https://primaryimmune.org/get-involved/volunteer
As an IDF volunteer, you can help provide critical support to those living with PI, as well as advocate for better healthcare policies, research, and funding.
immune deficiencyvolunteerfoundation
https://primaryimmune.org/get-involved/give/sustainers-club
The IDF Sustainer's Club uses monthly donations to support people living with PI and fund research and other advances in treatment.
immune deficiencysustainerclubfoundation
https://primaryimmune.org/advancing-pi-research-and-clinical-care/getting-prior-authorization
Health insurance prior authorization for patients with primary immunodeficiency (PI) can be tricky, especially for immunoglobulin (Ig) replacement therapy. Get...
prior authorizationimmune deficiencygettingfoundation
https://primaryimmune.org/get-involved/raise-awareness-and-funds-idf/diy-fundraise
From personalized web pages to hosting an event in your community, learn how to start your own DIY fundraiser and support those living with PI.
immune deficiencydiyfundraisefoundation
https://primaryimmune.org/policies-and-terms-of-use
Please read this policy carefully to understand how we treat your personal information as well as your choices and rights. If you do not agree with the terms...
immune deficiencypoliciestermsusefoundation
https://primaryimmune.org/living-primary-immunodeficiency/navigating-insurance
IDF’s guide to health insurance for people with PI provides basic information on plan options and the appeals process for denied claims.
immune deficiencynavigatinginsurancefoundation
https://primaryimmune.org/about/idf-leadership
IDF’s leadership team provides guidance, oversight, and expertise to the organization as it seeks to improve the lives of people living with PI.
immune deficiencyleadershipfoundation
https://primaryimmune.org/press-room
Press roomA hub of information for journalists interested in writing about the Immune Deficiency Foundation (IDF) with direct links to learn more about IDF,...
press roomimmune deficiencyfoundation
https://primaryimmune.org/get-involved
You can help change the lives of people affected by primary immunodeficiency (PI) through volunteering, advocacy, fundraising, donating, and more.
get involvedimmune deficiencyfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency
The more you understand primary immunodeficiency (PI), the better you can live with the disease. Learn more about PI, including diagnosis and treatment options.
primary immunodeficiencyunderstandingimmunefoundation
https://primaryimmune.org/living-primary-immunodeficiency/parents-and-guardians
In addition to managing medical treatments, caregivers of children with primary immunodeficiency may need to help their child understand and cope with their...
immune deficiencyparentsguardiansfoundation
https://primaryimmune.org/get-involved/give/giving-circle
IDF’s Giving Circle is a philanthropic society for those who donate annual gifts of $1,000 or more to support those living with primary immunodeficiency (PI).
giving circleimmune deficiencyfoundation
https://primaryimmune.org/get-involved/give/tribute-gifts
Make a charitable gift in honor or in memory of a loved one to help support IDF and create a brighter future for people living with PI.
tribute giftsimmune deficiencyfoundation
https://primaryimmune.org/resources/print-material/chapter-5-hyper-igm-syndromes
Learn about hyper IgM syndromes (HIGM). This chapter is taken from the IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, 6th Edition,...
immune deficiencychapterhyperigmsyndromes
https://primaryimmune.org/get-involved/partners
Get to know some organizations supporting the Immune Deficiency Foundation's work to raise a voice for those with PI.
immune deficiencypartnersfoundation
https://primaryimmune.org/resources/news-articles/get-connected-groups-expand-meet-pi-community-needs
Several new virtual support groups were added to the existing Get Connected Groups based on primary immunodeficiency (PI) community feedback.
get connectedgroupsexpandmeetpi
https://primaryimmune.org/understanding-primary-immunodeficiency/treatment/gene-therapy
Gene therapy is still in clinical trials for several types of primary immunodeficiency (PI), including severe combined immunodeficiency (SCID), chronic...
gene therapyimmune deficiencyfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/types-of-pi/hyper-igm-syndromes-higm
Hyper IgM syndromes (HIGM) are characterized by decreased levels of immunoglobulin G (IgG) in the blood and normal or elevated levels of immunoglobulin M...
immune deficiencyhyperigmsyndromesfoundation
https://primaryimmune.org/donate
Donate to the Immune Deficiency Foundation (IDF) today to make a lasting impact for people living with primary immunodeficiencies (PI).
immune deficiencydonatefoundation
https://primaryimmune.org/resources/news-articles/new-health-access-initiative-launched-immune-deficiencies
Strategic partnership established to foster awareness of primary immunodeficiency in underserved populations.
newhealthaccessinitiativelaunched
https://primaryimmune.org/get-involved/share-your-story
Learn how you can get involved and share your own story to help support people living with PI and their communities.
immune deficiencysharestoryfoundation
https://primaryimmune.org/advancing-pi-research-and-clinical-care/participating-clinical-trials
Participating in clinical trials helps researchers develop safe, effective treatments and diagnostics for primary immunodeficiency (PI), as well as understand...
clinical trialsimmune deficiencyparticipatingfoundation
https://primaryimmune.org/get-involved/advocate
IDF maintains a robust advocacy program focused on national, state, and local healthcare and public health policy issues relevant to the primary...
immune deficiencyadvocatefoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/treatment/hematopoietic-stem-cell-transplantation
When primary immunodeficiency is likely to cause significant harm or death, an allogeneic hematopoietic stem cell transplant (HSCT), more commonly known as a...
stem cellimmune deficiencytransplantationfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/what-is-pi/immune-system-and-pi
Getting to know more about how the immune system works, including its organs and cell types, can help you better understand primary immunodeficiencies (PI).
immune systempideficiencyfoundation
https://primaryimmune.org/get-involved/give
Explore the multiple ways you can donate to help people living with primary immunodeficiencies (PI).
immune deficiencygivefoundation
https://primaryimmune.org/living-primary-immunodeficiency/caring-infants-and-children-pi/advocating-for-your-child
Advocating for your child with primary immunodeficiency (PI) is essential to their well-being, especially when it comes to healthcare and school. Learn how you...
immune deficiencyadvocatingchildfoundation
https://primaryimmune.org/living-primary-immunodeficiency/navigating-insurance/choosing-a-plan
IDF’s free resource for navigating insurance plan selection, for both private insurance plans and Medicare.
immune deficiencychooseinsuranceplanfoundation
https://primaryimmune.org/living-primary-immunodeficiency/general-care
With some lifestyle changes, most people with PI can lead full lives. Get guidance on diet, hygiene, exercise, and staying connected to your doctor.
immune deficiencygeneralcarefoundation
https://primaryimmune.org/living-primary-immunodeficiency/addressing-mental-health
Managing your mental health can help ease the stress of living with a serious chronic healthcare condition like primary immunodeficiency.
mental healthimmune deficiencyaddressingfoundation
https://primaryimmune.org/advancing-pi-research-and-clinical-care/idf-surveys
The IDF Survey Research Center has a strong history of providing timely, accurate data and analysis on issues in the primary immunodeficiency (PI) community.
immune deficiencyidfsurveysfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/what-is-pi
Primary immunodeficiencies (PIs) are a group of more than 550 rare, chronic conditions where a part of the body’s immune system is missing or does not...
immune deficiencypifoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/diagnosis/laboratory-tests
Laboratory tests that measure different parts of the immune system are important for diagnosing an individual with primary immunodeficiency (PI) and...
laboratory testsimmune deficiencyfoundation
https://primaryimmune.org/living-primary-immunodeficiency/get-support/peer-support-program
Get connected with others who share your PI experience with IDF’s peer support groups and other events.
peer supportimmune deficiencyprogramfoundation
https://primaryimmune.org/living-primary-immunodeficiency/parents-and-guardians/primary-immunodeficiency-and-school
As your child's first teacher, you know your child better than anyone. To ensure your child has the best educational experience possible, it's...
primary immunodeficiencyschoolimmunefoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/treatment/immunoglobulin-replacement-therapy
Immunoglobulin (Ig) replacement therapy treats antibody deficiencies by providing the person with antibodies, either intravenously (IVIG) or subcutaneously...
immune deficiencyreplacementtherapyfoundation
https://primaryimmune.org/living-primary-immunodeficiency/caring-infants-and-children-pi/mental-health
IDF compiled this guide to help caregivers and parents of children with primary immunodeficiency (PI) manage their mental health as they go through their PI...
mental healthimmune deficiencycaregiverfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/diagnosis/newborn-screening
Newborn screening is a state-based public health service that ensures all babies are screened for certain conditions that can cause serious health problems,...
newborn screeningimmune deficiencyfoundation
https://primaryimmune.org/advancing-pi-research-and-clinical-care/clinician-education
Explore continuing medical education (CMEs) and other programs that are available for healthcare providers to learn about primary immunodeficiencies (PI).
immune deficiencyclinicianeducationfoundation
https://primaryimmune.org/living-primary-immunodeficiency
Living with primary immunodeficiency (PI) can feel isolating, but you don't have to go through it alone. You can connect with other adults living with PI...
primary immunodeficiencylivingimmunefoundation
https://primaryimmune.org/get-involved/raise-awareness-and-funds-idf/walk-pi
The Walk for PI is IDF's premier fundraiser, with events taking place across the country.
immune deficiencywalkpifoundation
https://primaryimmune.org/careers
IDF’s list of employment opportunities detailing our mission, guiding principles, and our diversity and inclusivity statement.
immune deficiencycareersfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/think-zebra
THINK ZEBRA! is IDF’s motto. People with primary immunodeficiencies are like the zebras of the medical world—rare and worthy of attention and care.
immune deficiencythinkzebrafoundation
https://primaryimmune.org/about
The Immune Deficiency Foundation (IDF) supports and uplifts the lives of those affected by primary immunodeficiencies (PI) through education, advocacy, and...
immune deficiencyidffoundation
https://primaryimmune.org/get-involved/events
Learn more about all the ways to learn, connect, and engage with IDF—online and in person.View event calendar
immune deficiencyeventsfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/diagnosis
Explore the main categories of tests physicians use to reach a primary immunodeficiency (PI) diagnosis: lab testing, newborn screening, and genetic testing.
immune deficiencydiagnosisfoundation
https://primaryimmune.org/living-primary-immunodeficiency/get-support/find-other-support
See organizations that provider financial or other support for those with primary immunodeficiency and their caregivers, or find the copay assistance program...
immune deficiencyfindsupportfoundation
https://primaryimmune.org/find-pi-specialist
The Immune Deficiency Foundation maintains a database of clinicians who specialize in the treatment of primary immunodeficiency (PI). Contact us today, and our...
immune deficiencyfindpispecialistfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/immune-system-and-genetics
Primary immunodeficiencies can be inherited in one of three different ways depending on the specific disorder: X-linked recessive, autosomal recessive, or...
immune systemgeneticsdeficiencyfoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/treatment
Learn how primary immunodeficiency (PI) is treated, from recurring treatments like immunoglobulin (Ig) replacement therapy to long-lasting treatments like...
immune deficiencytreatmentfoundation
https://primaryimmune.org/advancing-pi-research-and-clinical-care/diagnosing-pi
Does your patient have bacterial meningitis, empyema, Pneumocystis, Cryptococcus, Aspergillus, or Nocardia infection, HSV-1 encephalitis, Evans syndrome, or...
immune deficiencydiagnosingpifoundation
https://primaryimmune.org/advancing-pi-research-and-clinical-care
IDF has educational and research resources to help healthcare providers, researchers, and patients advance the primary immunodeficiency field.
clinical careimmune deficiencypiresearchfoundation
https://primaryimmune.org/living-primary-immunodeficiency/get-support
When navigating primary immunodeficiency (PI) symptoms, diagnosis, treatment, insurance, and emotions, turn to IDF for answers and connections.
get supportimmune deficiencyfoundation
https://primaryimmune.org/advancing-pi-research-and-clinical-care/consulting-immunologist-program
The Consulting Immunologist Program is a free service for healthcare providers to consult with immunologists specializing in primary immunodeficiency on...
immune deficiencyconsultingprogramfoundation
https://primaryimmune.org/living-primary-immunodeficiency/navigating-insurance/appealing-denial-or-filing-complaint
If you have private health insurance, learn how to appeal a denied claim or how to make a complaint to your state’s insurance commissioner or the Department...
immune deficiencyappealingdenialfilingcomplaint
https://primaryimmune.org/living-primary-immunodeficiency/managing-pi-workplace
Finding and maintaining employment can be a complex process that involves more than just job satisfaction and making money. It also includes finding a job that...
immune deficiencymanagingpiworkplacefoundation
https://primaryimmune.org/understanding-primary-immunodeficiency/diagnosis/genetic-testing
Genetic testing looks for variants in genes that are known to cause primary immunodeficiency (PI) and may fast-track your diagnosis.
genetic testingimmune deficiencyfoundation