ern reconnet european - Robuta Search

https://reconnet.ern-net.eu/2026/03/02/erns-and-rare-diseases-communication-resources-from-dg-sante/ ERNs and Rare Diseases: Communication resources from DG SANTE - ERN ReCONNET | European Reference... Mar 2, 2026 - On the occasion of Rare Disease Day, DG SANTE has prepared a comprehensive communication package to support awareness and engagement around rare diseases and... ern reconnet european rare diseases communication resources dg sante https://reconnet.ern-net.eu/epag-camelia-bucsa/ ePAG CAMELIA BUCSA - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european reference network epag camelia bucsa https://reconnet.ern-net.eu/covid-19-who/ COVID-19 WHO - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective covid rare https://reconnet.ern-net.eu/our-network-members/ Our Network Members - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european network members reference rare complex https://reconnet.ern-net.eu/disease-rp/ Disease RP - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective disease rp https://reconnet.ern-net.eu/cpgs-clinical-tools/ CPGS & Clinical Tools - ERN ReCONNET | European Reference Network on Rare and Complex Connective... May 28, 2022 - In 2018, the European Commission launched the Tender No SANTE/2018/B3/030 European Reference Network: Clinical Practice Guidelines (CPGs) and Clinical Decision... ern reconnet european reference network clinical tools rare https://reconnet.ern-net.eu/event-and-media-newsletter/ event-and-media-newsletter - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european media newsletter reference network event rare https://reconnet.ern-net.eu/epag-andersen/ Jeanette Andersen - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective jeanette andersen https://reconnet.ern-net.eu/patients-organisations-no/ Patients Organisations NO - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network patients organisations rare https://reconnet.ern-net.eu/patients-organisations-igg4/ Patients Organisations IgG4 - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network patients organisations rare https://reconnet.ern-net.eu/our-network/sp/ Supporting Partners - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european reference network supporting partners rare https://reconnet.ern-net.eu/disease-mctd/ Disease MCTD - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective disease mctd https://reconnet.ern-net.eu/about-cpgs/ about CPGs - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... Aug 20, 2020 - Let's start with the ERN ReCONNET webinar on Clinical Practice Guidelines and the related infographic. Then you could check out the Supplement on State of the... ern reconnet european reference network complex connective rare tissue https://reconnet.ern-net.eu/ern-reconnet-documents/ Documents - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective documents rare https://reconnet.ern-net.eu/patients-info-on-erns/ Patients Info on ERNs - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european reference network patients info rare https://reconnet.ern-net.eu/event-and-media/ Events & Media - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european events media reference network complex connective rare https://reconnet.ern-net.eu/patients-organisations-aps/ Patients Organisations APS - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network patients organisations aps https://reconnet.ern-net.eu/2024/01/10/ec-eurordis-documents-in-support-of-patients/ EC and EURORDIS documents in support of patients - ERN ReCONNET | European Reference Network on... Jan 10, 2024 - Here is a list of relevant documents in support of rare/complex patients developed by EURORDIS and the European Commission: Thinking to apply as an ePAG... ern reconnet european reference network eurordis documents support https://reconnet.ern-net.eu/2023/10/30/erns-a-flagship-eu-action-for-patients-with-rare-diseases/ ERNs: A flagship EU action for patients with rare diseases - ERN ReCONNET | European Reference... Oct 31, 2023 - In the European Union (EU) alone, up to 36 million people are living with one of the over 6,000 distinct rare diseases. Each rare disease, however, has a low... ern reconnet european rare diseases flagship action patients https://reconnet.ern-net.eu/wg-research-and-quality-of-care/ WG Research and Quality of care - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network wg research quality https://reconnet.ern-net.eu/patients-organisations-ss/ Patients Organisations SjD - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network patients organisations sjd https://reconnet.ern-net.eu/subscribe_our_newsletter/ Subscribe_our_Newsletter - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european reference network subscribe newsletter rare https://reconnet.ern-net.eu/epag-jamy-scheerhoorn-pullen/ Jamy Scheerhoorn-Pullen - ERN ReCONNET | European Reference Network on Rare and Complex Connective... Jul 4, 2025 - Watch all ERN RECONNET WEBINARS ON APS ern reconnet european reference network jamy pullen rare https://reconnet.ern-net.eu/cross-border-healthcare/ Cross-border healthcare - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european cross border reference network healthcare rare https://reconnet.ern-net.eu/patients-organisations-rp/ Patients Organisations RP - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network patients organisations rp https://reconnet.ern-net.eu/our-activities/ Our Activities - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective activities rare https://reconnet.ern-net.eu/covid-19-ecdc/ COVID-19 ECDC - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective covid ecdc https://reconnet.ern-net.eu/covid-19-acr/ COVID-19 ACR - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective covid acr https://reconnet.ern-net.eu/event-and-media-news/ Events & Media News - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european events media reference network news rare https://reconnet.ern-net.eu/disease-eds/ Disease-EDS - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective disease eds https://reconnet.ern-net.eu/update-on-covid-19-outbreak/ Update on COVID-19 outbreak - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network update covid outbreak https://reconnet.ern-net.eu/epag-cornet/ Alain Cornet - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective alain cornet https://reconnet.ern-net.eu/epag-aguilera/ Silvia Aguilera - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective silvia aguilera https://reconnet.ern-net.eu/disease-sle/ Disease-SLE - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective disease sle https://reconnet.ern-net.eu/epag-patsalias-alexander/ Patsalias Alexander - ERN ReCONNET | European Reference Network on Rare and Complex Connective... Jul 8, 2025 - Watch all ERN RECONNET WEBINARS ON IgG4 ern reconnet european reference network alexander rare complex https://reconnet.ern-net.eu/disease-igg4/ Disease IgG4 - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective disease rare https://reconnet.ern-net.eu/epag-matthews/ Lisa Matthews - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective lisa matthews https://reconnet.ern-net.eu/event-and-media-dissemination-materials/ Events & Media Dissemination materials - ERN ReCONNET | European Reference Network on Rare and... ern reconnet european events media reference network dissemination materials https://reconnet.ern-net.eu/event-and-media-video/ Event & Media Video - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european event media reference network video rare https://reconnet.ern-net.eu/epag-vieira/ Ana Vieira - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective ana vieira https://reconnet.ern-net.eu/epag-silke-schluter/ epag Silke Schlüter - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european reference network epag silke rare https://reconnet.ern-net.eu/covid-19-eurordis/ COVID-19 EURORDIS - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective covid eurordis https://reconnet.ern-net.eu/2024/09/10/newborn-screening-nbs-awareness-month/ Newborn Screening (NBS) Awareness Month - ERN ReCONNET | European Reference Network on Rare and... Sep 10, 2024 - In the US, during 1950s-1960s Dr. Robert Guthrie developed a paper blood spot card test as a new assay to screen newborns for phenylketonuria, PKU: The Newborn... ern reconnet european newborn screening awareness month reference network nbs https://reconnet.ern-net.eu/ssc-lv/ SSc lay version - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective ssc lay https://reconnet.ern-net.eu/epag-galetti/ Ilaria Galetti - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective ilaria rare https://reconnet.ern-net.eu/2020/03/19/eular-covid/ EULAR Guidance for patients with RMDs about COVID-19 outbreak - ERN ReCONNET | European Reference... Aug 8, 2023 - The European League Against Rheumatism (EULAR) developed a Guidance for people with Rheumatic Musculoskeletal Diseases (RMDs) about COVID-19 outbreak. Click on... ern reconnet european eular guidance patients covid https://reconnet.ern-net.eu/2022/02/02/cpms-nh-brochures/ CPMS National Hubs brochures - ERN ReCONNET | European Reference Network on Rare and Complex... Aug 8, 2023 - The informative brochures on CPMS National Hubs have been translated by the National Hubs responsibles in the main european languages (deutsch, french,... ern reconnet european reference network cpms national hubs https://reconnet.ern-net.eu/publications/ Scientific Publications - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european scientific publications reference network rare complex https://reconnet.ern-net.eu/2026/03/17/new-endorsed-events/ New Endorsed events - ERN ReCONNET | European Reference Network on Rare and Complex Connective... Mar 17, 2026 - ERN ReCONNET is pleased to announce the endorsement of two upcoming scientific meetings, further reinforcing its commitment to advancing knowledge,... ern reconnet european reference network new endorsed events https://reconnet.ern-net.eu/covid-19-ema/ COVID-19 EMA - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective covid ema https://reconnet.ern-net.eu/zoe-karakikla-mitsakou/ Zoe Karakikla-Mitsakou - ERN ReCONNET | European Reference Network on Rare and Complex Connective... Jan 8, 2026 - Zoe Karakikla-Mitsakou is an ERN ReCONNET ePAG representative for rare connective tissue diseases, representing Systemic Lupus Erythematosus (SLE). Zoe joined... ern reconnet european reference network zoe rare complex https://reconnet.ern-net.eu/webinar/ webinar - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective webinar rare https://reconnet.ern-net.eu/epag-guimaraes/ ePAG Vera Guimarães - ERN ReCONNET | European Reference Network on Rare and Complex Connective... ern reconnet european reference network epag vera rare https://reconnet.ern-net.eu/patients/ Patients - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective patients rare https://reconnet.ern-net.eu/disease-uctd/ Disease-UCTD - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective disease rare https://reconnet.ern-net.eu/rarern-path/ RarERN Path - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective path rare https://reconnet.ern-net.eu/patients-organisations-eds/ Patients Organisations EDS - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european reference network patients organisations eds https://reconnet.ern-net.eu/monitoring/ Monitoring - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective monitoring rare https://reconnet.ern-net.eu/our-network-affiliated-partners/ Our Network Affiliated Partners - ERN ReCONNET | European Reference Network on Rare and Complex... ern reconnet european affiliated partners network reference rare https://reconnet.ern-net.eu/our-activities-registry/ Registry - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue and... ern reconnet european reference network complex connective registry rare https://reconnet.ern-net.eu/wyntk-pregnancy/ about pregnancy - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective pregnancy rare https://reconnet.ern-net.eu/covid-19-eular/ COVID-19 EULAR - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european reference network complex connective covid eular https://reconnet.ern-net.eu/working-groups/ Working Groups - ERN ReCONNET | European Reference Network on Rare and Complex Connective Tissue... ern reconnet european working groups reference network complex connective rare https://reconnet.ern-net.eu/2024/01/04/ern-exchange-program/ ERN Exchange Program - ERN ReCONNET | European Reference Network on Rare and Complex Connective... Jan 4, 2024 - ERN ReCONNET Exchange Program aims at enhanceìing knowledge sharing and stimulating collaboration between health care professionals in ERNs and strengthen... reconnet european reference exchange program ern network rare https://reconnet.ern-net.eu/transition-of-care-course/ ERN ReCONNET accredited course on Transition of care in rCTDs - ERN ReCONNET | European Reference... Apr 29, 2026 - ERN ReCONNET accredited course on Transition of care in rCTDs Course overview The ERN ReCONNET Transition Training in Rare and Complex Connective Tissue... ern reconnet accredited course transition care https://reconnet.ern-net.eu/2024/09/10/ern-reconnet-awareness-day-campaigns/ ERN ReCONNET Awareness Day Campaigns - ERN ReCONNET | European Reference Network on Rare and... Sep 10, 2024 - Here is a collection of the dedicate ERN ReCONNET dissemination slides developed and shared on our social media channels (LinkedIn, X, YouTube, Instagram,... european reference network ern reconnet awareness day campaigns rare https://reconnet.ern-net.eu/next-ern-reconnet-webinar/ Next ERN ReCONNET webinar - ERN ReCONNET | European Reference Network on Rare and Complex... Mar 12, 2025 - Register now for the next ERN RECONNET webinar: “Diagnosis and management of peripheral neurological manifestations in Sjögren’s disease” It will take place on... european reference network ern reconnet next webinar rare https://reconnet.ern-net.eu/2024/01/04/ern-reconnet-clinical-patient-management-system-cpms/ ERN ReCONNET Clinical Patient Management System (CPMS) - ERN ReCONNET | European Reference Network... Jan 4, 2024 - ERN ReCONNET has translated the CPMS description in 24 different languages, here is the list: ERN ReCONNET. CPMS - Bulgarian ERN ReCONNET. CPMS - Croatian ERN... ern reconnet patient management european reference clinical system https://reconnet.ern-net.eu/2024/01/10/ern-assessment-manual-for-applicants/ ERN Assessment Manual for Applicants - ERN ReCONNET | European Reference Network on Rare and... Jan 11, 2024 - Here is the document developed by the EC to help the applicants interested in joining the ERNs. ERNs - Call Assessment Manual ERNs - HCPs - Evaluation - FAQ reconnet european reference ern assessment manual applicants https://reconnet.ern-net.eu/ern-reconnet-meetings/ ERN ReCONNET @ Meetings - ERN ReCONNET | European Reference Network on Rare and Complex Connective... european reference network ern reconnet meetings rare complex https://reconnet.ern-net.eu/2026/03/02/ern-reconnet-illuminates-the-leaning-tower-of-pisa-for-rare-disease-day/ ERN ReCONNET illuminates the Leaning Tower of Pisa for Rare Disease Day - ERN ReCONNET | European... Mar 2, 2026 - ERN ReCONNET marked Rare Disease Day with a powerful and symbolic initiative by illuminating the iconic Leaning Tower of Pisa, transforming one of Europe’s... rare disease day ern reconnet illuminates leaning tower https://reconnet.ern-net.eu/2018/10/01/european-commission-brochures-on-erns/ European Commission brochures (2017) - ERN ReCONNET | European Reference Network on Rare and... Aug 8, 2023 - European Commission brochures English Dansk Polski Deutsch Eesti Português Français Ελληνικά Română Nederlands Latviešu Slovenčina Español Lietuvių Slovenščina... european commission ern reconnet reference network brochures rare