Sponsor of the Day:
Jerkmate
https://www.shemedia.com/video/v/voices-of-resilience-women-leading-change-in-the-rare-disease-community-moderated-by-katie-couric
Voices of Resilience: Women Leading Change in the Rare Disease Community | Moderated by Katie...
Rare diseases impact millions—but finding treatments requires extraordinary resilience. In this inspiring panel moderated by Katie Couric, Susan Dando,...
women leading changerare diseasevoicesresiliencecommunity
https://www.takeda.com/our-impact/our-stories/partnering-with-rare-disease-community/
Takeda’s Support for the Rare Disease Community
Feb 18, 2026 - Learn how Takeda is collaborating with advocacy organizations and the community to accelerate diagnosis and enhance equitable access to care for those impacted...
rare diseasesupportcommunity
https://hdsa.org/news/37th-annual-hdsa-convention-in-atlanta-brings-the-global-huntingtons-disease-community-together-again/
37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together...
Jun 29, 2022 - 37TH ANNUAL HDSA CONVENTION IN ATLANTA BRINGS THE GLOBAL HUNTINGTON’S DISEASE COMMUNITY TOGETHER AGAIN New York, NY (June 14th, 2022) – On June 9th-11th, the...
37th annualdisease communityhdsaconventionatlanta
https://www.genome.gov/news/news-release/nhgri-project-creates-new-educational-materials-for-sickle-cell-disease-community
NHGRI project creates new educational materials for sickle cell disease community
NHGRI researchers have released new educational materials to help the sickle cell disease community learn about gene therapies for the disease.
sickle cell diseasecreates neweducational materialsnhgriproject
https://www.news-medical.net/news/20260409/Grant-supports-community-based-approach-to-heart-disease-prevention.aspx
Grant supports community-based approach to heart disease prevention
Heart disease and high blood pressure affect millions of Georgians. Yet, for many people, improving heart health has as much to do with finding basic resources...
community based approachgrant supportsheart diseaseprevention
https://www.techtarget.com/healthtechanalytics/feature/How-a-rural-community-hospital-deploys-AI-to-detect-heart-disease
How a rural community hospital deploys AI to detect heart disease | TechTarget
Wayne General Hospital has implemented an AI-based platform to help detect heart issues early among its rural population and boost revenue amid funding cuts.
rural communitydeploys aidetect hearthospitaldisease
https://www.researchprotocols.org/2026/1/e82663
JMIR Research Protocols - Community Health Worker–Integrated Model for Sickle Cell Disease...
Background: Sickle cell disease (SCD) is a chronic inherited blood disorder that disproportionately affects African Americans. Managing SCD is complex, often...
jmir research protocolssickle cell diseasecommunity healthmodel