https://retinauk.org.uk/resource/e-newsletter-april-2023/?_rt=MzZ8NHxzY290bGFuZHwxNzg5MTMyNTE1&_rt_nonce=62c180711c
e-Newsletter - April 2023 - Retina UK
May 20, 2024 - Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.
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https://retinauk.org.uk/news/opus-genetics-launches-clinical-trial-for-mertk-related-retinitis-pigmentosa/?_rt=MjZ8M3xyZXRpbml0aXMgcGlnbWVudG9zYXwxNzg5MTc5NjA1&_rt_nonce=c77e7c383f
Opus genetics launches clinical trial for MERTK-related retinitis pigmentosa - Retina UK
Mar 17, 2026 - Opus Genetics, a clinical-stage biopharmaceutical company, recently announced that they have launched an early phase clinical trial for OPGx-MERTK…
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https://retinauk.org.uk/information-and-support/about-inherited-sight-loss/types-of-inherited-sight-loss/classic-retinitis-pigmentosa/?_rt=MnwxfGV4dHJlbWUgY2hhbGxlbmdlc3wxNzg4OTAxMjI1&_rt_nonce=0e0f3b93b5
Retinitis pigmentosa - Retina UK
Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.
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https://retinauk.org.uk/resource/cbs/?_rt=MzN8NHx2aWRlb3wxNzg4OTY5NjMy&_rt_nonce=e141feed3f
Webinar: Visual hallucinations and Charles Bonnet syndrome - Retina UK
Oct 24, 2023 - Prof Dominic Ffytche will provide an explanation of what Charles Bonnet Syndrome is and share strategies for people who experience visual hallucinations.
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https://retinauk.org.uk/search/Conference/page/19/?s=News
Search Results for “News” - Page 19 - Retina UK
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https://retinauk.org.uk/resource/look-forward-spring-2022-issue-176/?_rt=MTl8MnxlLW5ld3NsZXR0ZXJ8MTc4ODkwMzQ4Nw&_rt_nonce=e7f7161428
Look Forward - Spring 2022 - Issue 176 - Retina UK
Jul 18, 2024 - This edition of Look Forward is packed full of details of our plans for 2022. Being able to get together in person is a big part of that.
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https://retinauk.org.uk/resource/look-forward-winter-2025-issue-188/?_rt=MTZ8MnxhdWRpb3wxNzg5MTM1Njk5&_rt_nonce=5007fc0eca
Look Forward - Winter 2025 - Issue 188 - Retina UK
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https://retinauk.org.uk/information-and-support/about-inherited-sight-loss/types-of-inherited-sight-loss/bardet-biedl/?_rt=MjR8M3xsb2NhbCBwZWVyIHN1cHBvcnQgZ3JvdXB8MTc4ODkwMTU0Mw&_rt_nonce=6dd5b17f52
Bardet-Biedl syndrome (BBS) - Retina UK
Bardet-Biedl syndrome (BBS) is an inherited, rare condition which impacts many parts of the body including the retina.
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https://retinauk.org.uk/search/Annual+Report/page/8/?s=Case+study+-+research
Search Results for “Case study - research” - Page 8 - Retina UK
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https://retinauk.org.uk/search/Volunteering/?s=Written
Search Results for “Written” - Retina UK
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https://retinauk.org.uk/resource/chloe-brotherton/?_rt=Nzd8OHxjYXNlIHN0dWR5IC0gYW1iYXNzYWRvcnwxNzg5MTM1OTIz&_rt_nonce=4448d0b245
Meet a researcher: Chloe Brotherton - Retina UK
Dec 2, 2024 - As part of our aim to nurture young scientists, we are very pleased to introduce one of our new PhD students as part of a co-funding agreement with the Macular...
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https://retinauk.org.uk/search/Case+study+-+research/page/6/?s=Stargardt%20disease
Search Results for “Stargardt disease” - Page 6 - Retina UK
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https://firstcontactplus.org.uk/events/retina-uk-mens-peer-support-group-meeting-25th-june-2024/
Retina UK Men’s Peer Support Group Meeting – 25th June 2024 | First Contact Plus
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https://retinauk.org.uk/information-and-support/frequently-asked-questions/?_rt=MTE0fDEyfGF1ZGlvfDE3ODk1ODQyMDA&_rt_nonce=2d10a8f2b9
Frequently asked questions - Retina UK
The following questions are often asked by people contacting Retina UK.
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https://retinauk.org.uk/search/Cycle/page/8/?s=Stargardt+disease
Search Results for “Stargardt disease” - Page 8 - Retina UK
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https://retinauk.org.uk/news/a-new-approach-to-treating-inherited-sight-loss/?_rt=MTg3fDE5fG5ld3N8MTc4ODkwMzgwNg&_rt_nonce=dcbaf48701
A new approach to treating inherited sight loss - Retina UK
Sep 2, 2024 - Epic Bio have developed a new approach using Epigenetic editing for rare diseases. They have called this platform the Gene Expression Modulation System (GEMS)…
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https://retinauk.org.uk/resource/e-newsletter-january-2026/?_rt=MzE0fDMyfGNhc2Ugc3R1ZHkgLSBjb21tdW5pdHl8MTc4OTE3NTgwNg&_rt_nonce=c27228f6a9
e-Newsletter January 2026 - Retina UK
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https://retinauk.org.uk/for-professionals/how-we-can-support-you-in-your-role/?_rt=NDJ8NXxjb25mZXJlbmNlfDE3ODg5MDU5MzA&_rt_nonce=dc0876b412
How we can support you in your role - Retina UK
Our staff and community members with lived experience are happy to share their knowledge and expertise. We regularly deliver presentations for groups of…
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https://retinauk.org.uk/resource/e-newsletter-september-2022/?_rt=MTIxfDEzfG9ubGluZXwxNzg4OTA2MzQz&_rt_nonce=7e6f7a51f8
e-Newsletter - September 2022 - Retina UK
Nov 13, 2023 - Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.
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https://retinauk.org.uk/search/News/page/7/?s=Usher+syndrome
Search Results for “Usher syndrome” - Page 7 - Retina UK
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https://retinauk.org.uk/search/Online/page/11/?s=Audio
Search Results for “Audio” - Page 11 - Retina UK
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https://retinauk.org.uk/news/belite-bio-phase-2-3-trial-for-adolescents-with-stargardt-disease/?_rt=Mjl8M3xzdGFyZ2FyZHQgZGlzZWFzZXwxNzg4OTA2NTE5&_rt_nonce=12392d3c10
Belite Bio – Phase 2/3 Trial for Adolescents with Stargardt disease - Retina UK
Feb 3, 2026 - Stargardt disease is a progressive inherited retinal condition in which vision loss is caused by the death of photoreceptor cells (light-sensing cells) in the…
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https://retinauk.org.uk/medical-research/approaches-to-treatment/stem-cells/?_rt=ODh8OXxjYXNlIHN0dWR5IC0gcmVzZWFyY2h8MTc4OTU4NDI2MQ&_rt_nonce=dc229435f3
Stem cells - Retina UK
Stem cells are a special type of cell, which under the right conditions can be encouraged to grow into any other type of cell in the body, including retinal...
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https://retinauk.org.uk/search/Local+Peer+Support+Group/page/4/?s=Conference
Search Results for “Conference” - Page 4 - Retina UK
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https://retinauk.org.uk/resource/e-newsletter-october-2023/?_rt=MjA2fDIxfGNhc2Ugc3R1ZHkgLSBzdXBwb3J0ZXJ8MTc4OTE3ODU2MA&_rt_nonce=b8d2ff9f2e
e-Newsletter October 2023 - Retina UK
Jan 7, 2026 - Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.
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https://retinauk.org.uk/search/Running/page/16/?s=Retinitis+pigmentosa
Search Results for “Retinitis pigmentosa” - Page 16 - Retina UK
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https://retinauk.org.uk/search/London/?s=Impact%20Report
Search Results for “Impact Report” - Retina UK
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https://retinauk.org.uk/resource/look-forward-spring-2024-issue-182/?_rt=NDF8NXxwb2RjYXN0fDE3ODk1ODY4Nzk&_rt_nonce=299275ce8e
Look Forward - Spring 2024 - Issue 182 - Retina UK
Jul 29, 2024 - Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.
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https://retinauk.org.uk/search/Annual+Report/page/11/?s=Look%20Forward
Search Results for “Look Forward” - Page 11 - Retina UK
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https://retinauk.org.uk/search/Information+/page/3/?s=Usher%20syndrome
Search Results for “Usher syndrome” - Page 3 - Retina UK
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https://retinauk.org.uk/search/South+Coast/page/6/?s=Video
Search Results for “Video” - Page 6 - Retina UK
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https://retinauk.org.uk/news/breakthrough-bbs10-treatment-marks-major-milestone/?_rt=Mjh8M3x1c2hlciBzeW5kcm9tZXwxNzg5NTgyOTE4&_rt_nonce=6626921b96
Breakthrough BBS10 treatment marks major milestone - Retina UK
Jul 27, 2026 - Individuals with BBS experience retinal degeneration that is similar to retinitis pigmentosa (RP). In addition to RP, this condition is accompanied by…
retina ukbreakthroughtreatmentmarksmajor
https://retinauk.org.uk/event/qac-sight-village-scotland/?_rt=MTN8MnxnbGFzZ293fDE3ODg5MDQ2OTk&_rt_nonce=1c0626bc3e
QAC Sight Village: Scotland - Retina UK
Jan 6, 2026 - An unmissable event for people of all ages living with varying degrees of sight loss.
retina ukqacsightvillagescotland
https://retinauk.org.uk/information-and-support/about-inherited-sight-loss/types-of-inherited-sight-loss/best-disease/?_rt=MTJ8MnxuZXdzfDE3ODg5MDE2NTg&_rt_nonce=affc82afda
Best disease - Retina UK
Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula...
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https://retinauk.org.uk/resource/amar-latif/?_rt=NHwxfHdhbGtzIHwxNzg5MTgwNjIw&_rt_nonce=8d8768fab3
Meet our Ambassador: Amar Latif - Retina UK
Apr 6, 2023 - Amar Latif is an adventurer, entrepreneur, TV presenter and public speaker. He became an Ambassador for Retina UK in 2020.
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https://retinauk.org.uk/resource/e-newsletter-september-2023/?_rt=MTF8MnxnbGFzZ293fDE3ODg5MDQ2OTk&_rt_nonce=b78c986aad
e-Newsletter September 2023 - Retina UK
Jan 7, 2026 - Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.
retina uknewsletterseptember
https://www.disabilityscot.org.uk/organisation/retina-uk/
Retina UK - Disability Information Scotland
Feb 14, 2022 - Provides a welfare support and guidance service to its members and their families
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https://retinauk.org.uk/search/South+Coast/page/9/?s=Information%20event
Search Results for “Information event” - Page 9 - Retina UK
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https://retinauk.org.uk/news/sepul-bio-begins-clinical-trial-of-ultevursen-for-ush2a-associated-rp/?_rt=MjF8M3x1c2hlciBzeW5kcm9tZXwxNzg5NTgyOTE3&_rt_nonce=5cf117d55b
Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP - Retina UK
Dec 17, 2024 - The new clinical trial, known as LUNA, is a two year randomized sham-controlled study that will enroll 81 adults and children over the age of eight years...
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https://retinauk.org.uk/search/Glasgow/page/4/?s=Case+study+-+Ambassador
Search Results for “Case study - Ambassador” - Page 4 - Retina UK
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https://retinauk.org.uk/resource/e-newsletter-sept-2024/?_rt=MzR8NHxzY290bGFuZHwxNzg5MTMyNTE1&_rt_nonce=dc61ad31ed
e-Newsletter September 2024 - Retina UK
retina uknewsletterseptember
https://retinauk.org.uk/search/Close+to+home/page/2/?s=e-Newsletter
Search Results for “e-Newsletter” - Page 2 - Retina UK
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https://retinauk.org.uk/information-and-support/about-inherited-sight-loss/types-of-inherited-sight-loss/pattern/?_rt=MjV8M3xzdGFyZ2FyZHQgZGlzZWFzZXwxNzg4OTA2NTE5&_rt_nonce=c46357d7b0
Pattern dystrophy - Retina UK
Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.
retina ukpatterndystrophy
https://retinauk.org.uk/news/sepul-bio-begins-clinical-trial-of-ultevursen-for-ush2a-associated-rp/?_rt=MjJ8M3x1c2hlciBzeW5kcm9tZXwxNzg4OTAyMTE1&_rt_nonce=e7a5274aae
Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP - Retina UK
Dec 17, 2024 - The new clinical trial, known as LUNA, is a two year randomized sham-controlled study that will enroll 81 adults and children over the age of eight years...
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https://retinauk.org.uk/information-and-support/about-inherited-sight-loss/types-of-inherited-sight-loss/stickler-syndrome/?_rt=MXwxfGF1ZGlvfDE3ODg5MDIzNzg&_rt_nonce=736ed014ca
Stickler syndrome - Retina UK
Stickler syndrome is a genetic connective tissue disorder.
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https://retinauk.org.uk/get-involved/fundraising/start-your-own-fundraising/?_rt=MTI0fDEzfG9ubGluZXwxNzg4OTA2MzQz&_rt_nonce=0f0361c846
Start your own fundraising - Retina UK
Organising your own fundraising is great fun and a brilliant way to involve your friends, family and local community.
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https://retinauk.org.uk/search/Extreme+challenges/page/11/?s=Stargardt+disease
Search Results for “Stargardt disease” - Page 11 - Retina UK
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https://retinauk.org.uk/news/good-luck-to-chris-and-dianne-in-blackpool/?_rt=NDJ8NXxyZXRpbml0aXMgcGlnbWVudG9zYXwxNzg4OTcyNDkw&_rt_nonce=24741364d5
Good luck to Chris and Dianne in Blackpool - Retina UK
Nov 15, 2024 - Comedian Chris McCausland is living with retinitis pigmentosa (RP). He is currently taking part in the 20th Anniversary series of BBC TV show Strictly Come…
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https://www.ramsayhealth.co.uk/treatments/ophthalmology/retina-disease
Retina Disease | Ophthalmology | Ramsay Health Care UK
There are many retina diseases. They affect the way you process visual information and lead to distorted or blurred vision. Some can cause blindness.
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