly Diagnosed : Barth Syndrome : Barth Syndrome Foundation
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https://dravetfoundation.org/about-dsf/social-media-policy/
Social Media & Inclusivity Policy - Dravet Syndrome Foundation
Jan 25, 2025 - The Dravet Syndrome Foundation (DSF) Society is a 501(c)(3), nonpartisan organization that deliberately prioritizes diversity. We are committed to building an
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https://www.barthsyndrome.org/aboutbsf/smab.html
Scientific & Medical Advisory Board : About BSF : Barth Syndrome Foundation
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https://www.globaldownsyndrome.org/global-donation-form/
GLOBAL Donation Form | Global Down Syndrome Foundation
Nov 21, 2025 - GLOBAL Donation Form | Global Down Syndrome Foundation
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https://dravetfoundation.org/caregiver-resources/dsf-family-network/
DSF Family Network - Dravet Syndrome Foundation
Mar 2, 2026 - The mission of the Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research;
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https://angelman.org/resources/
Resources - Angelman Syndrome Foundation
Resources Archive - Angelman Syndrome Foundation
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https://dravetfoundation.org/about-dsf/our-team/
Our Team - Dravet Syndrome Foundation
Apr 22, 2026 - Learn more about our Staff and Board Members
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https://dravetfoundation.org/about-dsf/
About DSF - Dravet Syndrome Foundation
Apr 29, 2026 - The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research;
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https://dravetfoundation.org/dsf-funded-research/dsf-research-grant-programs/
DSF Research Grant Programs - Dravet Syndrome Foundation
Dec 4, 2025 - DSF’s Research Grant Programs offers funding for research directly related to Dravet syndrome and associated disorders.
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https://dravetfoundation.org/hcp-resources/
Healthcare Provider Resources - Dravet Syndrome Foundation
Apr 29, 2026 - Resources for professionals caring for infants, children, and adults with Dravet syndrome.
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https://www.barthsyndrome.org/newsevents/newsletter.html
Newsletter : News & Events : Barth Syndrome Foundation
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https://dravetfoundation.org/caregiver-stories/
Caregiver Stories - Dravet Syndrome Foundation
Dec 19, 2025 - These Dravet syndrome caregivers have a lot to share. Read about their journeys and advice in their Dravet stories below.
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https://www.barthsyndrome.org/aboutbsf/connect.html
Get connected with Barth Syndrome Foundation
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https://www.loeysdietz.org/
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical...
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https://www.chargesyndrome.org/for-families/behavior/
Behavior « Charge Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE and their families; to gather, develop, maintain and distribute...
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https://dravetfoundation.org/events/
Events - Dravet Syndrome Foundation
Apr 1, 2026 - Join us for an upcoming educational or fundraising event in your area!
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https://dravetfoundation.org/dsf-funded-research/gene-therapy-for-dravet-syndrome/
Gene Therapy for Dravet Syndrome - Dravet Syndrome Foundation
Mar 6, 2026 - Current Progress on a Gene Therapy for Dravet SyndromeLast Updated August 2024
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https://www.bonfire.com/store/official-asf-merchandise/
Official ASF Merchandise | Support the Alport Syndrome Foundation today! | Bonfire
Check out Official ASF Merchandise on Bonfire and shop official merchandise today! Featuring limited edition custom apparel, printed with care in the USA just...
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https://www.rls.org/aboutus
About Us - Restless Legs Syndrome Foundation
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https://www.barthsyndrome.org/advocacy/fda-elamipretide-updates.html
FDA Elamiptetide Updates : Advocacy : Barth Syndrome Foundation
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https://marfan.org/conditions/marfan-syndrome/
Marfan Syndrome - Marfan Foundation
Oct 6, 2022 - What are the Key Features of Marfan Syndrome? Marfan syndrome and related conditions affect the body’s connective tissue. Connective tissue holds the body...
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https://www.rettsyndrome.org/about-rett-syndrome/males-with-rett/
Males with Rett | International Rett Syndrome Foundation
Mar 27, 2026 - Previously thought to only affect females, Rett syndrome can also affect some males.
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https://www.rettsyndrome.org/industry-partners/
Industry Partners | International Rett Syndrome Foundation
Oct 1, 2025 - Work with the IRSF to accelerate your company’s research development to treat Rett.
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https://www.rettsyndrome.org/families/
Families | International Rett Syndrome Foundation
Sep 2, 2025 - Explore resources, community connections, and ways to support families and caregivers impacted by Rett syndrome.
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https://www.rettsyndrome.org/about-irsf/our-story/
Our Story | International Rett Syndrome Foundation
Feb 11, 2026 - We’ve been transforming the lives of those living with Rett syndrome for decades. Learn all about IRSF’s history of delivering results here.
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https://www.barthsyndrome.org/waystohelp/donate/monthly-giving.html
monthly giving : Donate : Ways to Help : Barth Syndrome Foundation
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https://www.chargesyndrome.org/overview/diagnosis-testing-recurrence/
Genetics: Diagnosis, Testing & Recurrence « Charge Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE and their families; to gather, develop, maintain and distribute...
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https://www.chargesyndrome.org/
Charge Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE and their families; to gather, develop, maintain and distribute...
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https://dravetfoundation.org/caregiver-resources/videos/
Educational Videos - Dravet Syndrome Foundation
Mar 18, 2026 - DSF offers a variety of educational webinars and videos to help families and professionals to navigate a diagnosis of Dravet syndrome.
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CHARGE Syndrome Foundation · Donation
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https://dravetfoundation.org/what-is-dravet-syndrome/
What is Dravet syndrome - Dravet Syndrome Foundation
Mar 18, 2026 - What is Dravet Syndrome? Dravet syndrome is a rare form of intractable epilepsy that begins in infancy and significantly impacts individuals throughout their...
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https://www.barthsyndrome.org/aboutbsf/legalfinancial/
Legal Documents : Legal & Financial : About BSF : Barth Syndrome Foundation
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https://www.barthsyndrome.org/barthsyndrome/videos/
Barth Syndrome Foundation Educational Recordings
Educational video recordings and webinars
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https://www.charitynavigator.org/ein/593092842
Charity Navigator - Rating for Angelman Syndrome Foundation
Angelman Syndrome Foundation has earned a 4/4 Star rating on Charity Navigator. This Educational Organization is headquartered in Fishers, IN.
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https://dravetfoundation.org/gd-event-v/2026-a-cake-4-a-cure-2026/
2026 A Cake 4 a Cure (2026) - Dravet Syndrome Foundation
2026 is our 13th year of hosting A Cake 4 a Cure! Over the years we’ve raised almost $30,000 for the Dravet Syndrome Foundation (DSF) in honor of Luella to...
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https://www.barthsyndrome.org/aboutbsf/legalfinancial/boardminutes.html
Board Minutes : Legal & Financial : About BSF : Barth Syndrome Foundation
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https://www.rettsyndrome.org/get-involved/
Get Involved | International Rett Syndrome Foundation
Sep 2, 2025 - IRSF Get Involved Join the International Rett Syndrome Foundation (IRSF) in improving lives and advancing treatments for Rett syndrome. Whether through...
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https://www.rettsyndrome.org/
Research. Family Support. Advocacy. | International Rett Syndrome Foundation
Aug 25, 2025 - IRSF is the leading research, family support, and advocacy organization for Rett syndrome, transforming lives every day in our fight to treat and cure the...
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https://www.barthsyndrome.org/aboutbsf/legalfinancial/annualreportsfinancials.html
Annual Reports & Financials : Legal & Financial : About BSF : Barth Syndrome Foundation
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https://give.org/charity-reviews/other-charitable-organizations/barth-syndrome-foundation-in-larchmont-ny-9999-1625
Barth Syndrome Foundation charity review & reports by Give.org – Give.org
View the complete charity accountability report for Barth Syndrome Foundation. Status: Accredited Charity
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https://dravetfoundation.org/what-is-dravet-syndrome/comorbidities/
Comorbidities - Dravet Syndrome Foundation
Mar 3, 2025 - An overview of some of the comorbid conditions and symptoms that are often associated with Dravet syndrome
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https://www.pfsfoundation.org/pfs-by-the-numbers/
PFS by the Numbers – The Post-Finasteride Syndrome Foundation
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https://fmsfonline.org/
False Memory Syndrome Foundation
The False Memory Syndrome Foundation is a 501(c)(3) organization founded in March, 1992 to seek the reasons for the spread of the false memory syndrome, to...
false memorysyndrome foundation
https://www.globaldownsyndrome.org/photos-and-videos/
Photos and Videos | Global Down Syndrome Foundation
Sep 12, 2023 - Dedicated to significantly improving the lives of people with Down Syndrome through RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY
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https://secure.lglforms.com/form_engine/s/ICKddgOM_-waHMVwBRTYwA
CHARGE Syndrome Foundation · eNews signup
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https://dravetfoundation.org/caregiver-resources/
Caregiver Resources - Dravet Syndrome Foundation
Apr 29, 2026 - DSF provides many caregiver resources for the Dravet syndrome community. We wan't you to know you're not alone.
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https://www.barthsyndrome.org/barthsyndrome/
What is Barth Syndrome? : Barth Syndrome : Barth Syndrome Foundation
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https://dravetfoundation.org/caregiver-resources/caregiver-connect/
Caregiver Connect - Dravet Syndrome Foundation
Mar 25, 2026 - Caregiver Connect is a unique program with a focus on helping families manage the caregiver burden and stress that accompanies caring for a child or adult
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https://www.barthsyndrome.org/waystohelp/donate-home.html
Donate : Ways to Help : Barth Syndrome Foundation
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Index : Tools for School/ Educators : Family Resources : Barth Syndrome : Barth Syndrome Foundation
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https://angelman.org/events/jsf/jet-engine:event-list/meta/event_type!is_custom_checkbox:Conferences%20%26%20Symposia/
Events - Angelman Syndrome Foundation
Events Archive - Angelman Syndrome Foundation
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Contact - Angelman Syndrome Foundation
Sep 1, 2025 - We’re always happy to hear from you!
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https://dravetfoundation.org/donate/ways-to-give/
Ways to Give - Dravet Syndrome Foundation
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https://dravetfoundation.org/caregiver-resources/day-of-dravet/
Day of Dravet - Dravet Syndrome Foundation
Jan 11, 2026 - DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one
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https://dravetfoundation.org/contact-us/
Contact Us - Dravet Syndrome Foundation
Mar 4, 2026 - Have an idea or a need? We want to know how we can help or what suggestions you have.
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https://secure.qgiv.com/event/asf2025campaign/account/2192882/
2025 Alport Syndrome Foundation Annual Campaign
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https://angelman.org/resources/filter/meta/topics!is_custom_checkbox:Adults/
Resources - Angelman Syndrome Foundation
Resources Archive - Angelman Syndrome Foundation
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Charity Navigator - Rating for Dravet Syndrome Foundation Inc.
Dravet Syndrome Foundation Inc. has earned a 4/4 Star rating on Charity Navigator. This Charitable Organization is headquartered in CHERRY HILL, NJ.
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https://www.fusfoundation.org/diseases-and-conditions/tourette-syndrome/
Tourette Syndrome - Focused Ultrasound Foundation
Sep 22, 2025 - Learn about clinical trials that are investigating the use of focused ultrasound to treat Tourette Syndrome
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https://www.pfsfoundation.org/contact/
Contact the PFS Foundation – The Post-Finasteride Syndrome Foundation
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https://csrf.net/
CSRF - Cushing's Support & Research Foundation - Cushing's Syndrome Resources
Cushing's Syndrome Resources
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https://moebiussyndrome.org/moebius-syndrome-awareness-day/
Moebius Syndrome Awareness Day - Moebius Syndrome Foundation
Mar 25, 2026 - Moebius Syndrome Awareness Day is an annual campaign held on January 24 to raise awareness and support about Moebius syndrome.
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https://www.fraxa.org/category/current-research-grants/
Current Research Grants Archives • FRAXA Research Foundation - Finding a Cure for Fragile X Syndrome
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https://www.fusfoundation.org/diseases-and-conditions/respiratory-distress-syndrome/
Respiratory Distress Syndrome - Focused Ultrasound Foundation
Aug 15, 2025 - Learn how focused ultrasound, a noninvasive therapeutic technology, is being investigated to address Respiratory Distress Syndrome
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https://dravetfoundation.org/what-is-dravet-syndrome/dravet-adult-resources/
Dravet Syndrome in Adults - Dravet Syndrome Foundation
Apr 29, 2026 - Adults living with Dravet syndrome (DS) require long term complex adult neurology care, as well as community support. Top community needs include:
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https://www.fightingblindness.org/diseases/bardet-biedl-syndrome-bbs
What is Bardet Biedl Syndrome? — Foundation Fighting Blindness
What is Bardet Biedl Syndrome? Learn about the signs and symptoms of the complex disorder Bardet Biedl Syndrome, as well as how to live with the disease.
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https://dravetfoundation.org/events/awareness-month/
Dravet Syndrome Awareness Month - Dravet Syndrome Foundation
Apr 16, 2026 - Create your custom social media profile picture to raise awareness! Use your profile picture to show support for DSF during Dravet Syndrome Awareness Month.
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https://www.rettsyndrome.org/taysha-rett-syndrome-community-update/
Taysha Rett Syndrome Community Update | International Rett Syndrome Foundation
Dec 14, 2024 - From IRSF: 2022 is a big year for Rett syndrome: the return of an in-person Family Summit, a successful EL-PFDD meeting to share the voice of the community...
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https://connect.cureangelman.org/ways-to-give/
Ways to Give to FAST - FAST Foundation: Finding a Cure for Angelman Syndrome
Jan 21, 2026 - Ways to Give Donate Online Each dollar fuels research, speeds breakthroughs, and gives real hope to families with Angelman syndrome. Your support keeps the...
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