https://www.sicklecelldisease.org/advocacy/ambassadors-celebrity-champions/dexter-darden/
Jan 6, 2023 - “I look forward to using my platform to engage a broad audience about how others can get involved in our worthy cause.” –DEXTER The talented actor and...
sickle cell diseasedexterdardenassociationamerica
https://www.sicklecelldisease.org/get-involved/events/advocacy-day/
May 14, 2025 - SCDAA’s 2025 Advocacy Days were held on May 7-8 in Washington, D.C.! In May, representatives from our member organizations from across the country...
sickle cell diseaseadvocacydaysassociationamerica
https://www.sicklecelldisease.org/advocacy/ambassadors-celebrity-champions/ayana-johnson/
May 10, 2022 - Ayana Lee Johnson is our 2021-2023 SCDAA National Teen Ambassador. She is determined to fight for other SCD warriors and raise awareness of what it is like to...
sickle cell diseaseayanajohnsonassociationamerica
https://www.genome.gov/news/news-release/nhgri-project-creates-new-educational-materials-for-sickle-cell-disease-community
NHGRI researchers have released new educational materials to help the sickle cell disease community learn about gene therapies for the disease.
sickle cell diseaseeducational materialsnhgriprojectcreates
https://www.sicklecelldisease.org/workplace-giving/
Apr 9, 2024 - Workplace giving is a simple and effective way for employees to support the SCDAA’s mission. Your gift helps us in providing support services throughout the...
sickle cell diseaseworkplace givingassociationamericainc
https://www.sicklecelldisease.org/2022/12/07/marac-statement-on-influenza/
Dec 7, 2022 - December 6, 2022 — The Sickle Cell Disease Association of America (SCDAA) Medical and Research Advisory Committee (MARAC) shares the following: For...
sickle cell diseasestatementinfluenzaassociationamerica
https://www.sicklecelldisease.org/2023/04/06/june-19-2023-is-officially-sickle-cell-awareness-day-in-maryland/
Apr 6, 2023 - Maryland Governor Wes Moore has signed a proclamation to make June 19, 2023, Sickle Cell Awareness Day! This recognition goes a long way in raising awareness...
sickle cellawareness dayjuneofficially
https://www.redcrossblood.org/donate-blood/blood-types/diversity/african-american-blood-donors/history-of-sickle-cell-disease.html
Sickle cell disease is an enduring — and often invisible — health disparity in the U.S. Despite the discovery of the disease in western medicine more than a...
sickle cell diseasered crosshistoryblood
https://levinlaw.com/oxbryta-lawsuits/
Jul 6, 2025 - Oxbryta lawsuits stem from safety risks like vaso-occlusive crises, injuries, and deaths linked to the drug. Our lawyers are investigating cases.
sickle cell diseaselawsuitsdruginjuriesjuly
https://discover-now.co.uk/case-study/retrospective-analysis-of-the-burden-of-vaso-occlusive-events-experienced-by-sickle-cell-disease-scd-patients/
Oct 31, 2023 - Quantifying the frequency of VOCs in patients with SCD over 16 years of age and the healthcare resource utilisation of this group across North West London’s...
retrospectiveanalysisburdeneventsexperienced
https://www.sicklecelldisease.org/2025/02/07/black-history-month-2025-dr-charles-f-whitten/
Feb 7, 2025 - Our first #SCDHistoryHighlight for Black History Month brings attention to the life and work of SCDAA co-founder Dr. Charles F. Whitten. Dr. Whitten was a...
black history monthsickle celldrcharlesf
https://www.sicklecelldisease.org/sickle-cell-health-and-disease/types/
Jan 14, 2022 - Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly...
sickle cell diseasescdassociation
https://www.biointeractive.org/classroom-resources/population-genetics-and-sickle-cell-disease-focus-selection
Population Genetics and Sickle Cell Disease: Focus on Selection | In this activity, students interpret simulation data to explore how natural selection affects...
sickle cell diseasepopulationgeneticsfocusselection
https://www.sicklecelldisease.org/news/
Aug 4, 2025 - Sickle Cell Disease Association of America, Inc. (SCDAA) is the leader in promoting and advancing initiatives focused on people affected by sickle cell...
sickle cell diseasenewsroomassociationamericainc
https://www.sicklecelldisease.org/2025/01/02/in-memory-of-frank-reddick/
Jan 2, 2025 - It is with great sadness that SCDAA shares the news of the passing of Frank Reddick on Dec. 23, 2024. Frank was the president and CEO of the Sickle Cell...
sickle cell diseasememoryfrankreddickassociation
https://www.health.com/sickle-cell-disease-8679127
Sickle cell disease (SCD) is an inherited blood disorder that affects red blood cells. Common symptoms include anemia, fatigue, severe pain, and swelling.
sickle cell diseasescdsymptomscausestreatment
https://www.sicklecelldisease.org/sickle-cell-health-and-disease/faqs/
Jul 9, 2018 - What is sickle cell disease? Sickle cell disease is an inherited disorder that affects red blood cells. People with sickle cell disease have red blood cells...
sickle cell diseasefaqsassociationamericainc
https://www.sicklecelldisease.org/2024/07/17/who-publishes-new-guidelines-for-scd-management-in-africa/
Jul 17, 2024 - The World Health Organization (WHO) recently published a comprehensive package of interventions for sickle cell disease management in Africa. The package...
publishesnewguidelinesscdmanagement
https://www.sicklecelldisease.org/donate-blood-for-sickle-cell/
Feb 1, 2024 - Visit the links below to find a place to donate near you. DonatingBlood.Org | American Red Cross | America’s Blood Centers If you’re looking to...
sickle cell diseasedonate bloodassociation
https://www.statnews.com/2025/11/13/agios-pharma-sickle-cell-thalassemia/
Nov 13, 2025 - The company is completing a late-stage study of its drug Pyrukynd, with top-line results to be reported next month.
previewpharmaceuticalsstudysickle
https://www.sicklecelldisease.org/advocacy/find-your-representative/
Jul 9, 2018 - It is important for our elected officials to hear from their constituents and others who have expertise on an issue. Meeting and calling your legislators and...
sickle cell diseasefindrepresentativeassociationamerica
https://blogs.webmd.com/sickle-cell-disease/default.htm
Patients share their experiences living with sickle cell disease
sickle cell diseasewebmdblog
https://www.sicklecelldisease.org/2022/01/04/in-memory-of-carlton-haywood-jr-ph-d/
Jan 4, 2022 - We are devastated to share the news of the passing of Carlton Haywood, Jr., Ph.D., on December 31, 2021. Carlton was an accomplished academic whose research...
sickle cellmemorycarltonjrph
https://www.sicklecelldisease.org/2025/05/16/sickle-cell-disease-association-names-membership-manager/
May 16, 2025 - The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell disease,...
sickle cell diseaseassociationnamesmembershipmanager
https://www.sicklecelldisease.org/2022/12/02/nfl-players-spotlight-sickle-cell-disease-association-of-america/
Dec 2, 2022 - The NFL’s My Cause My Cleats campaign features players showcasing important causes on their cleats each year during Week 13 games in early December. San...
sickle cell diseasenflplayersspotlightassociation
https://www.blood.ca/en/stories/opportunity-to-dream-one-young-woman-sickle-cell-disease
Stem cells are giving health and hope to more patients than ever, including some with sickle cell disease.
sickle cell diseaseyoung womanopportunity
https://minorityhealth.hhs.gov/sickle-cell-disease-topic-guide
According to the CDC, sickle cell disease (SCD) is “a group of inherited red blood cell disorders. Red blood cells contain hemoglobin, a protein that carries...
sickle cell diseaseminority healthtopicguideoffice
https://www.sicklecelldisease.org/scdaa-golf-classic/
Nov 7, 2025 - The inaugural SCDAA Golf Classic — a signature tournament uniting purpose, play and community to support the fight against sickle cell disease — was...
sickle cell diseasegolf classicassociationamericainc
https://www.sicklecelldisease.org/our-initiatives/the-power-project/
Sep 24, 2025 - P.O.W.E.R. ECHO Project Community Health Worker (CHW) Training Cost: Free Monthly sessions 12-1 p.m. EST Zoom online training The P.O.W.E.R. ECHO Project...
sickle cellpwrecho
https://www.sicklecelldisease.org/2022/06/22/memorial-service-for-dr-kwaku-ohene-frempong/
Jun 22, 2022 - Dr. Kwaku Ohene-Frempong, a visionary sickle cell doctor and advocate, passed away on May 7, 2022, at 76. A memorial service to honor his life has been planned...
sickle cell diseasememorial servicedr
https://www.sicklecelldisease.org/2023/10/25/in-memory-of-dr-lennette-benjamin/
Oct 25, 2023 - The Sickle Cell Disease Association of America, Inc., (SCDAA) is saddened to hear the news of the passing of Dr. Lennette Benjamin. Dr. Benjamin was a...
sickle cell diseasememorydrbenjaminassociation
https://www.sicklecelldisease.org/treatments/
May 14, 2025 - Medical Problems Sickle cells are destroyed rapidly in the body of people with the disease causing anemia, jaundice and the formation of gallstones. The sickle...
sickle cell diseasecomplicationsamptreatmentsassociation
https://www.sicklecelldisease.org/advocacy/ambassadors-celebrity-champions/markus-golden/
Jan 14, 2022 - “Together, we can break through sickle cell disease!” –MARKUS Known as one of the National Football League’s most punishing pass rushers, Arizona...
sickle cell diseasemarkusgoldenassociationamerica
https://www.sicklecelldisease.org/2023/02/22/blackhistorymonthheroes-carlton-haywood-jr/
Feb 22, 2023 - SCDAA’s #BlackHistoryMonthHeroes highlights prominent Black members of our community who have made their mark on our history. Stay tuned this month to learn...
sickle cell diseasecarltonjrassociationamerica
https://www.sicklecelldisease.org/2023/03/09/womens-history-month-dr-angella-dorothea-ferguson/
Feb 23, 2024 - This #WomensHistoryMonth, we are highlighting prominent women who have made lasting contributions to the SCD community. #WomenInMedicine #WomensHistoryMonth...
womenhistorymonthdrangella
https://www.biointeractive.org/classroom-resources/population-genetics-and-sickle-cell-disease-mechanisms-evolution
Population Genetics and Sickle Cell Disease: Mechanisms of Evolution | In this activity, students run simulations to explore how natural selection, genetic...
sickle cell diseasepopulationgeneticsmechanismsevolution
https://www.sicklecelldisease.org/our-initiatives/community-health-worker-training/
Sep 10, 2025 - NEW: SCDAA’s CHW Training Accredited by the State of Maryland Training Programs Cohort National Community Health Worker Training Program Our training...
sickle cell diseasecommunity healthworkertrainingassociation
https://www.sicklecelldisease.org/advocacy/congressional-sickle-cell-caucus/
Jul 9, 2018 - Congressional Sickle Cell Caucus In 2014, SCDAA announced the formation of the Sickle Cell Disease (SCD) Congressional Caucus. This legislative milestone is...
sickle cellcongressionalcaucusdiseaseassociation
https://www.scientificamerican.com/article/new-sickle-cell-treatments-highlight-the-power-of-patient-perspectives/
Nov 5, 2024 - Illuminating the experience of people living with sickle cell could improve patients’ lives and enhance all of medicine
sickle cell diseasecuresarrivepainfuljourney
https://www.sicklecelldisease.org/support-and-community/find-member-organizations/
Nov 10, 2025 - View a full directory of our member organizations. Alabama North Alabama Sickle Cell Foundation – Huntsville SCDAA-West Alabama Chapter – Northport Sickle...
sickle cell diseasefind memberorganizationsassociationamerica
https://www.genome.gov/Genetic-Disorders/Sickle-Cell-Disease
Sickle cell disease is a group of inherited red blood cells disorders.
sickle cell disease
https://www.sicklecelldisease.org/2025/04/24/scdaa-names-events-manager/
Apr 24, 2025 - The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell disease,...
sickle cell diseaseevents managernamesassociationamerica
https://www.sicklecelldisease.org/mission/
Jan 17, 2019 - Mission To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public...
sickle cell diseasemissionampvisionassociation
https://www.sicklecelldisease.org/sickle-cell-health-and-disease/complications/
Jul 9, 2018 - Sickle Cell trait (AS) is an inherited condition in which both hemoglobin A and S are produced in the red blood cells. Sickle cell trait is not a type of...
sickle celltraitsctdiseaseassociation
https://www.sicklecelldisease.org/2022/05/10/in-memory-of-dr-kwaku-ohene-frempong/
May 10, 2022 - We are devastated to learn of the death of Dr. Kwaku Ohene-Frempong on Saturday, May 7, 2022. Dr. Ohene-Frempong was a true leader in the sickle cell community...
sickle cell diseasememorydr
https://www.sicklecelldisease.org/2023/03/22/womens-history-month-dr-yvette-francis-mcbarnette/
Mar 23, 2023 - This #WomensHistoryMonth, we are highlighting prominent women who have made lasting contributions to the SCD community. #WomenInMedicine #WomensHistoryMonth ...
sickle cell diseasehistorymonthdryvette
https://www.sicklecelldisease.org/2024/08/19/chw-award-2024/
Aug 19, 2024 - CLICK HERE TO LEARN MORE AND MAKE A NOMINATION Do you know a community health worker who exemplifies excellence and commitment to the sickle cell community?...
sickle cell diseasechwpr
https://www.sicklecelldisease.org/2021/12/09/scdaa-names-regina-hartfield-ceo/
Dec 29, 2021 - The Sickle Cell Disease Association of America (SCDAA) named Regina Hartfield as CEO and president effective Jan. 14, 2022. Hartfield has served on the...
sickle cell diseasenamesreginaceoassociation
https://www.k12dive.com/news/sickle-cell-disease-epilepsy-cancer-student-civil-rights-schools/719599/
A new set of resources from the U.S. Department of Education follows others about asthma, diabetes, food allergies, and GERD or GER.
sickle cell diseaseepilepsycancercouldtrigger
https://milwaukeenns.org/2025/10/09/true-definition-of-strength-how-this-milwaukee-man-fights-through-sickle-cell-disease/
Oct 10, 2025 - James Griffin has battled sickle cell since childhood. After facing misconceptions and challenges, he shares his story to inspire others.
sickle cell diseasemilwaukeemanfights
https://www.sicklecelldisease.org/2023/02/13/blackhistorymonthheroes-dr-kwaku-ohene-frempong/
Feb 13, 2023 - SCDAA’s #BlackHistoryMonthHeroes highlights prominent Black members of our community who have made their mark on our history. Stay tuned this month to learn...
sickle cell diseasedrassociation
https://www.healthshots.com/hindi/disease/sickle-cell-disease-symptoms-causes-treatment-and-frequently-asked-questions/
Jun 19, 2024 - सिकल सेल रोग in Hindi - सिकल सेल रोग क्या है? सिकल सेल रोग के प्रकार,...
sickle cell disease
https://www.sicklecelldisease.org/get-involved/events/annual-national-convention/
Nov 14, 2025 - See the Photos from the 2025 Convention! Our 53rd Annual National Convention was held October 15 to 18 at the Loews-Chicago O’Hare Hotel in Rosemont,...
sickle cell diseasenational conventionannualassociationamerica
https://www.sicklecelldisease.org/scdcares/
Nov 7, 2025 - Welcome to the SCD C.A.R.E.S. (Collaboration of Advocates for Research, Education and Science) Consortium! The mission of this initiative is to raise awareness...
sickle cell diseasescdr
https://www.sicklecelldisease.org/advocacy/ambassadors-celebrity-champions/london-knight/
Jan 14, 2022 - “Keep going, don’t ever give up. Everything you dream of will come to you.” –LONDON London Knight was born June 16 in San Diego, California, and she...
sickle cell diseaselondonknightassociationamerica
https://www.sicklecelldisease.org/2025/05/28/in-memory-of-james-e-rawlings/
Jun 2, 2025 - With great sadness, SCDAA shares the news of the passing of James E. Rawlings, president and CEO of Michelle’s House (SCDAA, CT), on Sunday, May 25. In...
sickle cell diseasememoryjamesrawlingsassociation
https://www.dentaleconomics.com/science-tech/article/55316547/oral-manifestations-of-sickle-cell-disease-implications-for-restorative-cosmetic-and-prosthetic-dental-management
Learn how sickle cell disease (SCD) affects oral health and discover key strategies for safe and effective restorative, cosmetic, and prosthetic dental care...
sickle cell diseaseoralmanifestationsimplicationsrestorative
https://www.sicklecelldisease.org/2023/03/30/scdaa-hires-member-coordinator/
Mar 30, 2023 - The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell disease, named...
sickle cell diseasehiresmembercoordinatorassociation